tag:blogger.com,1999:blog-7952285175977637672024-03-14T04:32:44.665-04:00Jimmy BlogJimmy was diagnosed with Juvenile Diabetes on April 1, 2010 at 5 years old. This blog contains my experiences, thoughts, feelings, and more... Peace, JuneJimmy's Momhttp://www.blogger.com/profile/11045751635491136842noreply@blogger.comBlogger70125tag:blogger.com,1999:blog-795228517597763767.post-48263153029024758282012-07-28T20:01:00.000-04:002012-07-28T20:02:26.296-04:00Cablevision comes to the house today, and the technician asks, "So who is the diabetic?" I was caught off guard, but Jimmy answered right away in a loud, confident voice, "I AM! Do you have diabetes, too?"<br />
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Turns out that he saw Jimmy's blood glucose meter (aka tester) on the table... He is also a type 1 diabetic who was diagnosed at 10. He's now 37, married, 2 children, and in total control of his health. Who does he have to thank? His family and CAMP NEJEDA!!!<br />
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I'm so thankful for the family weekends at Camp Nejeda both last year and this year on Father's Day Weekends... 2 AMAZING experiences and need blog posts to describe... but in the meantime, Jimmy was granted a spot this summer for one week at Camp Nejeda's sleep away camp!!!!! Although I was a basket case while he was gone (missing him, etc...), I was so proud of him that he went! All I got when I dropped him off was, "Bye Mom!" with a smile and a wave - just like that, he was off!<br />
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgmDVY4AorcS-J-1NBQvGbYRfqO06Us_bl83XmgNiLao-1FHXvRagHx3wrr9WDNW4bpLPK3TtQQyk-RX_oBpwHeHLrwfg5qATg8-4KE_5qjaecp9S766G1timr6i5uSDmjhxSDvEzDw6Ro/s1600/Picture+3.png" imageanchor="1" style="clear: right; float: right; margin-bottom: 1em; margin-left: 1em;"><img border="0" height="316" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgmDVY4AorcS-J-1NBQvGbYRfqO06Us_bl83XmgNiLao-1FHXvRagHx3wrr9WDNW4bpLPK3TtQQyk-RX_oBpwHeHLrwfg5qATg8-4KE_5qjaecp9S766G1timr6i5uSDmjhxSDvEzDw6Ro/s400/Picture+3.png" width="400" /></a>So much more to come about camp... but his face in this picture says it all (he's on the left :)<br />
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgnet8FCeRaMBFR6_nWrV6lQkNCDzGDPeVGBICZ8Gd1P0ltiFYmznfrA_kOn3LNwvD1vdw5kl1Im2V9ckcGV-v2SVt9zSvGv3Lh88j3RS9WvNdRo-vpN7SV9ZupZJxsJ-LDcbQkF0OWEhc/s1600/Jimmy+camp.jpg" imageanchor="1" style="clear: right; float: right; margin-bottom: 1em; margin-left: 1em;"><img border="0" height="400" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgnet8FCeRaMBFR6_nWrV6lQkNCDzGDPeVGBICZ8Gd1P0ltiFYmznfrA_kOn3LNwvD1vdw5kl1Im2V9ckcGV-v2SVt9zSvGv3Lh88j3RS9WvNdRo-vpN7SV9ZupZJxsJ-LDcbQkF0OWEhc/s400/Jimmy+camp.jpg" width="326" /></a></div>
Also, check out this note he sent us from camp:<br />
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(Translation: "I am having a great time at camp. Love Jimmy. Thank you Dad for paying for this."<br />
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Gotta love him!!!<br />
Peace, JuneJimmy's Momhttp://www.blogger.com/profile/11045751635491136842noreply@blogger.com0tag:blogger.com,1999:blog-795228517597763767.post-55491265057383298002012-01-16T23:12:00.005-05:002012-01-17T00:14:23.623-05:00time goes byI don't know how it is that Jimmy is 7, Jenna is 12, and that it's 2012 already! I know it's cliche, but I thought they were just babies!<br /><br />Jenna and I took a trip down memory lane tonight - she sprung it on me that she needed a picture of her as a baby and also in kindergarten. So there we are, reminiscing about her baby years - going through the albums and noticing how much Jimmy looks like her - and noticing that there aren't too many photos of 'just Jenna' since Jimmy came along!! And as Jenna pointed out, that it's always been that way - wherever she is, he's there, too! She was <span id="SPELLING_ERROR_0" class="blsp-spelling-error">ok</span> with it - for a minute I thought she was going to complain about it. All she asked was, "Mom, was it easy when it was just me?"<br /><br />She's such a good kid. She knows it's hard now. Diabetes is hard. I told her that it <strong>was</strong> hard work with just her - but I love it, and that she was my only <span id="SPELLING_ERROR_1" class="blsp-spelling-corrected">priority</span> then. Now, she shares me with her brother - but that she was lucky to have me all to herself for almost 5 years before Jimmy came along. She agreed, and added, "I'm glad Jimmy is here."<br /><br />Me too. Like I said, she's a good kid!<br /><br />Jimmy mentioned to me on Friday that he remembers playing video games in the hospital when he was first diagnosed. I'm <span id="SPELLING_ERROR_2" class="blsp-spelling-corrected">relieved</span> to know that of all the bad stuff he went through in the hospital, that he remembers the good stuff!!!<br /><br />Christmas was <span id="SPELLING_ERROR_3" class="blsp-spelling-corrected">difficult</span>. The time spent sitting in the car to go visiting doesn't go over well with blood sugars. The tempting sweets over the holidays is just <span id="SPELLING_ERROR_4" class="blsp-spelling-corrected">ridiculous</span>. Being off schedule does a number on Jimmy's numbers...<br /><br />I find it amazing that his A1C was actually lower than it was 3 months ago since the holiday break was so "off."<br /><br />We're hovering at an 8.2 now - down from an 8.5.<br /><br />We've made the necessary changes now, but I'm afraid that he's sitting too low lately. He has a low almost every day for the last 2 weeks. Need to contact the <span id="SPELLING_ERROR_5" class="blsp-spelling-error">dr</span>. (aka Rachel) to see what we should do.<br /><br />On another note, we had a crappy Friday the 13<span id="SPELLING_ERROR_6" class="blsp-spelling-error">th</span>. It was Thursday night, and I waited until he fell asleep to change his site (it's just easier than fighting him - which isn't always the case, but when he fights, it can be ugly. So when I can, I'll just do it when he's asleep.)<br /><br />I changed it, but in the morning, he was over 200. I <span id="SPELLING_ERROR_7" class="blsp-spelling-corrected">feared</span> that Friday the 13<span id="SPELLING_ERROR_8" class="blsp-spelling-error">th</span> was getting us, but <span id="SPELLING_ERROR_9" class="blsp-spelling-error">bolused</span> him anyway, covered for breakfast, and went off to school (keeping my fingers crossed.)<br /><br />Well, don't you know I got a call from the school nurse that Jimmy was in the 400's with <span id="SPELLING_ERROR_10" class="blsp-spelling-error">keytones</span>.<br /><br />Panic mode.<br /><br /><span id="SPELLING_ERROR_11" class="blsp-spelling-error">Ok</span>, here we go.<br />1. Correct him with a shot of 1 and 1/2 times the correction with the <span id="SPELLING_ERROR_12" class="blsp-spelling-error">novalog </span>pen. oops, he flinched, and didn't get the entire correction...<br /><br />2. Give a 2<span id="SPELLING_ERROR_13" class="blsp-spelling-error">nd</span> <span id="SPELLING_ERROR_14" class="blsp-spelling-error">novalog</span> pen shot to guess what he didn't get and make up for it...<br /><br />3. Then he decides he's hungry. <span id="SPELLING_ERROR_15" class="blsp-spelling-error">Ok</span>, so now we need to give another 1 unit, except - OH NO - there are no more <span id="SPELLING_ERROR_16" class="blsp-spelling-error">novalog</span> pen <span id="SPELLING_ERROR_17" class="blsp-spelling-error">nano</span> needles, AND he needs a new site!!!<br /><br />4. Locate the original syringes in the nurse's office and chase Jimmy around until he agrees to have the syringe to cover for his yogurt and chips he wanted to have. Finally gave him the shot, and he doesn't want the snack anymore. Really???<br /><br />5. Convinced him to eat the snack.<br /><br />6. Still high, so I decide to to take him home and change the site, only to realize the site I put in the night before was the last site until the delivery on Saturday - which wasn't soon enough.<br /><br />7. Communicating with the Molly Center about Jimmy's <span id="SPELLING_ERROR_18" class="blsp-spelling-error">keytone</span> status, they told me to come on over to see them since they have some extra sites on hand. Thank goodness!!! So I get there, and make a mental note that I'll need gas before I get home. <br /><br />8. Leave the Molly Center, head to the bank, since Jimmy wants pizza from his favorite place, but they only take cash - so off to the bank. The plan was that I'd get the cash, get the pizza, then go home to change his site and eat.<br /><br />9. Best laid plans... as we're leaving the bank, my car (which said that I still had 5 miles to go) ran out of gas.<br /><br />10. Can't find my AAA card, so I call Jim. He has it and gives me the number - which I call, and discover that my phone battery is low (I had let Jimmy play with it as a distraction in the nurse's office) and the phone then actually shuts off. So there I am, leaving the bank, blocking the exit with my dead car. Angry people honking at me, yelling at me, etc... Happy Friday the 13th.<br /><br />11. Now keep in mind that Friday morning, it was actually nice out. However by about noon, it was a blustering, windy, freezing, flurries falling day. We hadn't had our heavy winter coats with us because I'm <span id="SPELLING_ERROR_19" class="blsp-spelling-corrected">evidently</span> a bad mom who doesn't read the forecast! I wasn't sure what to do...<br /><br />12. So, already feeling like the worst mom ever, we go to the nearest safe and warm place - Starbucks (the bank was farther down the strip mall, and Jimmy was <span id="SPELLING_ERROR_20" class="blsp-spelling-error">soooo</span> cold!!!) Luckily, the manager took pity on me and offered to watch Jimmy so I could go get gas. I was sure she was going to call <span id="SPELLING_ERROR_21" class="blsp-spelling-error">DYFS</span> on me for not having a winter coat for him and for abandoning my child. But I go across the street to get gas. Praying with every footstep that I was doing the right thing.<br /><br />13. (13 being the final step in my awful ordeal) I have to pay extra for a gas can, even though the gas station attendant can see my car from his station - he claimed that I wouldn't bring it back... So freezing my butt off, I run the gas over to pick up Jimmy from Starbucks (to find out that the manager had given Jimmy a cup of hot chocolate - WITH WHIPPED CREAM!!!!!!!! I guess I didn't mention that he was a diabetic, since I knew he was already high and that he wouldn't go low in the 5 minutes I was across the street getting gas...) Although, I was still incredibly greatful that this kind, angelic person (albeit complete stranger) was nice enough to look after Jimmy for me on what might have been one of my worst days ever!!! So, there we are - getting back to my car - gas can in hand. You'd think that one of the 3 security guards directing traffic to avoid my car blocking the exit would have offered to fill my tank with it, but that wasn't the case. They actually watched me as I tried to figure it out. I was freezing, my fingers were numb, and I couldn't get the cap off. It was kind of like a water bottle that you need to pry off the plastic piece before use - so frustrating!!! Well, no thanks to them, I got it off, filled the car, and Jimmy and I were off. <br /><br />We did it. <br />We survived Friday the 13<span id="SPELLING_ERROR_22" class="blsp-spelling-error">th</span>.<br />And it was only 1:30 in the afternoon!!!<br />What else would the day have in store for me???<br /><br />Luckily, Jimmy's <span id="SPELLING_ERROR_23" class="blsp-spelling-error">keytones</span> were gone by the time I got home, and despite the major amounts of <span id="SPELLING_ERROR_24" class="blsp-spelling-error">carbs</span> in the hot chocolate, I was able to correct that high in a reasonable amount of time.<br /><br />Always something with diabetes - at least this time, I was able to blame something else - <span id="SPELLING_ERROR_25" class="blsp-spelling-corrected">namely</span> Friday the 13<span id="SPELLING_ERROR_26" class="blsp-spelling-error">th</span>. I'll be better prepared next time - I hear there are 2 more this year - Wish me luck!!<br /><br />Peace,<br />JuneJimmy's Momhttp://www.blogger.com/profile/11045751635491136842noreply@blogger.com0tag:blogger.com,1999:blog-795228517597763767.post-5808795469027189532011-12-04T22:54:00.002-05:002011-12-04T23:06:01.039-05:00saying goodnightYou know when you go in to check on the lil ones, and they're almost asleep? well, that's what all of us do... no matter what time of the night it is, that's what we do - we tuck them in. right?<br /><br />Right.<br /><br />Well, they expect that it's a comforting, loving, soothing, and motherly time of night...<br /><br />For most kids, that would be a correct summation of the feeling of the night.<br /><br />For Jimmy, it's not quite so.<br /><br />Tonight, I waited until Jimmy was asleep until I changed his site. It back-fired. <br /><br />I revealed the place I would like to have placed the new site (on his lower belly) and he stayed sound asleep.<br /><br />I wiped the site clean with an alcohol wipe. He remained sound asleep.<br /><br />I placed the site inserter on the site, and he remained asleep.<br /><br />I inserted the site. He fussed, rolled over, and before I knew it happened, he had ripped out the new stite. <br /><br />Poor kid. There he was sound asleep, and he was bleeding from the site on his belly that he had ripped out.<br /><br />Time goes by...<br />...<br /><br />It's in now. It's in his lower belly, but on the opposite side. He'll be ok. I just feel so badly that he is bothered enough to be awakened by his site changes.<br /><br />I hope he can't remember them.<br />Peace,<br />JuneJimmy's Momhttp://www.blogger.com/profile/11045751635491136842noreply@blogger.com0tag:blogger.com,1999:blog-795228517597763767.post-49801711274461366302011-11-27T18:32:00.005-05:002011-11-27T19:28:55.563-05:00Mad LibsFor Thanksgiving, we traveled to Maryland. It was a lovely visit with family, including a speedboat ride on the <span id="SPELLING_ERROR_0" class="blsp-spelling-corrected">Chesapeake</span>, the annual football game, swimming at the hotel, and the biggest turkey I've ever seen!<br /><br />On the trip down, Jenna brought Mad Libs... a family favorite of ours!! Always a funny story, especially with Jim and Jimmy's funny parts of speech choices (use your imagination - you know, a "Smelly Birthday", or a "Hairy Christmas"... the words that make the boys laugh!!!)<br /><br />Jimmy and Jenna just love them, and in only first grade, Jimmy knows what even adverbs are!!! Jenna is such a good teacher and takes such good care of her brother!!!<br /><br />Well, I'm sure I mentioned <span id="SPELLING_ERROR_1" class="blsp-spelling-corrected">in the</span> past that swimming makes the insulin pump site a bit less adhesive... well, it ripped off on Thursday morning after we arrived at the hotel and took a dip in the pool before we made our way to our Thanksgiving extravaganza... Jimmy was getting dressed when it came off... no doubt due to the chlorine...<br /><br />So, he sucked it up and accepted a new site (after avoiding it at first by locking himself in the bathroom, bribing him with extra dessert, running down the hotel hallway, scratching his back, allowing him to pick his own site, and more...)<br /><br />The site was done on Thursday at about noon... only to have the site rip out after Friday morning after another swim...<br /><br />Poor kid. It's so awful to have to handle his diabetes, and it's NOTHING compared to what he goes through. I almost cried for him that he would have to have a new site within a 12 hour time period. He cried, screamed and locked himself in the bathroom (again) to avoid it.<br /><br />As you can imagine, it wasn't pretty.<br /><br />I had to talk Jimmy into it, and Jim had to talk me out of losing it from how upset I felt I made Jimmy feel. He was almost as upset as the time I hound him hiding in my closet when he didn't want a shot early on in his diabetes journey...<br /><br />After the site, I held Jimmy, rocked him scratched his back, whispered good stuff to him, tried to make him smile (to no avail), etc... He acted as though it was the end of the world. My heart broke for him.<br /><br />And then came Jenna to the rescue with <span id="SPELLING_ERROR_2" class="blsp-spelling-corrected">Mad Libs</span>!! Jimmy finally started to open up and let it out. Jenna asked for an adjective. Jimmy offered, "mad."<br /><br />Jenna asked for a noun. Jimmy said, "frown."<br /><br />Clearly he was expressing how upset he was with the site insertion. My poor little Jimmy.<br /><br />I'm thankful that he let it out, but my heart continues to break for him. <br />I'm thankful for so many things, but I'm not a fan of diabetes.<br />I'm thankful.<br />Peace,<br />JuneJimmy's Momhttp://www.blogger.com/profile/11045751635491136842noreply@blogger.com1tag:blogger.com,1999:blog-795228517597763767.post-77873852723029691032011-11-12T00:17:00.003-05:002011-11-12T00:48:07.530-05:00I hate thisAt 11pm, I ripped off Jimmy's site on his belly. It was 2 days old (the norm), he was itching it, but he didn't want it off (and that was at 6pm). He'd prefer to be asleep when I change his site...<br /><br />Poor guy, at 11, he was sound asleep, and I thought it would be <span id="SPELLING_ERROR_0" class="blsp-spelling-error">ok</span> to take it off. He woke up enough to proclaim, "<span id="SPELLING_ERROR_1" class="blsp-spelling-error">Owwwwwww</span>!"<br /><br />Tears came to my eyes as I scratched Jimmy's back to make it all <span id="SPELLING_ERROR_2" class="blsp-spelling-error">ok</span> again and let him go back to sleep. I HATE that I have to <span id="SPELLING_ERROR_3" class="blsp-spelling-corrected">interrupt</span> his sleep to take care of DIABETES.<br /><br />Just the word is awful. I've got tears in my eyes.<br /><br />So now, I've put in the new site. It's in his arm. I tried to roll him over, and he held his arm and told me, "NO!" But, I waited until he fell asleep again and then I put it in. He didn't wake up. Thank God. Jimmy's regular life is constantly interrupted for D. It's not right. It's so not right.<br /><br />He won't remember the removal of the site tonight, or the insertion of the new site tonight, but I will.<br /><br />I hate hurting him. I hate diabetes. and I hate that it gets a capital d everywhere. It doesn't deserve a capital d.<br /><br />I've got to test him again in an hour, so I've got to get some <span id="SPELLING_ERROR_4" class="blsp-spelling-error">z's</span>.<br /><br />My sister told me today that I've got a lot on my plate. I told her, "Everyone has a lot on their plate. Right?" <span id="SPELLING_ERROR_5" class="blsp-spelling-error">Everyone's</span> got something. Everyone has something on their plate...<br /><br />And besides, I signed up for what's on my plate. I don't mind at all the work I've got in front of me... I just hope I can absorb a percentage of what Jimmy has on his plate. I'll take whatever I can for him.<br /><br />I hate diabetes.<br />Peace,<br />JuneJimmy's Momhttp://www.blogger.com/profile/11045751635491136842noreply@blogger.com0tag:blogger.com,1999:blog-795228517597763767.post-29335539479819956232011-11-04T21:28:00.002-04:002011-11-04T21:52:47.868-04:00where do i begin?<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh-NYxvLOzNJTVkTztazLxgjlULGjZOPTdzdv_Pt-vzjYbO_GQhYGl8SuTESQs7t_ZvNTuHWPNyQaSL4ukT1ZRAfjKPfbyncqws9C3GDbXSFdXXYo9EYIc3uJOObkUAzhDMD4CEjgxp1zs/s1600/King+Jimmy.jpg"><img style="TEXT-ALIGN: center; MARGIN: 0px auto 10px; WIDTH: 126px; DISPLAY: block; HEIGHT: 200px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5671318241983327474" border="0" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh-NYxvLOzNJTVkTztazLxgjlULGjZOPTdzdv_Pt-vzjYbO_GQhYGl8SuTESQs7t_ZvNTuHWPNyQaSL4ukT1ZRAfjKPfbyncqws9C3GDbXSFdXXYo9EYIc3uJOObkUAzhDMD4CEjgxp1zs/s200/King+Jimmy.jpg" /></a> My little King. <br />Jimmy was "The Burger King" for Halloween, and he was a big hit!<br /><br />I'm so proud of Jimmy. For only 6 years old, he is <span id="SPELLING_ERROR_0" class="blsp-spelling-error">becomming</span> so <span id="SPELLING_ERROR_1" class="blsp-spelling-error">incredibally</span> responsible and wise beyond his years - yet somehow, he remains a little boy!!! He manages to test his own blood sugar, deliver insulin when he's high, and count the carbohydrates he eats (what other 6 year old does this?) all while being <span id="SPELLING_ERROR_2" class="blsp-spelling-error">funloving</span>, <span id="SPELLING_ERROR_3" class="blsp-spelling-error">mischeivous</span> and getting into trouble regularly!!<br /><br />It's been so long since my last posting - and my only excuse is that I'm too busy to post. Blogging has been kind of cathartic for me to get my feelings and thoughts down... and to not be able to do that has been rough.<br /><br />It's just too much at times, yet we have no choice. It doesn't end. <br /><br />But no matter how much it puts me back, Jimmy has literally NO end. This is with him for life...<br /><br />The picture above is from the Molly Center & <span id="SPELLING_ERROR_4" class="blsp-spelling-error">JDRF's</span> Halloween party. The caricaturist they had last year was there again this year, and she was able to capture the essence of Jimmy to a tee!!!<br /><br />Much more to come - I am going to budget time to post more often....<br />Peace,<br />JuneJimmy's Momhttp://www.blogger.com/profile/11045751635491136842noreply@blogger.com0tag:blogger.com,1999:blog-795228517597763767.post-7898502568844527192011-07-04T20:57:00.022-04:002011-07-08T10:46:55.064-04:00a plethera of topics!So much has happened, and now that summer is here, I thought I'd have more time to post... But it's still so busy!!!!!<br />I don't know where to begin... I'll start with an amazing experience.<br /><br /><span style="font-size:180%;"><span style="FONT-WEIGHT: bold">CAMP <span id="SPELLING_ERROR_0" class="blsp-spelling-error">NEJEDA</span></span></span> (http://www.campnejeda.org)<br />We had a WONDERFUL time at Family Weekend at Camp <span id="SPELLING_ERROR_1" class="blsp-spelling-error">Nejeda</span>!!!!! June is such a busy time of year for us as teachers, and it was hard to pick up and go away for 3 days. But it was just the doctor ordered; I found the weekend to be a blessing, informative, healing, beneficial and more. In searching for just the right word, <span style="FONT-STYLE: italic; FONT-WEIGHT: bold">salubrious</span> seems to about cover it. Our salubrious weekend at Camp <span id="SPELLING_ERROR_2" class="blsp-spelling-error">Nejeda</span> was just what the doctor ordered.<br /><br />Our experience was amazing. Not that I'm happy that other people are going through what we are, but it helps to know that there are people just like us with whom we can relate. We got to meet other families who know exactly what we are going through... You know when your kids are sick with a cold or cough or a stomach bug - and you wake up in the middle of the night to check on them? Well, that's every night for the parents of a diabetic. We test Jimmy at midnight and 3 a.m. most nights. If he's low, we have to wake him up to make him drink a juice box (and he's so cute sipping on the straw mostly asleep!!) He's not usually low at night, but still, we check - at least once, but usually 2x a night. There's one mom we met who checks her son every hour or 2 every single night. With all my heart, I can relate. I'm so afraid he'll go low, or he'll be too high and need a correction, or his pump site will come out, or his pump is pressing into his skin too much... Although I get so much love and support from friends and family, I found solace in spending the weekend with all of these wonderful families.<br /><br />One family has 3 children who are all Type 1 diabetics, the oldest of whom is autistic. The father said that he thinks the reason he was with us that weekend was to make us feel better. I simply can't fathom what he is going through. I guess all one can do is play the hand that God deals you. I pray that his family has help from family and friends. I pray that his children are <span id="SPELLING_ERROR_3" class="blsp-spelling-error">ok</span>. I pray that he got as much out of the weekend as I did. Another family has 2 diabetic children and 2 full time jobs. Another family has a boy Jimmy's age who was diagnosed when his sister was just a newborn. I can't even imagine what that must have been like. Every family was attentive to each others' story. Every family offered support. It was like a Cornerstone weekend for families of diabetics!<br /><br />And that's just my experience! I am so happy for my son that he got to play with other kids just like him! It was completely normal have a pump attached with a tube dangling out from his waistline. Almost every counselor wore their pump site in a visible spot. I actually found myself feeling bad for Jenna that she wasn't like all the rest of the kids! No site for her, no testing for her, no <span id="SPELLING_ERROR_4" class="blsp-spelling-error">carb</span> counting for her... It was a funny feeling to know that <span id="SPELLING_ERROR_5" class="blsp-spelling-corrected">Jimmy</span> and his diabetes was the norm at camp! He got to know so many kids and counselors with diabetes just like him! Almost all of the kids and counselors there had an insulin pump!!! At one point, one of the insulin pumps sounded an alarm and all 13 kids checked to see if it was theirs!!!<br /><br />Our time there was a blessing, and I'm so happy we went! The line of the weekend was from one of the mothers. When her son was diagnosed and they were in the hospital, she told him, "I wish I could take your diabetes away and have it myself." His response was, "No mommy, I don't want you to have diabetes.............. Let's give it to Daddy!!!!!"<br /><br />I don't think I've done the weekend justice, but I really feel better off for having <span id="SPELLING_ERROR_6" class="blsp-spelling-corrected">experienced</span> Camp <span id="SPELLING_ERROR_7" class="blsp-spelling-error">Nejeda</span>. I really look forward to next year! Jimmy can go for a week on his own next year, too (although I don't know if I can do without my Jimmy for a whole week! <span id="SPELLING_ERROR_8" class="blsp-spelling-error">lol</span>)<br /><br />I have the emails of the counselors and families who were there for the weekend, and I hope to be able to reconnect with some or all of them in the future.<br /><br /><br /><span style="font-size:180%;"><br /></span><span style="font-size:180%;"><span style="FONT-WEIGHT: bold"><span id="SPELLING_ERROR_9" class="blsp-spelling-error">INTERCRANIAL</span> ARACHNOID CYST</span></span><br />Earlier this morning, I made an appointment for Jimmy's 2<span id="SPELLING_ERROR_10" class="blsp-spelling-error">nd</span> annual MRI for his Arachnoid Cyst. Remembering back to a year ago, it was diagnosed after he had gotten hit in the head with a bat. To rule out a skull fracture, they did a CAT scan and found the cyst (completely unrelated to the bat incident.) As if Type 1 diabetes wasn't enough, I now had to follow up with an MRI of his brain an a Pediatric Neurosurgeon.<br /><br />He's probably had the cyst since birth, but they want to check him every year to make sure there are no changes. Here's what Jimmy's cyst kind of looks like... I got this pic from the <span id="SPELLING_ERROR_11" class="blsp-spelling-error">internet</span>, since I don't have his scan. It's similar in size and shape to Jimmy's, but his is more toward the front of his head... maybe a little fatter and not as long - but you get the picture.<a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhijUtzRXrovz-h_P4hcpgWdUT_YwRbXAK37918f2MV28gc4SqZgF3SGlYBo34XHMxTBofbifkKzDBsOMhzxcpDlOkehepyg177ySfothNuZ7-6k0HpqQRVLIvC8rubDpdU4HnUV47BRgU/s1600/arachnoid+cyst.jpg"><img style="TEXT-ALIGN: center; MARGIN: 0px auto 10px; WIDTH: 120px; DISPLAY: block; HEIGHT: 143px; CURSOR: pointer" id="BLOGGER_PHOTO_ID_5626624844779693426" border="0" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhijUtzRXrovz-h_P4hcpgWdUT_YwRbXAK37918f2MV28gc4SqZgF3SGlYBo34XHMxTBofbifkKzDBsOMhzxcpDlOkehepyg177ySfothNuZ7-6k0HpqQRVLIvC8rubDpdU4HnUV47BRgU/s200/arachnoid+cyst.jpg" /></a>In a nutshell, the cyst is a benign collection of brain fluid that is not where it's supposed to be. It has to be monitored yearly to check for growth or changes, and small ones usually not a problem. Here's a site I found that kind of spells out what an "<span id="SPELLING_ERROR_12" class="blsp-spelling-error">Intracranial</span> Arachnoid Cyst" is: http://www.skullbaseinstitute.com/arachnoid-cyst/<br /><br />Of course, Jimmy's is a "sizable" cyst (not small), but so far it doesn't appear to be causing any problems (such as headaches, dizziness, vomiting, etc...)<br /><br />So, I'm not going to do my best not to worry about it (yeah, right). I'll wait for the MRI and follow up appointment later this month and see what the doctor has to say. Until then, back to Type 1.<br /><br /><br /><span style="font-size:180%;"><span style="FONT-WEIGHT: bold">7.7 A1C</span></span><br />He's growing and gaining weight wonderfully! Off the charts for height and just under 100<span id="SPELLING_ERROR_13" class="blsp-spelling-error">th</span> percentile for weight. The doctor says he looks good and Although his A1C went from a 7 four months ago to a 7.7, his doctor is happy. The 7 had too many lows, so our goal was for fewer lows for our next appointment. We did it! He was running high there for a while, and I was really worried that it would be over an 8 - so, I'll take a 7.7.<br /><br />The doctor helped us raise basal rates and adjust <span id="SPELLING_ERROR_14" class="blsp-spelling-error">carb</span> ratios. Although it wasn't our favorite Molly Center nurse, Rachel, it was a good appointment. We've just been spoiled with how wonderful and amazing Rachel is. Hopefully, she'll be at our next appointment in September!<br /><br /><br /><span style="FONT-WEIGHT: bold;font-size:180%;" >ISSUES</span><br />He's still having skin issues with the tape for his sensor... It's not on at the moment. He HATES having it inserted. I usually do it at night, but then I have to wait 2 hours to calibrate it... And the tape already came off a few times in the pool. We'll certainly revisit it - with new tape. To be continued...<br /><br />Lately, Jimmy doesn't want to test and yells, "I HATE TESTING! WHY DO I HAVE TO TEST???" every time he has to test with me. It breaks my heart. My last post was about Jimmy and inserting new sites. He hates to do it. It's a huge ordeal sometimes. I'd estimate that 1 out of 3 times now he is <span id="SPELLING_ERROR_15" class="blsp-spelling-error">ok</span> with it. The other 2 times are draining. As I said in my last post, my heart breaks for him.<br /><br />So, now he hates testing, doesn't want his site changed and would rather do anything but get his sensor site inserted. What do I do???<br /><br />Jimmy had a major meltdown in June toward the end of school. His site was in need of changing when he was at school, so I went at lunch to do it. Jimmy tried everything to get out of doing a site change at school. Running out of the room, trying to lock himself in the bathroom, kicking, arms flailing, throwing anything in his reach, crying, yelling, etc... It was a total venting meltdown. He's 6, and what I've asked of him to do in the last year would be hard for a mature grown up. He doesn't have the skills to properly voice his thoughts, feelings and/or objections to his treatment. Poor kid. I let him punch pillows, but I'm not sure if that's such a good thing. He throws his tester when he's done testing - I know that's not a good thing.<br /><br />I got to have a meltdown, too. After his episode in school, I was leaving (after having to just restrain my son to insert his site.) I was strong the whole time, until I saw a look on one of the teacher's faces. In one glance, she conveyed how sorry she was for what Jimmy was going through. It was all I needed, and burst out sobbing as I was leaving the building to go to the parking lot. You know that full blown ugly sob - the kind where where your shoulders go up and down and you need tissues for more than your eyes... I think the angels were at work. The bus driver came to my rescue - he's a kind man who I know as more than the bus driver - he's the secretary's husband and a friend of my husband's - who simply came over and asked if there was anything he could do or was there someone he could get to help me. I couldn't control myself, and somehow I wasn't even remotely embarrassed to be crying in front of him! He made sure I turned on the car to put the air conditioning on (it hadn't even <span id="SPELLING_ERROR_16" class="blsp-spelling-corrected">occurred</span> tome to turn it on!) and saw to it that I was calmed down before I drove. It was a long time coming that I allowed myself to let it all out, and days before Camp <span id="SPELLING_ERROR_17" class="blsp-spelling-error">Nejeda</span>. Quite timely, I think.<br /><br />I have a call in to the Molly Center to find out about counseling or group meetings for him... they're going to think I'm crazy because he's a seemingly perfectly happy, adjusted, normal, enthusiastic, life loving kind of kid. He just has these meltdowns and fits of 6 year old tantrums associated with his diabetes care.<br /><br />My new approach is to ask, "What would Blaze do?" Blaze was his counselor at Camp <span id="SPELLING_ERROR_18" class="blsp-spelling-error">Nejeda</span>. He was a great role model for Jimmy, as were all the counselors! He never complained once about testing. Not once. It was a non issue - it was what everyone did! I hope that Camp will be a place for Jimmy to not have diabetes be an issue in the future. His care was NEVER an issue while we were there.<br /><br /><br /><span style="FONT-WEIGHT: bold;font-size:180%;" >JIMMY THE READER!!! </span><br /><br /><br /><br /><br /><p class="MsoNormal">I don’t know how his teacher did it, but Jimmy is READING!!!!!<span style="font-size:0;"> </span>His teacher had such an amazing effect on him this year!<span style="font-size:0;"> </span>He went from only knowing how to write his name in September to being a full-fledged sounder-outer!!!!!<span style="font-size:0;"> </span>I’m so proud of my boy!<span style="font-size:0;"> </span>His report card was great, and thanks to the clock on his pump, he's even telling time! I recently told him that we would be going somewhere at 3pm, and that it would be in about an hour. In response, he told me that we would not be leaving in an hour, that we would actually be leaving in 1 hour and 4 minutes (I was flabbergasted that the time he said that, that it was 1:56!!! One hour and 4 minutes indeed!!! Believe it or not, the pump has helped Jimmy with numbers and time. He can read numbers into the hundreds - "Mom, I'm a 159, isn't that 9 points too high?" or, "Mom, I'm 227, I <span id="SPELLING_ERROR_19" class="blsp-spelling-error">bolused</span> already!!" He likes to be in charge of his pump and meter, so his numbers (and time telling) really benefited!!!!</p><br /><br /><p class="MsoNormal">As for reading, we signed up for the summer reading program at our town library, and he’s now begging us to read together regularly!<span style="font-size:0;"> </span>(Of course, there are the bribes, uh, er, I mean incentives that come along with the summer reading program, but hey – whatever works!!!)<span style="font-size:0;"> </span><br /><br />More next time...<br />Peace,<br />June<br /></p>Jimmy's Momhttp://www.blogger.com/profile/11045751635491136842noreply@blogger.com0tag:blogger.com,1999:blog-795228517597763767.post-40203093680315209742011-06-12T19:35:00.005-04:002011-06-12T21:51:15.029-04:00my heart breaks for him<strong><span style="color:#000099;">Jimmy cried in pain twice tonight... </span></strong><br /><strong><span style="color:#000099;"></span></strong><br /><strong><span style="color:#000099;">I remember the time when Jenna woke up on the day of her 7<span id="SPELLING_ERROR_0" class="blsp-spelling-error">th</span> birthday party -- throwing up. She had a bad stomach bug, and I broke the news to her that she wouldn't be able to have her birthday party that day, that we would need to postpone it. To her, I was the WORST mother in the world. She's the most respectful, loving, wonderful daughter (most of the time, <span id="SPELLING_ERROR_1" class="blsp-spelling-error">lol</span>), but that moment when I told her, she turned into a monster who hit me, told me she hated me, screamed, cried, threw herself on the ground - I took it all. I let her do it. This was the worst thing that had ever happened to her, and according to her, it was me that canceled it. I let her vent, calmed her down, and then cried for an hour myself. I felt terrible for her. I felt terrible doing it to her - the canceling of the party... I know it wasn't me, but I just feel responsible for anything bad that happens to my children.</span></strong><br /><strong><span style="color:#000099;"></span></strong><br /><strong><span style="color:#000099;">So, I just finished crying. The poor kid had to get a new pump site as well as a new sensor site. </span></strong><br /><strong><span style="color:#000099;"></span></strong><br /><strong><span style="color:#000099;">To start, Jimmy had a choice tonight -- a new site in either his belly, or hip (which still hasn't happened yet). He chose his leg - which was not an option. So, I caved and said the leg site was fine, as long as he ripped off the old site (which he HATES doing.) In the end, he chose his belly (I'll rip the site off when he's asleep.)</span></strong><br /><strong><span style="color:#000099;"></span></strong><br /><strong><span style="color:#000099;">So, the belly it was. He has to prep himself, and say no, and run away, and come back and suck his stomach in, and put <span id="SPELLING_ERROR_2" class="blsp-spelling-error">bluey</span> on it (his blanket - see a much earlier post about <span id="SPELLING_ERROR_3" class="blsp-spelling-error">bluey</span>), and roll on the floor, and breathe in and out five hundred times, and I finally got him to sit still for 3 seconds and told him on 1 I would do it. I knew he would bolt, so I said 3, 2... And I did it before 1.</span></strong><br /><strong><span style="color:#000099;"></span></strong><br /><strong><span style="color:#000099;">I'm the worst mother in the world. He screamed and cried and carried on for 15 minutes that I tricked him and that it hurt, and itched, and burned, etc... </span></strong><br /><strong><span style="color:#000099;"></span></strong><br /><strong><span style="color:#000099;">Just like I took it when Jenna gave it to me, I took it this time, too. </span></strong><br /><strong><span style="color:#000099;"></span></strong><br /><strong><span style="color:#000099;">Jenna's only done that once. Jimmy does it upon occasion when I insert a new pump site, and 1 in 3 times I insert a new sensor site. (sigh) He does it every so often for Jim, but at least then he comes running to me... My heart breaks regularly for my little boy. I can take it, but I just want him to grow up feeling this is his normal. I don't want him to feel different, or burdened, or stressed about it. I want him to know that this IS his normal.</span></strong><br /><strong><span style="color:#000099;"></span></strong><br /><strong><span style="color:#000099;">He played Little League this season (maybe the tallest in the league, short of another tall boy on his team.) His first season!! How exciting it was!!! T-Ball might be the cutest thing ever (and I thought Kindergarten Softball was cute!!!) When Jimmy was up to bat, a father in the stands said loudly, "Oh no, they're gonna have to back up the players, this kid's a MONSTER!" I didn't know whether to take it as a compliment or to hide behind the bleachers. With his size and our block's consistency in impromptu <span id="SPELLING_ERROR_4" class="blsp-spelling-error">whiffle</span> ball games in which Jimmy holds his own against kids older than him, he is able to whack the crap out of the ball (pardon my french). So, back to little league... after the dad in the stands informs the coach that the "monster" is up, the infield backs up, and Jimmy proceeds to hit the ball over their heads to just before the lip of the outfield. He proudly declared it a <span id="SPELLING_ERROR_5" class="blsp-spelling-corrected">home run</span>, even though every kid just hits and runs to 1st base. He feels great about playing, and I'm so happy for him.</span></strong><br /><strong><span style="color:#000099;"></span></strong><br /><strong><span style="color:#000099;">So, he makes it to 1st base in one game, and the coach from the other team (all the coaches coach on the field) says to Jimmy, "So, what do you have there, a BEEPER or something????" (Jimmy ALWAYS wears his shirts <span id="SPELLING_ERROR_6" class="blsp-spelling-error">un-tucked</span>, until he began T-Ball this year, you see, baseball players tuck <span id="SPELLING_ERROR_7" class="blsp-spelling-corrected">their</span> shirts in... So, since Jimmy clips his pump (which he's named "<span id="SPELLING_ERROR_8" class="blsp-spelling-error">Jeter</span>") on his waist band, everyone can see it. Now, Jimmy is totally used to it at this point and it's not an issue. So, he looks to me on the sidelines (I heard the comment from the coach) and I said to him (and I really felt badly), "It's his insulin pump." He said he was sorry, and visibly felt terrible and apologized, but I believe this may have been his first time that Jimmy knew that an insulin pump may not be the norm.</span></strong><br /><strong><span style="color:#000099;"></span></strong><br /><strong><span style="color:#000099;">I said it earlier, I don't want him to feel badly, burdened or stressed about having diabetes. I don't want him to feel different.</span></strong><br /><strong><span style="color:#000099;"></span></strong><br /><strong><span style="color:#000099;">My little boy. My sweet, little boy. He's so perfect and precious and such a "regular kid" in every way. But, there's this thing called diabetes that prevents him from being "regular." It's my job to make sure he can answer the question about what his pump is with confidence. I hope he can answer the question about his pump, "Hey is that a beeper?" when asked with complete confidence - as if it's such a normal thing and that it's SO not out of the ordinary.</span></strong><br /><strong><span style="color:#000099;"></span></strong><br /><strong><span style="color:#000099;">Or, do I sew pockets into every piece of clothing he owns so he can hide it and <span id="SPELLING_ERROR_9" class="blsp-spelling-corrected">no one</span> knows?</span></strong><br /><strong><span style="color:#000099;"></span></strong><br /><strong><span style="color:#000099;">To be continued...</span></strong><br /><strong><span style="color:#000099;"></span></strong><br /><strong><span style="color:#000099;">Peace,</span></strong><br /><strong><span style="color:#000099;">June</span></strong><br /><strong><span style="color:#000099;">p.s. Jimmy's baseball picture came out so stinkin' cute - will scan and post as soon as I can...</span></strong><br /><strong><span style="color:#000099;">p.p.s. The sensor site was just as ugly tonight. I wish I could take all his pain away.</span></strong>Jimmy's Momhttp://www.blogger.com/profile/11045751635491136842noreply@blogger.com0tag:blogger.com,1999:blog-795228517597763767.post-22053286748765660412011-05-20T20:19:00.008-04:002011-05-20T21:22:47.403-04:00Nomination for Sibling of the Year!!!!!<span style="color: rgb(0, 0, 102);">A nomination for <span class="blsp-spelling-error" id="SPELLING_ERROR_0">JDRF</span> Sibling of the Year for Jenna!!!!</span><br /><span style="color: rgb(0, 0, 102);">Here's what we submitted...</span><br /><br /><br /><span style="color: rgb(0, 0, 102);">As I’m filling out this nomination for my daughter Jenna, she and her brother, Jimmy, are playing basketball out in the driveway. It was Jenna’s idea to take him out there so he could get his exercise. She loves him so much and is so very instrumental in his care. Here’s why I believe Jenna <span class="blsp-spelling-error" id="SPELLING_ERROR_1">Karpowich</span> should be named Sibling of the Year…</span><br /><br /><span style="color: rgb(0, 0, 102);">I've often referred to Jenna as, "Jimmy's Other Mother". She was 5 when he was born, so she was right by my side for all that needed to be done. From the minute he was born - bottles, diapers, outfits, kisses, books, etc... You name it, she was there! She helped him learn to walk, learn his colors, numbers & letters, taught him how to write his name, how to play hide and seek, and even helped him learn how to swim! Jenna and I even studied the art of giving a successful "time out" together so that when Jimmy needed one, he would get one. Super Nanny was instrumental in that department. Jimmy is tough - or is it strong willed - or stubborn - I think I actually need a word that combines all 3 of those. It took us MONTHS in order to get Jimmy to stay on a time out for the appropriate number of minutes. If you've ever seen the show, you know where the kids BOLT off the "naughty spot" and it takes the parents close to an hour to get the kid the complete the time??? It took double that sometimes. They can be the best of buddies sometimes, and then I'll hear her say, "Jimmy, please find something else to do or you will get a time out!!!! ONE........................ TWO......................." And then you'll hear him say, "OK, I'll stop!!!" She goes back and forth between being a sister and mothering him. They make a pretty good team together! Sometimes, she can get him to do things I can't get him to do... One day, for example, my 18-year-old niece (who’s brother also has Type 1) came over to do a project for her HS class. Her assignment was to research a childhood disease and tell the class about it. So, for part of her project, she wanted to present how Jimmy takes his insulin with the pump vs. how her own diabetic brother takes insulin with shots. Her plan was to videotape them both and incorporate the videos into her project. One problem: Jimmy was refusing to be video taped. He was being - <span class="blsp-spelling-error" id="SPELLING_ERROR_2">ummm</span> – well - still looking for that combination word for how he gets - let's just say he was being, JIMMY!!! Here came Jenna to the rescue. She said, "Hey Jimmy, let's make funny faces in to the video and watch ourselves!" And that was it. He snapped out of JIMMY mode and they had 2 minutes of fun with the camera and then they were able to get the my niece’s project done! He wasn't in a perfect mood, but - Jenna got him to do what my niece and I couldn't do!!! The video was done - he got through it, and it was all thanks to Jenna!!!!!!!!!!!!!!!!!!! She is an amazing sibling.</span><br /><br /><span style="color: rgb(0, 0, 102);">Jenna helps with Jimmy so very much - before the pump, she was even able to give him his insulin shots - at 10 years old! Now, she's 11 and helps so much with his pump. She tests him, and she's even learned how to count Jimmy's <span class="blsp-spelling-error" id="SPELLING_ERROR_3">carbs</span>. She has attended every Molly Diabetes Education Center class, every support group, read every children’s book on the subject, visited Jimmy’s class to teach them about Jimmy’s pump, gone to every doctor appointment with him, and more! Learning how to manage some of his other diabetes "stuff" is where she is currently focusing her attention. She is a Girl Scout Junior, and for their group project, she and her troop took on a Diabetes Awareness Theme to earn their Bronze Award. Here’s how it all started.</span><br /><br /><span style="color: rgb(0, 0, 102);">This past summer, Jenna, Jimmy and 3 friends decided to have a lemonade stand. Jenna convinced them to ask their customers to make a donation to <span class="blsp-spelling-error" id="SPELLING_ERROR_4">JDRF</span> as well. Just about all of them did, and that’s how Jenna’s Bronze Award idea began! Here’s the picture of their “Stand”<span class="blsp-spelling-error" id="SPELLING_ERROR_5">ing</span> up to Diabetes Lemonade Stand that made the newspaper! Jenna is on the right in blue and black, and Jimmy is in the middle.</span><br /><br /><a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" style="color: rgb(0, 0, 102);" href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgQiotizijOA7UGpg_jv87q__slkipDyp3LEK_q7KKkbVJnHxkG2N24Pc0M2sDJptSqr3pbpONrKqc4UtrGu_7F0AUtYAxvYZC6VWX-6ko1YBfyTFr3a-HbdyxPwf7JHP6z4KvmB1pRhFA/s1600/lemonade.jpg"><img style="margin: 0px auto 10px; display: block; text-align: center; cursor: pointer; width: 200px; height: 200px;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgQiotizijOA7UGpg_jv87q__slkipDyp3LEK_q7KKkbVJnHxkG2N24Pc0M2sDJptSqr3pbpONrKqc4UtrGu_7F0AUtYAxvYZC6VWX-6ko1YBfyTFr3a-HbdyxPwf7JHP6z4KvmB1pRhFA/s200/lemonade.jpg" alt="" id="BLOGGER_PHOTO_ID_5608971343783947074" border="0" /></a><br /><span style="color: rgb(0, 0, 102);">That’s what led to Jenna’s idea for Girl Scouts…</span><br /><br /><span style="color: rgb(0, 0, 102);">As a Girl Scout Junior this year, her troop was to complete a community project to earn their Junior "bronze" Award.</span><br /><br /><span style="color: rgb(0, 0, 102);">The idea Jenna and her troop originally wanted to do was raise more money for Juvenile Diabetes. Unfortunately, the Girl Scout’s has a policy the scouts are not allowed to raise money for anything other than the Girl Scouts. So… Jenna and the troop decided to turn it into a “Diabetes Awareness” Bronze Award project.</span><br /><br /><span style="color: rgb(0, 0, 102);">October 10<span class="blsp-spelling-error" id="SPELLING_ERROR_6">th</span> was River Edge Day. The girls contacted <span class="blsp-spelling-error" id="SPELLING_ERROR_7">JDRF</span> to get some handouts and buttons they could hand out. They also purchased pumpkins and paint for children to paint at their table. Kids came, painted a pumpkin, learned about diabetes and took home some <span class="blsp-spelling-error" id="SPELLING_ERROR_8">JDRF</span> goodies! Jenna was becoming an expert on the subject and telling everyone who came to the table all about diabetes!</span><br /><br /><span style="color: rgb(0, 0, 102);">Later in October, they had to make a Scarecrow for Halloween with the Girl Scouts. Just what was Jenna and her troop’s theme? A Scarecrow standing on his head to help Turn Diabetes Upside Down!!! They named their scarecrow: “J.D. Crow!” Here’s a rap-song they wrote and performed for the Scarecrow judges:</span><br /><br /><span style="color: rgb(0, 0, 102);">Turn Diabetes Upside Down With J.D. Crow and Troop 1416</span><br /><br /><span style="color: rgb(0, 0, 102);">I’m J.D. Crow and I’m here to say hello</span><br /><br /><span style="color: rgb(0, 0, 102);">here’s one thing that I want you to know</span><br /><br /><span style="color: rgb(0, 0, 102);">Juvenile Diabetes is what the J.D. stands for</span><br /><br /><span style="color: rgb(0, 0, 102);">Let’s kick this disease out the back door!</span><br /><br /><span style="color: rgb(0, 0, 102);">I’m standing on my head -- I’m upside down</span><br /><br /><span style="color: rgb(0, 0, 102);">Let’s turn J.D. around and get it out of town!</span><br /><br /><span style="color: rgb(0, 0, 102);">It’s Diabetes I want to scare</span><br /><br /><span style="color: rgb(0, 0, 102);">So I’m here to help make you aware</span><br /><br /><span style="color: rgb(0, 0, 102);">We’ll turn Diabetes Upside Down and Find a cure</span><br /><br /><span style="color: rgb(0, 0, 102);">Troop 1416 is doing our part you can be sure!</span><br /><br /><span style="color: rgb(0, 0, 102);">Turn Diabetes Upside Down with J.D. Crow and Troop 1416!</span><br /><br /><span style="color: rgb(0, 0, 102);">Here are the pictures from the day. Jenna is standing next to J.D. Crow! You can also see the sign they painted for the big day!</span><br /><a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" style="color: rgb(0, 0, 102);" href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhfLag9rAA9XZh_vDIYKVqx3x7zWYbgShm-gWNQkmi3ugHsJSxtZGlK_8MCDzNdcHtCUcWiUvqMN11SmQVeVeeUCQbKKvy7rrdP6zj8CqQqr65AHhhriXZRLxTU0XsZ-ELNY9dl0UK6fjk/s1600/scarecrow+final.jpg"><img style="margin: 0px auto 10px; display: block; text-align: center; cursor: pointer; width: 98px; height: 200px;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhfLag9rAA9XZh_vDIYKVqx3x7zWYbgShm-gWNQkmi3ugHsJSxtZGlK_8MCDzNdcHtCUcWiUvqMN11SmQVeVeeUCQbKKvy7rrdP6zj8CqQqr65AHhhriXZRLxTU0XsZ-ELNY9dl0UK6fjk/s200/scarecrow+final.jpg" alt="" id="BLOGGER_PHOTO_ID_5608971948203345794" border="0" /></a><a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" style="color: rgb(0, 0, 102);" href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhCRj5VzbRETrhWR0YBrgewqf04LLAkRekk1iBYSI-M6px-7raDc-DUALXNtCVQKEM7lHli1EJRYdT1_BC78_OhMBYEeULn1sW1V2XYk9rgzW8zpot9aQ_id6zlVa9AutmgN6RSkr0kmcg/s1600/scarecrow+sign.jpg"><img style="margin: 0px auto 10px; display: block; text-align: center; cursor: pointer; width: 200px; height: 180px;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhCRj5VzbRETrhWR0YBrgewqf04LLAkRekk1iBYSI-M6px-7raDc-DUALXNtCVQKEM7lHli1EJRYdT1_BC78_OhMBYEeULn1sW1V2XYk9rgzW8zpot9aQ_id6zlVa9AutmgN6RSkr0kmcg/s200/scarecrow+sign.jpg" alt="" id="BLOGGER_PHOTO_ID_5608972444748604642" border="0" /></a><br /><br /><span style="color: rgb(0, 0, 102);">Finally, Jenna wrote a play to perform with her troop for a Diabetes Awareness Presentation to younger Girl Scout Troops in April. The play was about accepting people no matter what similarities or differences they might have. In the play, other girls were treating a girl with diabetes unfairly. The play taught the lesson that no matter who you are and no matter what you have (or don’t have), everyone has the right to be treated fairly. Diabetes <span class="blsp-spelling-error" id="SPELLING_ERROR_9">doesn</span>’t mean you’re different – it just means you’re unique – just like everyone else.</span><br /><br /><span style="color: rgb(0, 0, 102);">I believe I hit the jackpot with my children! Jimmy has stepped up and accepted the challenge of the pump and the <span class="blsp-spelling-error" id="SPELLING_ERROR_10">CGM</span> System, and Jenna has risen to the challenge of pushing herself to learn how to take care of a diabetic. She does it all right along with us, and of her efforts, I <span class="blsp-spelling-error" id="SPELLING_ERROR_11">couldn</span>’t be more proud. I am so honored to be the mother of two extremely special individuals. Jimmy is a one of a kind trooper, and Jenna is an exceptional sibling.</span><br /><br /><div style="text-align: center; color: rgb(0, 0, 102);">Please consider Jenna <span class="blsp-spelling-error" id="SPELLING_ERROR_12">Karpowich</span><br /><br />for the honor of Sibling of the Year.<br /><br />Thank you from the bottom of my heart.<br /><br />June <span class="blsp-spelling-error" id="SPELLING_ERROR_13">Karpowich</span></div>Jimmy's Momhttp://www.blogger.com/profile/11045751635491136842noreply@blogger.com0tag:blogger.com,1999:blog-795228517597763767.post-13987948520200320902011-05-19T22:28:00.004-04:002011-05-20T21:46:38.111-04:00infection...<style>body{overflow:auto;width:100%;height:100%;margin:0px;padding:0px;}#cg_msg_content{margin:0px 10px 10px 10px;}#inline_attachments{margin:0px 10px 10px 10px;}.headerSubjectLine,.headerSender,.headerRss{display:inline-block;margin-right:2px;}.headerSubjectLine{margin-top:0px;margin-bottom:2px;line-height:20px;}.headerSender{cursor:pointer;float:left;}.messageHeaderDiv{position:relative;top:0px;left:0px;cursor:text;margin:0px 0px 0px 0px;padding:10px 10px 0px 10px;}.msgHeaderContainer td{vertical-align:top;}.headerSubjectLine span.cgSelectable-over{text-decoration:underline;}.headerSender span.cgSelectable{vertical-align:top;}.headerSender span.cgSelectable-over{text-decoration:underline;}.msgHeaderLink{cursor:pointer;margin-left: 10px;margin-right: 20px;-moz-user-select:none;}.headerControl{cursor:pointer;}.headerRecipientLabel,.headerCCLabel{float:right;margin-left:15px;padding-right:5px;}.messageHeaderDivider{color:transparent;background-color:transparent;height:1px;clear:both;margin:10px 0px 10px 0px;border-bottom-style:none !important;border-left-style:none !important;border-right-style:none !important;}.certMailBanner{background-color: #D7EFFD;border-bottom:1px solid #6B98B2;}.certMailBannerIcon {width:25px; 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font-size: 13px; line-height: 17px;}.fontLink{color: rgb(0, 129, 194);}.textLink {cursor: pointer}</style><div id="tabMessageViewerBody_headeri226_2271305858472132"><div id="10_messageHeaderDiv" class="messageHeaderDiv colorWhite fontT2 fontMedGray"><div class="posRel"><div style="width: 100%;"><br /></div></div></div></div><div id="cg_msg_content"><div style="font-family: garamond,new york,times,serif; font-size: 18pt;"><div style="font-family: garamond,new york,times,serif; font-size: 18pt;"><div style="font-family: garamond,new york,times,serif; font-size: 18pt;"><div style="font-family: garamond,new york,times,serif; color: rgb(0, 0, 0); font-size: 18pt;"><div>Worried sick about Jimmy.</div> <div>The site on his arm where Jimmy had his "sensor" became pretty infected <span style="border-bottom: 2px dotted rgb(54, 99, 136); background: transparent none repeat scroll 0% 0%; cursor: pointer; -moz-background-clip: border; -moz-background-origin: padding; -moz-background-inline-policy: continuous;" class="yshortcuts" id="lw_1305858474_0">Tuesday morning</span>... and it got worse yesterday... and it's bigger in surface area today, but not as red or hot or painful (medicine's probably working, but it shouldn't be getting bigger.) They did a swab of it to culture it for anything... It came back as "strep" which was <span class="blsp-spelling-error" id="SPELLING_ERROR_0">suprising</span> to me (thought that was only in throats.) Worst case scenario is IV antibiotics - say a prayer that it doesn't come to that...</div> <div> </div> <div>It started Tuesday morning when Jimmy told me his arm hurt, and I just thought it was his usual complaint that it was uncomfortable. It didn't occur to me to look at the site since he complains regularly about it. <span style="border-bottom: 2px dotted rgb(54, 99, 136); cursor: pointer;" class="yshortcuts" id="lw_1305858474_1">Monday morning</span> is when it should have been changed, but that's a whole separate story... in a nutshell, it wasn't changed when it should have been and although it's not the norm for a site to become infected so quickly, this is Jimmy (and let's face it, me) we're dealing with... He also said his head hurt when he coughed and he was kind of not himself Tuesday morning... I chalked it up to possibly having allergies... No fever, no <span class="yshortcuts" id="lw_1305858474_2">sore throat</span>.</div> <div> </div> <div>So, I dropped him off at school as usual and called his nurse to alert her that he wasn't himself when, while I was on the phone, he appeared in her office asking for an icepack for his arm...</div> <div> </div> <div>She looked at it, and told me to come to her office right away. It was swollen, red, hot to the touch, and when we took the site out, puss came out. I'm a terrible mother. I didn't even look at it. I failed him and I've put myself through the equivalent of writing, "I will not ignore my son if he says his site hurts" one thousand times on the chalk board. Needless to say, my principal told me to do whatever I needed to do. She's awesome... So, at the doctor, they "swabbed" to get a culture. I stupidly asked what they were checking for and he said that they just wanted to rule everything out. Even more stupidly, I asked what specifically he wanted to rule out. "Things like staff, <span class="blsp-spelling-error" id="SPELLING_ERROR_1">mrsa</span>..." was the answer.</div> <div> </div> <div>WHAT??? </div> <div> </div> <div><span class="yshortcuts" id="lw_1305858474_3">Imagination</span> combined with nerves is a very bad thing. He had to talk me down from the ceiling and I was able to relax and know that it wasn't either, BUT in the slim possibility that it WAS either, he was putting Jimmy on a broad spectrum heavy duty antibiotic. So, <span class="yshortcuts" id="lw_1305858474_4">warm compresses</span>, <span class="blsp-spelling-error" id="SPELLING_ERROR_2">bacitracin</span>, antibiotic and he'll be fine.</div> <div> </div> <div>Unfortunately, the infection site grew steadily throughout the course of the day. I traced the original red spot at about 11 a.m. It grew at least twice the size by nightfall. We traced the outline of the redness at about <span style="border-bottom: 2px dotted rgb(54, 99, 136); cursor: pointer;" class="yshortcuts" id="lw_1305858474_5">11 pm</span>, and by morning it grew to near his elbow.</div> <div> </div> <div>Jim stayed home with him yesterday, and brought him to the doctor again (because it was getting bigger and not <span class="blsp-spelling-error" id="SPELLING_ERROR_3">receeding</span>). They put <span class="blsp-spelling-error" id="SPELLING_ERROR_4">himi</span> on a 2<span class="blsp-spelling-error" id="SPELLING_ERROR_5">nd</span> antibiotic which would take care of "staff" if in fact that's what it was. (We still didn't have the results of the culture they took <span style="border-bottom: 2px dotted rgb(54, 99, 136); cursor: pointer;" class="yshortcuts" id="lw_1305858474_6">on Tuesday</span>.)</div> <div> </div> <div>In the meantime, on Tuesday, he was put on <span class="blsp-spelling-error" id="SPELLING_ERROR_6">claritin</span> for allergies and had a loose tooth (the front one of course) pulled due to the fact that it had a dead spot on it (from the time he fell down the steps when he was 3 and knocked it a bit crooked.) We didn't notice the dark spot until it became loose recently, since it was on the back of it. Dr. <span class="blsp-spelling-error" id="SPELLING_ERROR_7">Mischel</span> (my dentist since I've had teeth) made the decision to pull it - to make sure it came out in one piece and wasn't broken up... and he used what looked like ACTUAL PLIERS!!! Thank God Jimmy is extremely light sensitive and closes his eyes whenever he's in the dentist chair - he never saw the pliers.</div> <div> </div> <div>So, between the arm pain, the puss, the probing swab culture, the antibiotics, the allergy medicine, the pulled tooth and the hovering mother, this poor kid has been through the ringer. </div> <div> </div> <div>My husband cried at the doctor's office yesterday. The pediatrician put his arm around him - he felt so badly, too (same doctor who diagnosed Jimmy with <span class="yshortcuts" id="lw_1305858474_7">diabetes</span> and cried right along with me at the time). Jim wants to know what this little boy has done to deserve this. It's not fair and it's down right infuriating. </div> <div> </div> <div>So, back to the <span class="blsp-spelling-error" id="SPELLING_ERROR_8">dr</span>. today, and a new outline of the latest size... The doctor is happy that it's less red, hurts less, not as hot, has no fever - and although it's getting bigger in area, the other things are more significant in hinting toward it might be healing...</div> <div> </div> <div>You can see in the picture that we outlined the area where it started (the smallest outline.) Last night's outline is the dotted line. This morning's outline is the darkest outermost line.</div> <div> </div> <div>My poor little guy. My heart breaks for him!</div> <div>On a happier note, I just took a goofy picture of him so you can see his missing front tooth! He's so <span class="blsp-spelling-error" id="SPELLING_ERROR_9">stinkin</span> cute I can't get over it! </div> <div>I'll keep you posted...</div> <div>Love,</div> <div>June</div> <div> </div></div></div></div></div><span id="lw_beacon_1305858475116"></span></div><div id="inline_attachments"><hr class="messageHeaderDivider colorK2" noshade="noshade"><div style="margin: 15px; font-family: tahoma,helvetica,arial,sans-serif; font-size: 12px;"><br /><b class="thumbnailsTitle">2 Images</b> | <span onmouseover="this.className='textLink textLink-over'" onmouseout="this.className='textLink'" onclick="window.parent._cmd('attachdownload:start_slides', event, window);window.parent.Evt.cancel();return false;" class="textLink" href="http://us.mg5.mail.yahoo.com/dc/blank.html?bn=567&.intl=us&.lang=en-US#">View <span class="blsp-spelling-error" id="SPELLING_ERROR_10">Slideshow</span></span> | <span onmouseover="this.className='textLink textLink-over'" onmouseout="this.className='textLink'" onclick="window.parent._cmd('attachdownload:dlthumbs', event, window, ['1_23506_AJdXimIAAYWgTcLy1wQ14gdwxBc','Sent','3']);window.parent.Evt.cancel();return false;" class="textLink" href="http://us.mg5.mail.yahoo.com/dc/blank.html?bn=567&.intl=us&.lang=en-US#">Download Selected</span> | <span onmouseover="this.className='textLink textLink-over'" onmouseout="this.className='textLink'" onclick="window.parent._cmd('attachdownload:scan', event, window, ['1_23506_AJdXimIAAYWgTcLy1wQ14gdwxBc','Sent']);window.parent.Evt.cancel();return false;" class="textLink">Download All</span><br /><br /><table class="thumbnailsTable colorC4 colorK3"><tbody><tr><td class="thumbnailContainer"><a onclick="window.parent._cmd('attachdownload:start_slides', event, window, [this]); return false;" class="thumbnailBox" href="http://us.mg5.mail.yahoo.com/ya/download?fid=Sent&mid=1_23506_AJdXimIAAYWgTcLy1wQ14gdwxBc&pid=2&tnef=&YY=1305858475113&newid=1&clean=0&inline=1" rel="lightbox[1_23506_AJdXimIAAYWgTcLy1wQ14gdwxBc]" title="arm.jpg" target="_blank" border="0"><img class="thumbnailImg" src="http://thumbp10-ne1.thumb.mail.yahoo.com/tn?sid=600579248&mid=AJdXimIAAYWgTcLy1wQ14gdwxBc&midoffset=1_23506&partid=2&f=1257&fid=Sent" title="View arm.jpg" border="0" /></a></td><td class="thumbnailContainer"><a onclick="window.parent._cmd('attachdownload:start_slides', event, window, [this]); return false;" class="thumbnailBox" href="http://us.mg5.mail.yahoo.com/ya/download?fid=Sent&mid=1_23506_AJdXimIAAYWgTcLy1wQ14gdwxBc&pid=3&tnef=&YY=1305858475113&newid=1&clean=0&inline=1" rel="lightbox[1_23506_AJdXimIAAYWgTcLy1wQ14gdwxBc]" title="tooth.jpg" target="_blank" border="0"><img class="thumbnailImg" src="http://thumbp10-ne1.thumb.mail.yahoo.com/tn?sid=600579248&mid=AJdXimIAAYWgTcLy1wQ14gdwxBc&midoffset=1_23506&partid=3&f=1257&fid=Sent" title="View tooth.jpg" border="0" /></a></td><td style="width: 205px;"><br /></td></tr><tr><td class="thumbnailLink"><input id="thumbnail_0" value="2" type="checkbox"> <span onclick="window.parent._cmd('attachdownload:open', event, window, ['Sent','1_23506_AJdXimIAAYWgTcLy1wQ14gdwxBc','2',null,'arm.jpg','image','jpeg']);window.parent.Evt.cancel();return false;" onmouseover="this.className='textLink textLink-over'" onmouseout="this.className='textLink'" class="textLink" href="http://us.mg5.mail.yahoo.com/dc/blank.html?bn=567&.intl=us&.lang=en-US#">arm.<span class="blsp-spelling-error" id="SPELLING_ERROR_11">jpg</span></span><br /><span class="fontMedGray">(196KB)</span></td><td class="thumbnailLink"><input id="thumbnail_1" value="3" type="checkbox"> <span onclick="window.parent._cmd('attachdownload:open', event, window, ['Sent','1_23506_AJdXimIAAYWgTcLy1wQ14gdwxBc','3',null,'tooth.jpg','image','jpeg']);window.parent.Evt.cancel();return false;" onmouseover="this.className='textLink textLink-over'" onmouseout="this.className='textLink'" class="textLink" href="http://us.mg5.mail.yahoo.com/dc/blank.html?bn=567&.intl=us&.lang=en-US#">tooth.<span class="blsp-spelling-error" id="SPELLING_ERROR_12">jpg</span></span><br /><span class="fontMedGray">(128KB)</span></td><td style="width: 205px;"><br /></td></tr></tbody></table><br /><br /><span style="font-size:130%;">UPDATE!!! Infection took 4 days before it began to recede... but it's all better! So relieved that <span class="blsp-spelling-error" id="SPELLING_ERROR_13">it's</span> over for now... Rachel at the Molly center says that she's NEVER seen an infection from the sensor - only skin irritation. Our stupid luck that Jimmy is her first case. If there are 100 children traipsing down the steps, Jimmy will be the one to fall down and knock a tooth loose. If there 25 kids in the outfield practicing how to swing a bat, Jimmy is the one who gets hit in the head with the bat requiring a trip to the ER. If there are 5,000 people going up the escalator every hour, then Jimmy is of course the one who, when the escalator stops is the one who requires 6 stitches on his shin where the shin met the teeth of the escalator steps... All of these actually happened... At this point, we're not only used to it -- we actually expect it. But, he always has a way of finding the silver lining and coming out on top. He's an amazing boy, and my world is enriched with him in it each and every day!!!<br /><br />I love you Jimmy!<br />Peace,<br />Mommy </span><br /></div></div><div style="top: -5000px; left: -5000px; position: absolute; visibility: hidden;" class="module overlay yui-module yui-overlay hide-scrollbars yui-overlay-hidden" id="lwPreview"><div class="hd"></div><div class="bd"></div><div class="ft"></div></div><iframe tabindex="-1" style="border: medium none ; margin: 0pt; padding: 0pt; opacity: 0; position: absolute; display: none; width: 12px; height: 6px; left: -5003px; top: -5003px; z-index: 9999;"></iframe>Jimmy's Momhttp://www.blogger.com/profile/11045751635491136842noreply@blogger.com0tag:blogger.com,1999:blog-795228517597763767.post-82563890034865958412011-05-19T22:21:00.004-04:002011-05-20T20:08:13.859-04:00Sensor!!!<style>body{overflow:auto;width:100%;height:100%;margin:0px;padding:0px;}#cg_msg_content{margin:0px 10px 10px 10px;}#inline_attachments{margin:0px 10px 10px 10px;}.headerSubjectLine,.headerSender,.headerRss{display:inline-block;margin-right:2px;}.headerSubjectLine{margin-top:0px;margin-bottom:2px;line-height:20px;}.headerSender{cursor:pointer;float:left;}.messageHeaderDiv{position:relative;top:0px;left:0px;cursor:text;margin:0px 0px 0px 0px;padding:10px 10px 0px 10px;}.msgHeaderContainer td{vertical-align:top;}.headerSubjectLine span.cgSelectable-over{text-decoration:underline;}.headerSender span.cgSelectable{vertical-align:top;}.headerSender span.cgSelectable-over{text-decoration:underline;}.msgHeaderLink{cursor:pointer;margin-left: 10px;margin-right: 20px;-moz-user-select:none;}.headerControl{cursor:pointer;}.headerRecipientLabel,.headerCCLabel{float:right;margin-left:15px;padding-right:5px;}.messageHeaderDivider{color:transparent;background-color:transparent;height:1px;clear:both;margin:10px 0px 10px 0px;border-bottom-style:none !important;border-left-style:none !important;border-right-style:none !important;}.certMailBanner{background-color: #D7EFFD;border-bottom:1px solid #6B98B2;}.certMailBannerIcon {width:25px; 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YAHOO.Shortcuts.annotationSetID = "73612b7b7220209aefd2b826efbc0040"; </script> <style type="text/css"><!--DIV {margin:0px;}</style>Oh my goodness, where do I begin??? We started the sensor (CGM, or continuous glucose monitoring system) a few weeks ago. It's an awesome thing in that I can look at Jimmy's pump and I know about where Jimmy's Blood Glucose level is (or at least as of 15 minutes ago.) You see, a true Blood Glucose reading is done with the finger stick and his meter. The sensor sits just under his skin, and not directly in his blood. It's called interstitial fluid, and what it comes from the blood into the layer under the skin - or somehting like that... Here's a picture of a medtronic sensor...<br /><div style="color: rgb(0, 0, 0);font-family:garamond,new york,times,serif;font-size:18pt;"><span style="display: block;" id="formatbar_Buttons"><span onmouseover="ButtonHoverOn(this);" onmouseout="ButtonHoverOff(this);" onmouseup="addImage();" onmousedown="CheckFormatting(event);;ButtonMouseDown(this);" class=" on" style="display: block;" id="formatbar_Add_Image" title="Add Image"><img src="http://www.blogger.com/img/blank.gif" alt="Add Image" class="gl_photo" border="0" /></span></span><a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiqGKhhyLkR6XOU5ovkvKWh3_87Y46WuYrCr7Q0dpytREOemaCiYQMUoGhcsE-GLs76j3LsWh9hrYx69z4JAPpGvPtV7EAMTsHSxeGrfwox9Bivy-lvJMY_kngs7B3bF1pMoh64P-KxVwg/s1600/sensor.jpg"><img style="margin: 0px auto 10px; display: block; text-align: center; cursor: pointer; width: 150px; height: 105px;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiqGKhhyLkR6XOU5ovkvKWh3_87Y46WuYrCr7Q0dpytREOemaCiYQMUoGhcsE-GLs76j3LsWh9hrYx69z4JAPpGvPtV7EAMTsHSxeGrfwox9Bivy-lvJMY_kngs7B3bF1pMoh64P-KxVwg/s200/sensor.jpg" alt="" id="BLOGGER_PHOTO_ID_5608948170583504946" border="0" /></a>That's the "sensor" that looks like a horseshoe crab's "stinger". That's what sits underneath his skin. It's about 3/8 to 1/2 inch long, and actually, the needle is longer. Poor kid. My heart breaks on a continuous basis for him and what he has had to endure. I tried it myself, and although you can feel it (I've actually tried it twice), it doesn't really "hurt". But the sound of the click as it goes in is enough for your brain to tell you that it is going to hurt, which in turn really does make it hurt.... power of suggestion...<br />Here's what the sensor looks like when you're wearing it... keep in mind Jimmy doesn't wear it on his stomach as of yet... not enough meat there. He'll only wear it on the back of his arm - but here's what it looks like:<br /><a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiKoofoAHO96EeVM1QlKEB8TCSCKy3MGXArIRHH5pP-JHhyphenhyphenzKy4mq7eoP5tg-G8Nl7IbDcrXPGh3-hET-_5alXsDx2l5zPl_Wy3D3IZUyexNMUUwVRm_n_Bel5DFumPrQ7xd6HMJF4_3Ck/s1600/cgm.jpg"><img style="margin: 0px auto 10px; display: block; text-align: center; cursor: pointer; width: 200px; height: 185px;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiKoofoAHO96EeVM1QlKEB8TCSCKy3MGXArIRHH5pP-JHhyphenhyphenzKy4mq7eoP5tg-G8Nl7IbDcrXPGh3-hET-_5alXsDx2l5zPl_Wy3D3IZUyexNMUUwVRm_n_Bel5DFumPrQ7xd6HMJF4_3Ck/s200/cgm.jpg" alt="" id="BLOGGER_PHOTO_ID_5608952178854833282" border="0" /></a><br /><br />Here's a video of how to insert the GCM. http://www.youtube.com/watch?v=TdWZ9AC9CY0 It's a 12 minute video, but it actually takes us longer to insert... we're getting there...<br /><br /><br />Here's an email we sent to our sensor trainor nurse... She was wonderful! She's a medtronic nurse who works with one of our angels, Matt (Molly's brother). And, I think she might be an angel herself!! <br /><br /><span style="font-style: italic; color: rgb(0, 0, 102);">Hi! We're definitely hanging in there with the sensor!! We definitely see the benefits that it will give over the long run...</span><br /><br /><span style="font-style: italic; color: rgb(0, 0, 102);">A slight set back tonight... we fear that Jimmy may have "relocated" the insertion mechanism for the sensor... He's a good kid, but even in a deep sleep, he wakes up in pain just as I've inserted the sensor. He agrees that he likes knowing his number and if he's heading up or down with the arrows (and we like that, too) but he hates the insertion...</span><br /><br /><span style="font-style: italic; color: rgb(0, 0, 102);">So, the sensor is off for tonight (we've looked everywhere - when it's normally where we keep everything related to his care). We fully intend to get it up and running once it's located, but what if we can't find it - is there a back up insertion we can get?</span><br /><br /><span style="font-style: italic; color: rgb(0, 0, 102);">Also, I've uploaded his latest data to carelink - we had a decent day today (even in the 200's, but better than it's been. Maybe you can make more sense than we can...</span><span style="font-style: italic; color: rgb(0, 0, 102);"></span><span style="font-style: italic; color: rgb(0, 0, 102);"> I'm sure you can make sense of it... It's quite difficult to get the sensor, pump, carbs, exercise, allergies, and Jimmy all on the same page... any input you have would be greatly appreciated!</span><br /><br /><span style="font-style: italic; color: rgb(0, 0, 102);">Thanks so much for your call/email... </span><span style="font-style: italic; color: rgb(0, 0, 102);"> Pump is working great!!</span><br /><span style="font-style: italic; color: rgb(0, 0, 102);">Thanks so much in advance!</span><br /><span style="font-style: italic; color: rgb(0, 0, 102);">June</span><br /><br />More later,<br />Peace,<br />June<br /><div><br /></div> </div><span id="lw_beacon_1305857832794"></span></div><div id="inline_attachments"></div><div style="top: -400px; left: -400px; position: absolute; visibility: visible;" class="module overlay yui-module yui-overlay show-scrollbars" id="lwPreview"><div class="hd"></div><div class="bd"></div><div class="ft"></div></div>Jimmy's Momhttp://www.blogger.com/profile/11045751635491136842noreply@blogger.com0tag:blogger.com,1999:blog-795228517597763767.post-86903006189795878722011-04-20T21:48:00.003-04:002011-04-20T22:06:40.218-04:00from my nephew about hw while high...<div id="GBUndoAction" class="GBUndoAction hidden_elem UIMessageBox UIMessageBoxStatus"><h2 class="main_message"> </h2></div><div style="display: none;" class="GBControlHeader clearfix"><span class="GBSelectList">Select: <a href="http://www.facebook.com/#">All</a>, <a href="http://www.facebook.com/#">Read</a>, <a href="http://www.facebook.com/#">None</a></span><div class="GBTabset"><span class="GBTabset_Label">Show</span><a class="GBTabset_Pill selected" href="http://www.facebook.com/?sk=messages"><span><span><span>All</span></span></span></a><a class="GBTabset_Pill" href="http://www.facebook.com/?sk=messages&filter=[fb]unread"><span><span><span>Unread</span></span></span></a></div></div><div style="display: none;" class="ThreadListWrapper" id="c4daf8b22143b36d11708511_thread_list"><div class="ThreadList"><div><div bindpoint="root" class="GBThreadRow "> <table class=" replied" bindpoint="thread_row" id="1743489633036" cellpadding="0"> <tbody><tr> <td class="badge_column"> </td> <td class="checkbox" onselectstart="return false;"> <label bindpoint="selectorLabel"> <input bindpoint="selector" listen="click: toggleSelect" value="1743489633036" type="checkbox"> </label> </td> <td class="icon"> <div class="Thread_Icon"> <a href="http://www.facebook.com/profile.php?id=1185822631" bindpoint="iconAnchor" tabindex="-1"> <img alt="Laura Fleming" src="http://profile.ak.fbcdn.net/hprofile-ak-snc4/41469_1185822631_2956021_q.jpg" class="uiProfilePhoto uiProfilePhotoLarge" bindpoint="icon" /> </a> </div> </td> <td class="envelope clickable" listen="click: readThread"> <div bindpoint="authors" class="authors line"><a title="Laura Fleming" href="http://www.facebook.com/profile.php?id=1185822631" class="link">Laura Fleming</a></div> <div bindpoint="date" class="date tagline">April 20 at 2:44pm</div> </td> <td class="thread_detail clickable" listen="click: readThread"> <a title="school stuff" href="http://www.facebook.com/?page=1&sk=messages&tid=1743489633036" bindpoint="subject" class="subject line">school stuff</a> <div bindpoint="preview" class="preview tagline">I think you have a spot on the bottom of the front page - if not, you can put...</div> </td> <td class="clickable" listen="click: readThread"> </td> </tr> </tbody></table> </div></div><div><div bindpoint="root" class="GBThreadRow "> <table class=" unread" bindpoint="thread_row" id="1675999381182" cellpadding="0"> <tbody><tr> <td class="badge_column"> </td> <td class="checkbox" onselectstart="return false;"> <label bindpoint="selectorLabel"> <input bindpoint="selector" listen="click: toggleSelect" value="1675999381182" type="checkbox"> </label> </td> <td class="icon"> <div class="Thread_Icon"> <a href="http://www.facebook.com/cheinzinger" bindpoint="iconAnchor" tabindex="-1"> <img alt="Chris <span class=" error="" id="SPELLING_ERROR_0" />Heinzinger" src="http://profile.ak.fbcdn.net/hprofile-ak-snc4/195508_1548977191_2541143_q.jpg" class="uiProfilePhoto uiProfilePhotoLarge" bindpoint="icon"> </a> </div> </td> <td class="envelope clickable" listen="click: readThread"> <div bindpoint="authors" class="authors line"><a title="Chris Heinzinger" href="http://www.facebook.com/cheinzinger" class="link">Chris <span class="blsp-spelling-error" id="SPELLING_ERROR_1">Heinzinger</span></a></div> <div bindpoint="date" class="date tagline">April 13 at 5:08pm</div> </td> <td class="thread_detail clickable" listen="click: readThread"> <a title="MS 150 Ride Fundraising Help" href="http://www.facebook.com/?page=1&sk=messages&tid=1675999381182" bindpoint="subject" class="subject line">MS 150 Ride Fundraising Help</a> <div bindpoint="preview" class="preview tagline">Hello All, In two days I will be riding in an MS 150 bike ride, actually 180...</div> </td> <td class="clickable" listen="click: readThread"> </td> </tr> </tbody></table> </div></div><div><div bindpoint="root" class="GBThreadRow "> <table class=" unread" bindpoint="thread_row" id="1724046549915" cellpadding="0"> <tbody><tr> <td class="badge_column"> </td> <td class="checkbox" onselectstart="return false;"> <label bindpoint="selectorLabel"> <input bindpoint="selector" listen="click: toggleSelect" value="1724046549915" type="checkbox"> </label> </td> <td class="icon"> <div class="Thread_Icon"> <a href="http://www.facebook.com/profile.php?id=100000163961841" bindpoint="iconAnchor" tabindex="-1"> <img alt="Jennifer <span class=" error="" id="SPELLING_ERROR_2" />Zanini <span class="blsp-spelling-error" id="SPELLING_ERROR_3">Kirkby</span>" src="http://profile.ak.fbcdn.net/hprofile-ak-snc4/174473_100000163961841_5868150_q.jpg" class="uiProfilePhoto uiProfilePhotoLarge" bindpoint="icon"> </a> </div> </td> <td class="envelope clickable" listen="click: readThread"> <div bindpoint="authors" class="authors line"><a title="Jennifer Zanini Kirkby" href="http://www.facebook.com/profile.php?id=100000163961841" class="link">Jennifer <span class="blsp-spelling-error" id="SPELLING_ERROR_4">Zanini</span> <span class="blsp-spelling-error" id="SPELLING_ERROR_5">Kirkby</span></a></div> <div bindpoint="date" class="date tagline">April 12 at 1:54pm</div> </td> <td class="thread_detail clickable" listen="click: readThread"> <a title="sensor" href="http://www.facebook.com/?page=1&sk=messages&tid=1724046549915" bindpoint="subject" class="subject line">sensor</a> <div bindpoint="preview" class="preview tagline">Hi June, I'm definitely the wrong person to ask about the sensor, because <span class="blsp-spelling-error" id="SPELLING_ERROR_6">ou</span>...</div> </td> <td class="clickable" listen="click: readThread"> </td> </tr> </tbody></table> </div></div><div><div bindpoint="root" class="GBThreadRow "> <table class=" replied" bindpoint="thread_row" id="1986263299715" cellpadding="0"> <tbody><tr> <td class="badge_column"> </td> <td class="checkbox" onselectstart="return false;"> <label bindpoint="selectorLabel"> <input bindpoint="selector" listen="click: toggleSelect" value="1986263299715" type="checkbox"> </label> </td> <td class="icon"> <div class="Thread_Icon"> <a href="http://www.facebook.com/profile.php?id=1088670479" bindpoint="iconAnchor" tabindex="-1"> <img alt="Joe <span class=" error="" id="SPELLING_ERROR_7" />Belger" src="http://profile.ak.fbcdn.net/hprofile-ak-snc4/195658_1088670479_5851263_q.jpg" class="uiProfilePhoto uiProfilePhotoLarge" bindpoint="icon"> </a> </div> </td> <td class="envelope clickable" listen="click: readThread"> <div bindpoint="authors" class="authors line"><a title="Joe Belger" href="http://www.facebook.com/profile.php?id=1088670479" class="link">Joe <span class="blsp-spelling-error" id="SPELLING_ERROR_8">Belger</span></a></div> <div bindpoint="date" class="date tagline">April 6 at 3:32pm</div> </td> <td class="thread_detail clickable" listen="click: readThread"> <a title="highs and homework" href="http://www.facebook.com/?page=1&sk=messages&tid=1986263299715" bindpoint="subject" class="subject line">highs and homework</a> <div bindpoint="preview" class="preview tagline">I was afraid of that - and I didn't let on that he was having trouble because...</div> </td> <td class="clickable" listen="click: readThread"> </td> </tr> </tbody></table> </div></div><div><div bindpoint="root" class="GBThreadRow"> <table class=" replied" bindpoint="thread_row" id="1320881919569" cellpadding="0"> <tbody><tr> <td class="badge_column"> </td> <td class="checkbox" onselectstart="return false;"> <label bindpoint="selectorLabel"> <input bindpoint="selector" listen="click: toggleSelect" value="1320881919569" type="checkbox"> </label> </td> <td class="icon"> <div class="Thread_Icon"> <a href="http://www.facebook.com/profile.php?id=747054106" bindpoint="iconAnchor" tabindex="-1"> <img alt="Melissa Rodriguez" src="http://profile.ak.fbcdn.net/hprofile-ak-snc4/161178_747054106_6101432_q.jpg" class="uiProfilePhoto uiProfilePhotoLarge" bindpoint="icon" /> </a> </div> </td> <td class="envelope clickable" listen="click: readThread"> <div bindpoint="authors" class="authors line"><a title="Melissa Rodriguez" href="http://www.facebook.com/profile.php?id=747054106" class="link">Melissa Rodriguez</a></div> <div bindpoint="date" class="date tagline">April 5 at 7:17pm</div> </td> <td class="thread_detail clickable" listen="click: readThread"> <a title="question..." href="http://www.facebook.com/?page=1&sk=messages&tid=1320881919569" bindpoint="subject" class="subject line">question...</a> <div bindpoint="preview" class="preview tagline">sure - thanks! hope all is well!!!</div> </td> <td class="clickable" listen="click: readThread"> </td> </tr> </tbody></table> </div></div><div><div bindpoint="root" class="GBThreadRow"> <table class=" unread" bindpoint="thread_row" id="1746025204136" cellpadding="0"> <tbody><tr> <td class="badge_column"> </td> <td class="checkbox" onselectstart="return false;"> <label bindpoint="selectorLabel"> <input bindpoint="selector" listen="click: toggleSelect" value="1746025204136" type="checkbox"> </label> </td> <td class="icon"> <div class="Thread_Icon"> <a href="http://www.facebook.com/profile.php?id=1250354175" bindpoint="iconAnchor" tabindex="-1"> <img alt="Carey Sherman-Sanchez" src="http://profile.ak.fbcdn.net/hprofile-ak-snc4/195302_1250354175_2636815_q.jpg" class="uiProfilePhoto uiProfilePhotoLarge" bindpoint="icon" /> </a> </div> </td> <td class="envelope clickable" listen="click: readThread"> <div bindpoint="authors" class="authors line"><a title="Carey Sherman-Sanchez" href="http://www.facebook.com/profile.php?id=1250354175" class="link">Carey Sherman-Sanchez</a></div> <div bindpoint="date" class="date tagline">April 3 at 7:57pm</div> </td> <td class="thread_detail clickable" listen="click: readThread"> <a title="book fair" href="http://www.facebook.com/?page=1&sk=messages&tid=1746025204136" bindpoint="subject" class="subject line">book fair</a> <div bindpoint="preview" class="preview tagline">that sounds good to me thanks so much!!!!</div> </td> <td class="clickable" listen="click: readThread"> </td> </tr> </tbody></table> </div></div><div><div bindpoint="root" class="GBThreadRow"> <table class="" bindpoint="thread_row" id="1914957641983" cellpadding="0"> <tbody><tr> <td class="badge_column"> </td> <td class="checkbox" onselectstart="return false;"> <label bindpoint="selectorLabel"> <input bindpoint="selector" listen="click: toggleSelect" value="1914957641983" type="checkbox"> </label> </td> <td class="icon"> <div class="Thread_Icon"> <a href="http://www.facebook.com/johnrfugazzie" bindpoint="iconAnchor" tabindex="-1"> <img alt="John <span class=" error="" id="SPELLING_ERROR_9" />Fugazzie" src="http://profile.ak.fbcdn.net/hprofile-ak-snc4/187261_100001135329062_1879824_q.jpg" class="uiProfilePhoto uiProfilePhotoLarge" bindpoint="icon"> </a> </div> </td> <td class="envelope clickable" listen="click: readThread"> <div bindpoint="authors" class="authors line"><a title="John Fugazzie" href="http://www.facebook.com/johnrfugazzie" class="link">John <span class="blsp-spelling-error" id="SPELLING_ERROR_10">Fugazzie</span></a></div> <div bindpoint="date" class="date tagline">March 29 at 7:22pm</div> </td> <td class="thread_detail clickable" listen="click: readThread"> <a title="(no subject)" href="http://www.facebook.com/?page=1&sk=messages&tid=1914957641983" bindpoint="subject" class="subject line">(no subject)</a> <div bindpoint="preview" class="preview tagline">thanks so where does <span class="blsp-spelling-error" id="SPELLING_ERROR_11">anne</span> live now?</div> </td> <td class="clickable" listen="click: readThread"> </td> </tr> </tbody></table> </div></div><div><div bindpoint="root" class="GBThreadRow"> <table class="" bindpoint="thread_row" id="1525085581813" cellpadding="0"> <tbody><tr> <td class="badge_column"> </td> <td class="checkbox" onselectstart="return false;"> <label bindpoint="selectorLabel"> <input bindpoint="selector" listen="click: toggleSelect" value="1525085581813" type="checkbox"> </label> </td> <td class="icon"> <div class="Thread_Icon"> <a href="http://www.facebook.com/profile.php?id=100002169445222" bindpoint="iconAnchor" tabindex="-1"> <img alt="Rosemary" src="http://profile.ak.fbcdn.net/hprofile-ak-snc4/211872_100002169445222_2651613_q.jpg" class="uiProfilePhoto uiProfilePhotoLarge" bindpoint="icon" /> </a> </div> </td> <td class="envelope clickable" listen="click: readThread"> <div bindpoint="authors" class="authors line"><a title="Rosemary" href="http://www.facebook.com/profile.php?id=100002169445222" class="link">Rosemary</a>, <a title="Linda" href="http://www.facebook.com/profile.php?id=1252027133" class="link">Linda</a>, <a title="Kimberly" href="http://www.facebook.com/profile.php?id=1306636725" class="link">Kimberly</a></div> <div bindpoint="date" class="date tagline">March 22 at 2:47pm</div> </td> <td class="thread_detail clickable" listen="click: readThread"> <a title="just wanted to make sure you heard...." href="http://www.facebook.com/?page=1&sk=messages&tid=1525085581813" bindpoint="subject" class="subject line">just wanted to make sure you heard....</a> <div bindpoint="preview" class="preview tagline">Thanks for letting me know, I had no idea....how terribly sad.....</div> </td> <td class="clickable" listen="click: readThread"> </td> </tr> </tbody></table> </div></div><div><div bindpoint="root" class="GBThreadRow"> <table class=" unread" bindpoint="thread_row" id="1790226990256" cellpadding="0"> <tbody><tr> <td class="badge_column"> </td> <td class="checkbox" onselectstart="return false;"> <label bindpoint="selectorLabel"> <input bindpoint="selector" listen="click: toggleSelect" value="1790226990256" type="checkbox"> </label> </td> <td class="icon"> <div class="Thread_Icon"> <a href="http://www.facebook.com/andrea.chin1" bindpoint="iconAnchor" tabindex="-1"> <img alt="Andrea" src="http://profile.ak.fbcdn.net/hprofile-ak-snc4/186187_818250226_5646896_q.jpg" class="uiProfilePhoto uiProfilePhotoLarge" bindpoint="icon" /> </a> </div> </td> <td class="envelope clickable" listen="click: readThread"> <div bindpoint="authors" class="authors line"><a title="Andrea" href="http://www.facebook.com/andrea.chin1" class="link">Andrea</a>, <a title="Laura" href="http://www.facebook.com/profile.php?id=1624087592" class="link">Laura</a></div> <div bindpoint="date" class="date tagline">March 22 at 8:49am</div> </td> <td class="thread_detail clickable" listen="click: readThread"> <a title="please pass this on.." href="http://www.facebook.com/?page=1&sk=messages&tid=1790226990256" bindpoint="subject" class="subject line">please pass this on..</a> <div bindpoint="preview" class="preview tagline"><span class="blsp-spelling-error" id="SPELLING_ERROR_12">Deedees</span>98¡AOL.com. Laura, I don't mind at all. How are you holding up? If you...</div> </td> <td class="clickable" listen="click: readThread"> </td> </tr> </tbody></table> </div></div><div><div bindpoint="root" class="GBThreadRow"> <table class=" unread" bindpoint="thread_row" id="1304851799557" cellpadding="0"> <tbody><tr> <td class="badge_column"> </td> <td class="checkbox" onselectstart="return false;"> <label bindpoint="selectorLabel"> <input bindpoint="selector" listen="click: toggleSelect" value="1304851799557" type="checkbox"> </label> </td> <td class="icon"> <div class="Thread_Icon"> <a href="http://www.facebook.com/profile.php?id=1166222811" bindpoint="iconAnchor" tabindex="-1"> <img alt="Wendy <span class=" error="" id="SPELLING_ERROR_13" />Nesoff <span class="blsp-spelling-error" id="SPELLING_ERROR_14">Naimaister</span>" src="http://profile.ak.fbcdn.net/hprofile-ak-snc4/161379_1166222811_5905813_q.jpg" class="uiProfilePhoto uiProfilePhotoLarge" bindpoint="icon"> </a> </div> </td> <td class="envelope clickable" listen="click: readThread"> <div bindpoint="authors" class="authors line"><a title="Wendy Nesoff Naimaister" href="http://www.facebook.com/profile.php?id=1166222811" class="link">Wendy <span class="blsp-spelling-error" id="SPELLING_ERROR_15">Nesoff</span> <span class="blsp-spelling-error" id="SPELLING_ERROR_16">Naimaister</span></a></div> <div bindpoint="date" class="date tagline">March 12 at 11:34am</div> </td> <td class="thread_detail clickable" listen="click: readThread"> <a title="(no subject)" href="http://www.facebook.com/?page=1&sk=messages&tid=1304851799557" bindpoint="subject" class="subject line">(no subject)</a> <div bindpoint="preview" class="preview tagline">Glad everything is <span class="blsp-spelling-error" id="SPELLING_ERROR_17">ok</span>. Talk Monday!</div> </td> <td class="clickable" listen="click: readThread"> </td> </tr> </tbody></table> </div></div><div><div bindpoint="root" class="GBThreadRow"> <table class=" unread" bindpoint="thread_row" id="1309361190006" cellpadding="0"> <tbody><tr> <td class="badge_column"> </td> <td class="checkbox" onselectstart="return false;"> <label bindpoint="selectorLabel"> <input bindpoint="selector" listen="click: toggleSelect" value="1309361190006" type="checkbox"> </label> </td> <td class="icon"> <div class="Thread_Icon"> <a href="http://www.facebook.com/profile.php?id=100000827239990" bindpoint="iconAnchor" tabindex="-1"> <img alt="Josh <span class=" error="" id="SPELLING_ERROR_18" />Langenberger" src="http://profile.ak.fbcdn.net/hprofile-ak-snc4/211995_100000827239990_3254034_q.jpg" class="uiProfilePhoto uiProfilePhotoLarge" bindpoint="icon"> </a> </div> </td> <td class="envelope clickable" listen="click: readThread"> <div bindpoint="authors" class="authors line"><a title="Josh Langenberger" href="http://www.facebook.com/profile.php?id=100000827239990" class="link">Josh <span class="blsp-spelling-error" id="SPELLING_ERROR_19">Langenberger</span></a></div> <div bindpoint="date" class="date tagline">March 10 at 9:02pm</div> </td> <td class="thread_detail clickable" listen="click: readThread"> <a title="thought of you today..." href="http://www.facebook.com/?page=1&sk=messages&tid=1309361190006" bindpoint="subject" class="subject line">thought of you today...</a> <div bindpoint="preview" class="preview tagline">thanks June :)</div> </td> <td class="clickable" listen="click: readThread"> </td> </tr> </tbody></table> </div></div><div><div bindpoint="root" class="GBThreadRow"> <table class=" unread" bindpoint="thread_row" id="1632714052893" cellpadding="0"> <tbody><tr> <td class="badge_column"> </td> <td class="checkbox" onselectstart="return false;"> <label bindpoint="selectorLabel"> <input bindpoint="selector" listen="click: toggleSelect" value="1632714052893" type="checkbox"> </label> </td> <td class="icon"> <div class="Thread_Icon"> <a href="http://www.facebook.com/profile.php?id=1166222811" bindpoint="iconAnchor" tabindex="-1"> <img alt="Wendy <span class=" error="" id="SPELLING_ERROR_20" />Nesoff <span class="blsp-spelling-error" id="SPELLING_ERROR_21">Naimaister</span>" src="http://profile.ak.fbcdn.net/hprofile-ak-snc4/161379_1166222811_5905813_q.jpg" class="uiProfilePhoto uiProfilePhotoLarge" bindpoint="icon"> </a> </div> </td> <td class="envelope clickable" listen="click: readThread"> <div bindpoint="authors" class="authors line"><a title="Wendy Nesoff Naimaister" href="http://www.facebook.com/profile.php?id=1166222811" class="link">Wendy Nesoff Naimaister</a></div> <div bindpoint="date" class="date tagline">February 28 at 9:08pm</div> </td> <td class="thread_detail clickable" listen="click: readThread"> <a title="jump rope for heart" href="http://www.facebook.com/?page=1&sk=messages&tid=1632714052893" bindpoint="subject" class="subject line">jump rope for heart</a> <div bindpoint="preview" class="preview tagline">I will have the exact number tomorrow. But it is approximately $5,200-$5,300...</div> </td> <td class="clickable" listen="click: readThread"> </td> </tr> </tbody></table> </div></div><div><div bindpoint="root" class="GBThreadRow"> <table class=" unread" bindpoint="thread_row" id="1828199392073" cellpadding="0"> <tbody><tr> <td class="badge_column"> </td> <td class="checkbox" onselectstart="return false;"> <label bindpoint="selectorLabel"> <input bindpoint="selector" listen="click: toggleSelect" value="1828199392073" type="checkbox"> </label> </td> <td class="icon"> <div class="Thread_Icon"> <a href="http://www.facebook.com/profile.php?id=100000522582712" bindpoint="iconAnchor" tabindex="-1"> <img alt="Stacy Colucci" src="http://profile.ak.fbcdn.net/hprofile-ak-snc4/203265_100000522582712_7588121_q.jpg" class="uiProfilePhoto uiProfilePhotoLarge" bindpoint="icon" /> </a> </div> </td> <td class="envelope clickable" listen="click: readThread"> <div bindpoint="authors" class="authors line"><a title="Stacy Colucci" href="http://www.facebook.com/profile.php?id=100000522582712" class="link">Stacy Colucci</a></div> <div bindpoint="date" class="date tagline">February 27 at 9:29pm</div> </td> <td class="thread_detail clickable" listen="click: readThread"> <a title="(no subject)" href="http://www.facebook.com/?page=1&sk=messages&tid=1828199392073" bindpoint="subject" class="subject line">(no subject)</a> <div bindpoint="preview" class="preview tagline">I have it all ready to go. Not sure about the faculty meeting but I can stay...</div> </td> <td class="clickable" listen="click: readThread"> </td> </tr> </tbody></table> </div></div><div><div bindpoint="root" class="GBThreadRow"> <table class=" unread" bindpoint="thread_row" id="10150104289827123" cellpadding="0"> <tbody><tr> <td class="badge_column"> </td> <td class="checkbox" onselectstart="return false;"> <label bindpoint="selectorLabel"> <input bindpoint="selector" listen="click: toggleSelect" value="10150104289827123" type="checkbox"> </label> </td> <td class="icon"> <div class="Thread_Icon"> <a href="http://www.facebook.com/alathal" bindpoint="iconAnchor" tabindex="-1"> <img alt="Alex Thaler" src="http://profile.ak.fbcdn.net/hprofile-ak-snc4/211874_503454261_1287176_q.jpg" class="uiProfilePhoto uiProfilePhotoLarge" bindpoint="icon" /> </a> </div> </td> <td class="envelope clickable" listen="click: readThread"> <div bindpoint="authors" class="authors line"><a title="Alex Thaler" href="http://www.facebook.com/alathal" class="link">Alex Thaler</a></div> <div bindpoint="date" class="date tagline">February 27 at 12:17am</div> </td> <td class="thread_detail clickable" listen="click: readThread"> <a title="hey!`" href="http://www.facebook.com/?page=1&sk=messages&tid=10150104289827123" bindpoint="subject" class="subject line">hey!`</a> <div bindpoint="preview" class="preview tagline">P.S.- Donna looks really familiar. I think it's all coming back to me now. LOL!</div> </td> <td class="clickable" listen="click: readThread"> </td> </tr> </tbody></table> </div></div><div><div bindpoint="root" class="GBThreadRow"> <table class=" unread" bindpoint="thread_row" id="10150104600368431" cellpadding="0"> <tbody><tr> <td class="badge_column"> </td> <td class="checkbox" onselectstart="return false;"> <label bindpoint="selectorLabel"> <input bindpoint="selector" listen="click: toggleSelect" value="10150104600368431" type="checkbox"> </label> </td> <td class="icon"> <div class="Thread_Icon"> <a href="http://www.facebook.com/profile.php?id=685357721" bindpoint="iconAnchor" tabindex="-1"> <img alt="Stephanie Langer" src="http://profile.ak.fbcdn.net/hprofile-ak-snc4/174514_685357721_3387796_q.jpg" class="uiProfilePhoto uiProfilePhotoLarge" bindpoint="icon" /> </a> </div> </td> <td class="envelope clickable" listen="click: readThread"> <div bindpoint="authors" class="authors line"><a title="Stephanie Langer" href="http://www.facebook.com/profile.php?id=685357721" class="link">Stephanie Langer</a></div> <div bindpoint="date" class="date tagline">February 24 at 2:59pm</div> </td> <td class="thread_detail clickable" listen="click: readThread"> <a title="gifts" href="http://www.facebook.com/?page=1&sk=messages&tid=10150104600368431" bindpoint="subject" class="subject line">gifts</a> <div bindpoint="preview" class="preview tagline">Absolutely, I let them know. See you soon!</div> </td> <td class="clickable" listen="click: readThread"> </td> </tr> </tbody></table> </div></div><div><div bindpoint="root" class="GBThreadRow"> <table class=" unread" bindpoint="thread_row" id="1214817172965" cellpadding="0"> <tbody><tr> <td class="badge_column"> </td> <td class="checkbox" onselectstart="return false;"> <label bindpoint="selectorLabel"> <input bindpoint="selector" listen="click: toggleSelect" value="1214817172965" type="checkbox"> </label> </td> <td class="icon"> <div class="Thread_Icon"> <a href="http://www.facebook.com/profile.php?id=685357721" bindpoint="iconAnchor" tabindex="-1"> <img alt="Stephanie Langer" src="http://profile.ak.fbcdn.net/hprofile-ak-snc4/174514_685357721_3387796_q.jpg" class="uiProfilePhoto uiProfilePhotoLarge" bindpoint="icon" /> </a> </div> </td> <td class="envelope clickable" listen="click: readThread"> <div bindpoint="authors" class="authors line"><a title="Stephanie Langer" href="http://www.facebook.com/profile.php?id=685357721" class="link">Stephanie Langer</a></div> <div bindpoint="date" class="date tagline">February 22 at 8:00pm</div> </td> <td class="thread_detail clickable" listen="click: readThread"> <a title="shower question" href="http://www.facebook.com/?page=1&sk=messages&tid=1214817172965" bindpoint="subject" class="subject line">shower question</a> <div bindpoint="preview" class="preview tagline">Hey June, Just wanted to follow-up and let you know that they are also regis...</div> </td> <td class="clickable" listen="click: readThread"> </td> </tr> </tbody></table> </div></div><div><div bindpoint="root" class="GBThreadRow "> <table class=" " bindpoint="thread_row" id="1292040197718" cellpadding="0"> <tbody><tr> <td class="badge_column"> </td> <td class="checkbox" onselectstart="return false;"> <label bindpoint="selectorLabel"> <input bindpoint="selector" listen="click: toggleSelect" value="1292040197718" type="checkbox"> </label> </td> <td class="icon"> <div class="Thread_Icon"> <a href="http://www.facebook.com/profile.php?id=1088670479" bindpoint="iconAnchor" tabindex="-1"> <img alt="Joe Belger" src="http://profile.ak.fbcdn.net/hprofile-ak-snc4/195658_1088670479_5851263_q.jpg" class="uiProfilePhoto uiProfilePhotoLarge" bindpoint="icon" /> </a> </div> </td> <td class="envelope clickable" listen="click: readThread"> <div bindpoint="authors" class="authors line"><a title="Joe Belger" href="http://www.facebook.com/profile.php?id=1088670479" class="link">Joe Belger</a></div> <div bindpoint="date" class="date tagline">February 22 at 4:15pm</div> </td> <td class="thread_detail clickable" listen="click: readThread"> <a title="hey!" href="http://www.facebook.com/?page=1&sk=messages&tid=1292040197718" bindpoint="subject" class="subject line">hey!</a> <div bindpoint="preview" class="preview tagline">I did the wipe for about a year before it got old and not necessary. As long...</div> </td> <td class="clickable" listen="click: readThread"> </td> </tr> </tbody></table> </div></div><div><div bindpoint="root" class="GBThreadRow "> <table class=" unread" bindpoint="thread_row" id="10150095874814006" cellpadding="0"> <tbody><tr> <td class="badge_column"> </td> <td class="checkbox" onselectstart="return false;"> <label bindpoint="selectorLabel"> <input bindpoint="selector" listen="click: toggleSelect" value="10150095874814006" type="checkbox"> </label> </td> <td class="icon"> <div class="Thread_Icon"> <a href="http://www.facebook.com/heathmcknight" bindpoint="iconAnchor" tabindex="-1"> <img alt="Heath McKnight" src="http://profile.ak.fbcdn.net/hprofile-ak-snc4/186104_655760987_3883780_q.jpg" class="uiProfilePhoto uiProfilePhotoLarge" bindpoint="icon" /> </a> </div> </td> <td class="envelope clickable" listen="click: readThread"> <div bindpoint="authors" class="authors line"><a title="Heath McKnight" href="http://www.facebook.com/heathmcknight" class="link">Heath McKnight</a></div> <div bindpoint="date" class="date tagline">February 15 at 5:29pm</div> </td> <td class="thread_detail clickable" listen="click: readThread"> <a title="June's address" href="http://www.facebook.com/?page=1&sk=messages&tid=10150095874814006" bindpoint="subject" class="subject line">June's address</a> <div bindpoint="preview" class="preview tagline">ps-Anytime you want to pass a message along, just let me know.</div> </td> <td class="clickable" listen="click: readThread"> </td> </tr> </tbody></table> </div></div><div><div bindpoint="root" class="GBThreadRow "> <table class=" unread" bindpoint="thread_row" id="1522473232641" cellpadding="0"> <tbody><tr> <td class="badge_column"> </td> <td class="checkbox" onselectstart="return false;"> <label bindpoint="selectorLabel"> <input bindpoint="selector" listen="click: toggleSelect" value="1522473232641" type="checkbox"> </label> </td> <td class="icon"> <div class="Thread_Icon"> <a href="http://www.facebook.com/profile.php?id=11000941" bindpoint="iconAnchor" tabindex="-1"> <img alt="Jonathan Joyner" src="http://profile.ak.fbcdn.net/hprofile-ak-snc4/195552_11000941_8156955_q.jpg" class="uiProfilePhoto uiProfilePhotoLarge" bindpoint="icon" /> </a> </div> </td> <td class="envelope clickable" listen="click: readThread"> <div bindpoint="authors" class="authors line"><a title="Jonathan Joyner" href="http://www.facebook.com/profile.php?id=11000941" class="link">Jonathan Joyner</a></div> <div bindpoint="date" class="date tagline">February 15 at 12:17am</div> </td> <td class="thread_detail clickable" listen="click: readThread"> <a title="Hey" href="http://www.facebook.com/?page=1&sk=messages&tid=1522473232641" bindpoint="subject" class="subject line">Hey</a> <div bindpoint="preview" class="preview tagline">sorry I missed your message! I'd love to catch up soon! hope you had a nice v...</div> </td> <td class="clickable" listen="click: readThread"> </td> </tr> </tbody></table> </div></div><div><div bindpoint="root" class="GBThreadRow "> <table class="" bindpoint="thread_row" id="1429423673960" cellpadding="0"> <tbody><tr> <td class="badge_column"> </td> <td class="checkbox" onselectstart="return false;"> <label bindpoint="selectorLabel"> <input bindpoint="selector" listen="click: toggleSelect" value="1429423673960" type="checkbox"> </label> </td> <td class="icon"> <div class="Thread_Icon"> <a href="http://www.facebook.com/profile.php?id=100000163961841" bindpoint="iconAnchor" tabindex="-1"> <img alt="Jennifer Zanini Kirkby" src="http://profile.ak.fbcdn.net/hprofile-ak-snc4/174473_100000163961841_5868150_q.jpg" class="uiProfilePhoto uiProfilePhotoLarge" bindpoint="icon" /> </a> </div> </td> <td class="envelope clickable" listen="click: readThread"> <div bindpoint="authors" class="authors line"><a title="Jennifer Zanini Kirkby" href="http://www.facebook.com/profile.php?id=100000163961841" class="link">Jennifer Zanini Kirkby</a></div> <div bindpoint="date" class="date tagline">February 13 at 1:01pm</div> </td> <td class="thread_detail clickable" listen="click: readThread"> <a title="hi there!" href="http://www.facebook.com/?page=1&sk=messages&tid=1429423673960" bindpoint="subject" class="subject line">hi there!</a> <div bindpoint="preview" class="preview tagline">No problem June. But I'm such a nice nurse - I wouldn't scare him!!! Well, I...</div> </td> <td class="clickable" listen="click: readThread"> </td> </tr> </tbody></table> </div></div></div></div><div class="gigaboxx_thread_header"><h2 class="gigaboxx_thread_header_subject">highs and homework</h2><div class="gigaboxx_thread_header_authors">Between <a href="http://www.facebook.com/profile.php?id=1088670479">J</a> and <a href="http://www.facebook.com/profile.php?id=1015877627">You</a></div></div> <div bindpoint="root" class="GBThreadMessageRow clearfix"> <div class="GBThreadMessageRow_Image"> <a class="GBThreadMessageRow_Image_Link" href="http://www.facebook.com/profile.php?id=1015877627"> <img class="uiProfilePhoto uiProfilePhotoLarge" src="http://profile.ak.fbcdn.net/hprofile-ak-snc4/174099_1015877627_6360097_q.jpg" /> </a> </div> <div class="GBThreadMessageRow_Main"> <div class="GBThreadMessageRow_Info"> <span bindpoint="authorLinkWrapper" class="GBThreadMessageRow_AuthorLink_Wrapper"> <a class="GBThreadMessageRow_AuthorLink" href="http://www.facebook.com/profile.php?id=1015877627">June</a> </span> <span class="GBThreadMessageRow_Date"> April 6 at 12:13pm </span> <span class="GBThreadMessageRow_BranchLink" bindpoint="branchLinkWrapper"></span> <span class="GBThreadMessageRow_ReportLink" bindpoint="reportLinkWrapper"></span> </div> <div class="GBThreadMessageRow_Body"> <div class="GBThreadMessageRow_Body_Content"> Hi, Jimmy was high last night for homework - in the 400's at first (not sure why), so we didn't do the homework right away - then he was in the 300's. It was a disaster... he pressed so hard, it was (extra) messy, he couldn't focus, etc... He was high - I know it interferes with ability to focus, but to what extent is it the high, and to what extent is it that he's 6 - and well, Jimmy? Thanks for your input - Hope all is good!! </div> <div class="GBThreadMessageRow_ReferrerLink"> </div> <div class="GBThreadMessageRow_Body_Attachment"> </div> </div> </div> </div> <div bindpoint="root" class="GBThreadMessageRow clearfix"> <div class="GBThreadMessageRow_Image"> <a class="GBThreadMessageRow_Image_Link" href="http://www.facebook.com/profile.php?id=1088670479"> <img class="uiProfilePhoto uiProfilePhotoLarge" src="http://profile.ak.fbcdn.net/hprofile-ak-snc4/195658_1088670479_5851263_q.jpg" /> </a> </div> <div class="GBThreadMessageRow_Main"> <div class="GBThreadMessageRow_Info"> <span bindpoint="authorLinkWrapper" class="GBThreadMessageRow_AuthorLink_Wrapper"> <a class="GBThreadMessageRow_AuthorLink" href="http://www.facebook.com/profile.php?id=1088670479">Joe</a> </span> <span class="GBThreadMessageRow_Date"> April 6 at 3:32pm </span> <span class="GBThreadMessageRow_BranchLink" bindpoint="branchLinkWrapper"></span> <span class="GBThreadMessageRow_ReportLink" bindpoint="reportLinkWrapper"><a class="action" rel="dialog" href="http://www.facebook.com/ajax/report.php?content_type=9&cid=1986263299715&rid=1088670479&cid2=1&cid3=1&h=AQBY5DxtJBgSRvVi">Report</a></span> </div> <div class="GBThreadMessageRow_Body"> <div class="GBThreadMessageRow_Body_Content"> I think it's probably more that he is 6, but obviously the numbers will affect everything from mood to academic/athletic performance, emotions, and overall attitude. I'm not sure why I do it but I never let my numbers be an excuse, especially with a 6 year old I think that it is important to make that clear because than he will use that as an outlet when he really doesn't want to do homework. High numbers are not going to make anyone completely incapable of focusing so I lean more towards he is 6 and probably in a bad mood or just didn't want to do the task. </div> <div class="GBThreadMessageRow_ReferrerLink"> </div> <div class="GBThreadMessageRow_Body_Attachment"> </div> </div> </div> </div> <div class="GBThreadMessageRow_Image"> <a class="GBThreadMessageRow_Image_Link" href="http://www.facebook.com/profile.php?id=1015877627"> <img class="uiProfilePhoto uiProfilePhotoLarge" src="http://profile.ak.fbcdn.net/hprofile-ak-snc4/174099_1015877627_6360097_q.jpg" /> </a> </div> <div class="GBThreadMessageRow_Info"> <span bindpoint="authorLinkWrapper" class="GBThreadMessageRow_AuthorLink_Wrapper"> <a class="GBThreadMessageRow_AuthorLink" href="http://www.facebook.com/profile.php?id=1015877627">June Schnakenberg Karpowich</a> </span> <span class="GBThreadMessageRow_Date"> April 6 at 7:30pm </span> <span class="GBThreadMessageRow_BranchLink" bindpoint="branchLinkWrapper"></span> <span class="GBThreadMessageRow_ReportLink" bindpoint="reportLinkWrapper"></span> </div> <div class="GBThreadMessageRow_Body_Content"> I was afraid of that - and I didn't let on that he was having trouble because he was high... the other day, he threw a bat because he was pissed at me - I know he was high, but I never factored that into the equation with him - I'm not going to give him excuses to use... His teacher said (to me - not to Jimmy) that if he's ever high and can't focus to do his homework, to just let it go, and he can do it another time... I'm not so sure about giving him an excuse... But, he had his head down and felt bad handing in his homework today his teacher said - he was embarrassed because it really was terrible. Comparing it to his usual work, it looked like he did it in the dark with his hands tied up behind his back... poor kid. How did you know to not let it be an excuse? And, do you notice your performance on schoolwork or during a conversation or during an argument or during a game is any different when you're high? Thanks Joe, you're always so helpful!!! On another note, Jimmy's teacher was asking what the class noticed in the picture of the book she was reading. In the picture, a boy had dressed up the class pet in summer clothes - I guess it was wearing a bikini top and summer clothes, and the kids were saying they saw nice colors, funny clothes on a pet, the boy smiling, etc... Jimmy raised his hand and said, "I see a bra!" It was all the teacher could do not to laugh herself!!! gotta love him - or else I'd be insane!!! Hope you're good!!<br /><br />And then we talked on the phone...<br />My nephew gave me the BIGGEST reason to NOT give Jimmy the "excuse" to not let him do homework (or any other task at hand.) He told me, "If someone had told me that I didn't have to do homework when I was "high", then I would have eaten candy to make me high so I wouldn't have had to do it." <br /><br />Now, keep in mind, that my nephew is among the BEST of the people I know. Since he was 4 years old, he was a pleasure to have a conversation with. When he was 10 (pre diagnosis) he played sports with a broken arm, because, if your coach tells you to get up and get back in the game, well, that's what you do!! He even finished the game!! He does what is expected of him - period. He's an awesome individual, and I hope my son can learn all he has to offer!!<br /><br />So, do I let him not do the work? I don't think so. I hear it in my future if I do... It might sound something like this: "Mom, I can't empty the dishwasher because I'm high." or, "Mom, I can't do my homework because I'm high." Or, "Mom, I can't put my clothes in the laundry because I'm high." All along while he's thinking, "Mom, woohoo, thank god I'm high so I don't have to do what I need to do!!!" <br /><br />I can't take the chance - can I? I don't think so... Would love some back up... I just hated how he was embarrassed to hand in his homework. As "Jimmy-ish" as he is, he does take some pride in his homework...<br />To be continued...<br />Peace,<br />June<br /></div>Jimmy's Momhttp://www.blogger.com/profile/11045751635491136842noreply@blogger.com0tag:blogger.com,1999:blog-795228517597763767.post-58708124182849736052011-04-07T14:14:00.013-04:002011-04-21T11:40:24.484-04:00Homework while high..The first image is what Jimmy is capable of for a homework assignment... You can even see the smiley face that his teacher gave him! It's not perfect, but it's close to his best!! The second image is what his homework looks like when his blood glucose level is high (over 300...)...<br /><br /><div></div><br /><br /><div></div><br /><br /><div><img style="TEXT-ALIGN: center; MARGIN: 0px auto 10px; WIDTH: 315px; DISPLAY: block; HEIGHT: 197px" id="BLOGGER_PHOTO_ID_5593021439426179490" border="0" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjfk40MD_dTzgjevJBMUnO51NaKLRKpq8SP3m_8ry-BfaGTx4QTDJbYpoArAISynJJn3bsn-8CTQFMpIfePUj4k8u891ZKFTEipQ1xyx9PnBkM0OAEYZ5BfuCdggZaoN4tpLGb8RIRIDAw/s400/jimmy_1.jpg" /><img style="TEXT-ALIGN: center; MARGIN: 0px auto 10px; WIDTH: 304px; DISPLAY: block; HEIGHT: 170px" id="BLOGGER_PHOTO_ID_5593021640386228818" border="0" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEixWWW_oc7c8h86BNZoz0iUx8RVaBwrwlbau25xkewUrI-5KRnSih-qIrk_XsTYqqtIulYaFA0NaYUsmFi3jzEX8oCqFS9mTqIQBkcLZBvF_zVKOqlW2QK01XNNVOikkhTVZTTsc1W6IOM/s400/jimmy_2.jpg" /> </div>Not pretty, huh? So, I contacted my nephew to see if he had any insight as to what it's like to function with a high bgc... see his response in my next post... quite insightful...<br /><br /><br /><br /><br /><br /><p><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjpej2J_raAWMfrFXzSf0sl0h5J0lRw_bb3hPZ75Xy7pRLgLpHKInp-Wo8ET0DExsUR98kMrzyq8dfE4_0BHLTDKOncI_j5vLrxsM30rSJd43aLKl0MCBZ68mfXunPqrekFUOp9zv7L5Yo/s1600/jimmy_2.jpg"></a></p><br /><br /><p></p><br /><br /><p></p><br /><br /><div></div><br /><br /><div><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgpLu66kqyoPFmxJ2Q1TYljOGrRAWh8KU-0VT1R1gp0xWGHU4wsHWUfhl2Ey3ULl_I2ENE0KLqNHBZ3Ol_TyyEl6FsMdqjZ_GN7VkEcfEnYjXi03-UXAVWcecxd3lc3tHJgcFD6cuMdfDk/s1600/jimmy_1.jpg"></a><br /><br /><div><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgfySJloDNiwpwKOj7AfBq04HqMOtiPIigY3n_QiDLWLWww8xTNGHThZNeFffUAfJmm0TFaysxNxaWbqDtUclEzcvmuTSvni47lQaQ2JIPxhynikp_i6aIInq7fxEJYU9dLsiO8th3jzNg/s1600/jimmy_2.jpg"></a><br /><br /><div><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgSkuVY8zXRM14QgB3SO9zuIYkn0ZByqa-GP8jQxiHbGHtxKRzPDiPdfuI2HNe3qI6kREq98ntOrBi0MaOJZej5tnUE8SSeByqQiO5IvSuyTgVGRvi-FRxBqklgg3WBvHCI7Gk87aAURSk/s1600/jimmy_1.jpg"></a><br /><br /><div><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjZ5W-gVRPGEid4vWKwfEDc1l56eqxJrqdEjiF4GgkLrw8SocvKSNeLEGO_KzJyfm5ZZpDaAWlzcj0yCOckvazfmkr3zX9XHNFE6zOZvAWCQ4EDUUAuqrR-SYVoBqBrXm_V4wXfuJ8gbG0/s1600/jimmy+2.jpg"></a><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiJpn3bB16HhkLgar2V8d0JZRblr59o2PsCi0DOkRdH8kO680elnMh3s_-_J-_ocsqZNyzKxohYIeNXUmqMhPQUMIAxNMyeb7EcvfOMthKDTDdnVc_vzkvcfRe4jLMwiOFLV1cN9VCg-VA/s1600/jimmy+1.jpg"></a></div></div></div></div>Jimmy's Momhttp://www.blogger.com/profile/11045751635491136842noreply@blogger.com0tag:blogger.com,1999:blog-795228517597763767.post-20657908247708506532011-04-05T01:07:00.007-04:002011-04-05T01:18:49.691-04:00A note to Jimmy's NurseA note to Jimmy's Molly Center nurse... I just wanted to let you know that I think you are wonderful - you have a way of making us feel that Jimmy is the only patient you care for - even though we know that's not the case... anyway, it's midnight - and I'm just up testing Jimmy - at a whopping 292 - and there's a reason... Here's the background... He woke up at a 123 this morning and had at least 3/4 of a regular size banana at 8a.m. I covered 20 <span class="blsp-spelling-error" id="SPELLING_ERROR_0">carbs</span> . He felt low just after 9a.m. at school but tested at a 290. At 10 a.m. he was a 168. Had cashews for a snack (his new favorite) and his nurse ONLY covered for the <span class="blsp-spelling-error" id="SPELLING_ERROR_1">carbs</span> - no correction as per Jimmy's plan. At 10:56 he plummeted to a 59 - but he seemed <span class="blsp-spelling-error" id="SPELLING_ERROR_2">ok</span>. Was it the fat in the nuts? not sure, so ... 15 <span class="blsp-spelling-error" id="SPELLING_ERROR_3">carbs</span> of juice and a retest revealed he was only a 62 at 11:11 (15 minutes later.) His nurse gave another juice box, and at 11:27 he was only up to a 93 at which time she gave him a 20 <span class="blsp-spelling-error" id="SPELLING_ERROR_4">carb</span> snack. Seems to happen lately... Yesterday morning, at 11:30 he was a 90, so he had a decent snack, for which I covered only some of ... thinking he was going to be sitting in church for an hour at 12:30. Then, while in church at 12:45 (Lunch would not be until after mass, where there was to be a basketball ceremony in the gym complete with snacks and pizza at 1:30), he said he felt low. He was a 168, but he insisted he felt low - he even insisted he was dropping - which he seems to be able to recognize when he's trending down (can't wait to start the sensor...). I didn't do anything, but he complained again that he felt low and at 12:59 he was a 159. He INSISTED that he was dropping, so I gave him 1/2 a juice box being that we were in church, and let's face it - you know Jimmy and how it's hard to keep him quiet/entertained/well behaved, etc... , and the 1/2 of a juice box made him feel better. At 1:45, he was a 150 and good to go for lunch. Wondering what's happening with his plummeting at lunchtime... Joann sent us an email form <span class="blsp-spelling-error" id="SPELLING_ERROR_5">pedsmolly</span> to raise his basal rate at 10 am because she felt he was rising after lunch, but I'm wondering if she only saw the result of us trying to raise him from a low. since it seems to be happening at that time. p.s. I didn't raise his 10 a.m. basal. So. on to today. He had his low (above) and was off to his 2<span class="blsp-spelling-error" id="SPELLING_ERROR_6">nd</span> school (to which he attends Monday's and Thursday's from noon to 3:30 pm. They are great (but no nurse on site - just loving wonderful teachers who are moms and know Jimmy since way before his diagnosis). They always call me at a moment's notice with a low or a high, or a question and have been so willing and ready to help with his diabetes. Today, I went to cover him at lunch - normal <span class="blsp-spelling-corrected" id="SPELLING_ERROR_7">occurrence</span>. He complained that he <span class="blsp-spelling-corrected" id="SPELLING_ERROR_8">didn't</span>' want pretzels for his 2pm snack, so I decided to bring him a different snack at 2 (the school is right across the street from mine) - He also needed test strips, so I brought them, too. I'm SO GLAD I went -I got there with is strips and snack and he told me that his site had just come out. He hadn't told his teacher - not sure why - looking in to that... So- because I had a class at 2:15, I decided to cover him via <span class="blsp-spelling-error" id="SPELLING_ERROR_9">novapen</span> shot for his snack. Then I picked him up at sometime between 3:30 and 4 as usual, and Jenna had piano at 4:30, so by the time she got home after 5 and he wanted a snack, he insisted on another shot and even declared it was time for a pump vacation (a term we introduced if in fact he joins the swim team this summer). Not a chance. I delivered another shot via nova pen since he was quite busy playing outside with the neighborhood kids (we LOVE our block) and he didn't want to take the time to insert a new site. As soon as I could catch him and keep him for a bit, I inserted the new site. A bit later, it was time for dinner - he was a whopping 500 plus. (no <span class="blsp-spelling-error" id="SPELLING_ERROR_10">keytones</span>.) YIKES! We delivered a bolus, and Jimmy declared he never saw the pump give him a 2.7 before - he said it was a record. Not sure about that, but I repeat, YIKES! So, now at midnight, he's a 292. The pump said to give him 0.9, but I chickened out and gave him 0.6. I'll do my best to check him at 3,but it's already almost 1a.m. My husband's been pretty good at testing him at 3.a.m. and 6:30 a.m., so I'll send you an email in the a.m. with an update. Don't want a low in the middle of the night. He's such a HEAVY sleeper. <span class="blsp-spelling-error" id="SPELLING_ERROR_11">Ok</span>, have to go to bed - I'm going to try to look into <span class="blsp-spelling-error" id="SPELLING_ERROR_12">Apidra</span> now... never heard of it. willing to try whatever is best for him. On another note - I'm trying so hard to feed him well - not always easy - trying to give him more complex <span class="blsp-spelling-error" id="SPELLING_ERROR_13">carbs</span> instead of simple ones... He's 6, so of course it's near impossible. Loves <span class="blsp-spelling-corrected" id="SPELLING_ERROR_14">bananas</span>, cashews, yogurt, cheese sticks for snacks, but then there's always the birthday party treats, desserts, grocery store check out line candy, etc... You're right about the <span class="blsp-spelling-error" id="SPELLING_ERROR_15">glycemic</span> index. I'm learning AND trying. One thing we <span class="blsp-spelling-corrected" id="SPELLING_ERROR_16">definitely</span> noticed it that he's always high after pancakes (Aunt Jemima original mix - I know - terrible - and Lite syrup (lower <span class="blsp-spelling-error" id="SPELLING_ERROR_17">carbs</span>) and bacon - I know it slows down the <span class="blsp-spelling-error" id="SPELLING_ERROR_18">carb</span> <span class="blsp-spelling-corrected" id="SPELLING_ERROR_19">absorption</span>.) Will look into keeping track of foods and <span class="blsp-spelling-error" id="SPELLING_ERROR_20">carbs</span> and trends - always do it for lunch for his nurse, so why not continue... He's a "grazer" as you mentioned, so it's tough... I'll keep you posted. Thanks so much again for getting back to me not only today, but Friday as well. We thing you're w onderful, and feel so blessed to have you on Jimmy's side!!! Peace, JuneJimmy's Momhttp://www.blogger.com/profile/11045751635491136842noreply@blogger.com0tag:blogger.com,1999:blog-795228517597763767.post-27268801335169509042011-04-03T16:51:00.004-04:002011-04-03T17:18:00.563-04:00Uncle Ed<div><span style="font-size:130%;">Well, one year was uneventful! Which was actually nice! I didn't know what to expect, but it was my dog, Shortstop's birthday, so that was a reason for happiness!!! We played BINGO for family bingo night at school, so it really took our minds off of it! </span></div><br /><div><span style="font-size:130%;"></span></div><br /><div><span style="font-size:130%;">Still can't believe it's a year... </span></div><br /><div><span style="font-size:130%;"></span></div><br /><div><span style="font-size:130%;">On another note, here's an email I sent to my uncle updating him on the goings on up here. You can tell from the email that we never get a chance to get together... but I'd love for my kids to get to know their Great Uncle, and Grandma's Little Brother!! </span></div><br /><div></div><br /><div><em>Hi Uncle Ed!! </em></div><br /><div><em>You asked how I'm doing, well... Here goes... </em></div><br /><div><em></em></div><br /><div><em>I'm doing well!! I'm in my 18th year of teaching, and I'm so blessed to have such a great job which I love. I have 2 beautiful and perfect children - Jenna, 11 and Jimmy, 6. We live in lovely River Edge - which is right next to Oradell. We've been in our house for over 6 years now. We moved from Wayne, NJ - which is where I used to teach, but now I'm lucky enough to be teaching in River Edge! The schools are wonderful, and both children are thriving! Their picture from the first day of school this year is attached. </em></div><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh-SmN-IQnXyBSjOFLKkWUOGHCHN8n968HiJQkgGp6d1UTCwNeBWxD2ee7U1bFDQ1_97UGJW35_NSAQ6R9mFSHEFx9sWUwj3GIQTBKsKMUT8STQ35GJ11JKW5mZs8aHObVSAVDdlZVZNYw/s1600/DSC04212.JPG"><img id="BLOGGER_PHOTO_ID_5591468916265960642" style="WIDTH: 200px; CURSOR: hand; HEIGHT: 176px" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh-SmN-IQnXyBSjOFLKkWUOGHCHN8n968HiJQkgGp6d1UTCwNeBWxD2ee7U1bFDQ1_97UGJW35_NSAQ6R9mFSHEFx9sWUwj3GIQTBKsKMUT8STQ35GJ11JKW5mZs8aHObVSAVDdlZVZNYw/s200/DSC04212.JPG" border="0" /></a> <br /><div><em></em></div><br /><div><em>They're gorgeous, if I do say so myself! </em></div><br /><div><em></em></div><br /><div><em>I married a wonderful man, Jim, who grew up in River Edge, and whose dad was an All American Basketball player in the 40's (if your dad was the "Babe Ruth of Gymnastics", he was just short of that in the college basketball scene in the 40's.) His name was Anthony "Butch" Karpowich. Jim is the baby of the family, so you and he have that in common - you would love him!!! He's a teacher and a coach, and graduated with an Ed.D. in Education - so now he is "Dr. Karpowich"! </em></div><br /><div><em></em></div><br /><div><em>Jenna is 11, and in the 5th grade. She excels in school, and participated in band (she plays drums and piano), is a girl scout, takes hip hop dance, starred in basketball, and is in Gifted and Talented in school!!! Softball is starting now... she hopes to pitch and play shortstop. A righty through and through - you'd be surprised to hear that she bats lefty! With strength on her side, she can really hit! She's a delight, and you would get a kick out of her!!! She's a great combination of a free spirit and go-getter!!! </em></div><br /><div><em></em></div><br /><div><em>Jimmy is 6, and his life revolves around sports!! He's taken Kindergarten by storm - and the building is still standing!! Basketball finished up, and he was the tallest in the program - in one of his games, he scored all of the points! Now we're waiting for baseball to start. He's quite big and tall for his age, so it should be an interesting season. We were delivered a blow last April Fool's Day when he was diagnosed with Type 1 Diabetes. It's been a year now, and you would be surprised how advanced treatment options have come over the years compared to "back in the day"... Jimmy wears an insulin pump, and is just about unstoppable with it! It sure beats taking shots! I'm sure you remember Dad's brother, Uncle John... He used to take a shot a day and was totally limited as to what he could eat. Jimmy can eat anything he wants at any time - and the pump delivers the insulin he needs while correcting high blood sugars. He does have his share of high and low blood glucose readings, but his level of care is so much greater than Uncle John's because of the amount of research and knowledge they have now. As of now in the world of Type 1 Diabetes, it is predicted that Jimmy will live within 5 years of his life expectancy - but I'm praying that with the advancements in Diabetes care, that that will change and he will not only live to - but surpass his life expectancy! </em></div><br /><div><em></em></div><br /><div><em>When I "friended" your shop, "Tattoo Blues" (at the suggestion of Donna), Heath contacted me... I told him that you were my Uncle, and we started up a Facebook friendship! He even looked into diabetic tattoos for me (the color changes to indicate a high and low blood sugar.) Turns out, its not quite the same as a regular tattoo, and it's still not ready for market... Maybe one day it will be. Jimmy has a cousin (Jim's side of family) who is also a diabetic - I'll treat them to their first tattoos when it comes on the market!!! </em></div><br /><div><em></em></div><br /><div><em>I keep a blog of the (literal) ups and downs of life with a diabetic child. You can find it at: </em><a href="http://jimmyjdblog.blogspot.com/p/diagnosis.html"><em>http://jimmyjdblog.blogspot.com/p/diagnosis.html</em></a><em> I keep it as a way to get my feelings down and to have it for one day when I can go back and see actually happened in our lives with diabetes. It's been such a blur and so very busy, not to mention extremely difficult and emotional. It also keeps friends and family updated. </em></div><br /><div><em></em></div><br /><div><em>On another note, it will be one year in June since mom passed. I'm so glad that both my kids got to know her. Jenna remembers her before the Parkinson's took over, and before her wheel chair. Jimmy remembers zooming her around in her wheel chair (I think he thought of it as her race car.) She will always have a place in their hearts and memories, and for that I'm so very thankful. Here's a site I put together so you can see the video tribute I made (it's also on Facebook - if Heath can show it to you on his account.) You can find the site at: </em><a href="http://claireschnakenberg.shutterfly.com/"><em>http://claireschnakenberg.shutterfly.com/</em></a><em> </em></div><br /><div><em></em></div><br /><div><em>I hope you are well and enjoying life in Florida. I'd love to hear about what's happening with you if you have some time - and I'd especially love to hear any old stories about mom you might remember! I miss her dearly, and reminisce often with Dad, Jennie, Julie and Tom. She's our biggest cheerleader now from up in heaven!! </em></div><br /><div><em></em></div><br /><div><em>Your niece , </em></div><br /><div><em>June</em></div>Jimmy's Momhttp://www.blogger.com/profile/11045751635491136842noreply@blogger.com0tag:blogger.com,1999:blog-795228517597763767.post-88708116556127818622011-03-31T23:49:00.003-04:002011-03-31T23:58:24.134-04:00One Year<span style="color:#000099;">Tomorrow is one year. It's been a blur, and I've just spent some time reading over some of my blog entries. It's like it's happened to someone else - I really feel like I was reading someone <span class="blsp-spelling-error" id="SPELLING_ERROR_0">else's</span> thoughts and feelings... Unfortunately, they were MY thoughts and feelings. I'm quite glad that I've written it down. Reflection is a powerful thing.</span> <span style="color:#000099;"></span><span style="color:#000099;">I'm very thankful for a group of women who listened to me talk about diabetes and Jimmy's one year anniversary tonight. They've been there for me for a few years now, and I can't imagine my life without them. Even when I said, "Enough about me, what's happening with all of you?" No one chimed in. I know there is so much going on in all of their lives (who ISN'T going through something?) and yet, they just listened, supported, and were genuinely interested in Jimmy's care and my well being. </span><span style="color:#000099;"></span><span style="color:#000099;">Please say a prayer for Jimmy and pray that diabetes will one day be a thing of the past. </span><span style="color:#000099;">Peace,</span> <span style="color:#000099;">June</span>Jimmy's Momhttp://www.blogger.com/profile/11045751635491136842noreply@blogger.com0tag:blogger.com,1999:blog-795228517597763767.post-25791649038494054422011-03-29T18:08:00.003-04:002011-03-31T23:49:00.284-04:00Insulin Pump Site change<p><span style="color:#000099;">Here's how we change Jimmy's insulin pump site. It gets changed every 2 days. Found the video on youtube at this link: </span><a href="http://www.youtube.com/watch?v=WNcaUtZxKJU"><span style="color:#000099;">http://www.youtube.com/watch?v=WNcaUtZxKJU</span></a><span style="color:#000099;"> So, thanks to the one who posted it - good work!! Of course, Jimmy is 6, and we do it for him... but Jenna is learning, and Jimmy will do it one day himself...</span> </p><br /><p><span style="color:#000099;">Peace, June</span></p><br /><p><br /><iframe allowfullscreen='allowfullscreen' webkitallowfullscreen='webkitallowfullscreen' mozallowfullscreen='mozallowfullscreen' width='320' height='266' src='https://www.blogger.com/video.g?token=AD6v5dyhXt2sJ2Lsa4zEiZEVyrLZBItHRyfGVaENak6Y7OGiM6NZnFxK9-JShXx7XxkYG8SLFYX5uIoS0SjkCjwl' class='b-hbp-video b-uploaded' frameborder='0'></iframe></p>Jimmy's Momhttp://www.blogger.com/profile/11045751635491136842noreply@blogger.com0tag:blogger.com,1999:blog-795228517597763767.post-91811018309413852422011-03-25T20:41:00.000-04:002011-03-25T20:42:06.821-04:00a cure...<span style="font-size:180%;color:#000099;"><strong>Jimmy's friend asked him if he will always have diabetes. Jimmy said, "No, because if people donate enough money, they will find a cure." Out of the mouths of babes... from his mouth to God's ears!!!</strong></span>Jimmy's Momhttp://www.blogger.com/profile/11045751635491136842noreply@blogger.com0tag:blogger.com,1999:blog-795228517597763767.post-32726071555943637872011-03-19T16:09:00.002-04:002011-03-19T16:22:49.403-04:00Jenna<span style="color:#333399;">I've often referred to Jenna as, "Jimmy's Other Mother". She was 5 when he was born, so she was right by my side for all that needed to be done. From the minute he was born - bottles, diapers, outfits, kisses, books, etc... You name it, she was there! She helped him learn to walk, learn his colors, numbers & letters, taught him how to write his name, how to play hide and seek, and even helped him learn how to swim!Jenna and I even studied the art of giving a successful "time out" together so that when Jimmy needed one, he would get one. Super Nanny was instrumental in that department. Jimmy is tough - or is it strong willed - or stubborn - I think I actually need a word that combines all 3 of those. It took us MONTHS in order to get Jimmy to stay on a time out for the appropriate number of minutes. If you've ever seen the show, you know where the kids BOLT off the "naughty spot" and it takes the parents close to an hour to get the kid the complete the time??? It took double that sometimes.They can be the best of buddies sometimes, and then I'll hear her say, "Jimmy, please find something else to do or you will get a time out!!!! ONE........................ TWO......................." And then you'll hear him say, "OK, I'll stop!!!" She goes back and forth between sister and mothering him. They make a pretty good team together!Sometimes, she can get him to do things I can't get him to do... today for example. My niece came down to do a project for her HS class. Her assignment was to research a childhood disease and tell the class about it. So, for part of her project, she wanted to present how Jimmy takes his insulin with the pump vs. how her brother takes insulin with shots. Her plan was to video them both and incorporate the videos into her project.One problem: Jimmy was NOT going to be video taped. He was being - ummm - still looking for that combination word for how he gets - well... he was being, let's just say, JIMMY!!!Here comes Jenna to the rescue. She came over and said, "Hey Jimmy, let's make funny faces in to the video and watch ourselves!" And that was it. He snapped out of JIMMY mode and they had 2 minutes of fun with the camera and we were able to get the project done! He wasn't in a perfect mood, but - she got him to do what my niece and I couldn't do!!! Here's the video.....</span><br /><span style="color:#333399;"></span><br /><span style="color:#333399;"></span><br /><span style="color:#333399;"> </span><a href="http://type1.shutterfly.com/pictures/8?eid=115"><span style="color:#333399;"><img src="http://cdnimages.sorensonmedia.com/2171ff52-4736-4ee2-838a-50a8c053988b/856424fdicc357443av95b2ad05c22a73e7e/file-1.jpg" width="200" /></span></a><span style="color:#333399;"> </span><p><a href="http://type1.shutterfly.com/pictures/8?eid=115"><span style="color:#333399;">Click here to view this video</span></a><span style="color:#333399;"><img height="1" src="https://os.shutterfly.com/b/ss/sflyshareprod/1/H.15/111?pageName=sharekey&c1=video&c2=blogger" width="1" border="0" /></span></p><p><span style="color:#333399;">Not the best, but he got through it, and it was all thanks to Jenna!!!!!!!!!!!!!!!!!!!</span></p><p><span style="color:#333399;">She helps with Jimmy so very much - before the pump, she was even able to give him his insulin shots - at 10 years old! Now, she's 11 and helps so much with his pump. She's learned how to count Jimmy's carbs and how to manage some of his diabetes "stuff". I'll look for a video of them in action together and add it another time - Just wanted to get this down while I had a minute. (And the reason I had a minute is because Jenna took Jimmy outside to make sure he got his exercise - they're playing basketball right now!!!) She's really the best!!!</span></p><p><span style="color:#000066;"><span style="color:#333399;">Peace,<br /></span></span><span style="color:#333399;">June</span></p>Jimmy's Momhttp://www.blogger.com/profile/11045751635491136842noreply@blogger.com0tag:blogger.com,1999:blog-795228517597763767.post-75202779408877457972011-03-15T04:11:00.002-04:002011-03-15T04:19:32.780-04:00tooth fairy!!<strong><span style="color:#336666;">Jimmy has (or should I say had) 5 teeth on the bottom row in between the 2 pointy teeth where everyone else on the planet has just 4. </span></strong><br /><strong><span style="color:#336666;"></span></strong><br /><strong><span style="color:#336666;">Sunday, he lost the 5th one!!! </span></strong><br /><strong><span style="color:#336666;"></span></strong><br /><strong><span style="color:#336666;">A little before midnight that night, I was awakened to the sound of him whispering... He was talking in his sleep and it sounded like he was having a conversation with someone. As I listened from my room, I heard him say in such a cute little raspy whisper, </span></strong><br /><strong><span style="color:#336666;"></span></strong><br /><strong><span style="color:#336666;">"Come over here, so you can look at it closer!"</span></strong><br /><strong><span style="color:#336666;"></span></strong><br /><strong><span style="color:#336666;">I swear there is a real tooth fairy!!!</span></strong><br /><strong><span style="color:#336666;"></span></strong><br /><strong><span style="color:#336666;">Peace,</span></strong><br /><strong><span style="color:#336666;">June</span></strong>Jimmy's Momhttp://www.blogger.com/profile/11045751635491136842noreply@blogger.com0tag:blogger.com,1999:blog-795228517597763767.post-4814993471010959042011-03-12T12:03:00.007-05:002011-03-15T04:20:23.447-04:00Almost one year...<span style="font-size:130%;color:#339999;"><strong>They told me that after a year that I'd have the hang of life with Jimmy and diabetes. I don't know how I feel about that... hang of it? just when I think I have the hang of it, something changes!!! </strong></span><br /><br /><span style="font-size:130%;color:#339999;"><strong>-growth spurt</strong></span><br /><span style="font-size:130%;color:#339999;"><strong>-illness</strong></span><br /><span style="font-size:130%;color:#339999;"><strong>-rainy days</strong></span><br /><span style="font-size:130%;color:#339999;"><strong>-a lot of exercise</strong></span><br /><strong><span style="font-size:130%;color:#339999;">-lack of exercise</span></strong><br /><span style="font-size:130%;color:#339999;"><strong>-stress </strong></span><br /><span style="font-size:130%;color:#339999;"><strong>-simple carb foods</strong></span><br /><strong><span style="font-size:130%;color:#339999;">-glitch in the pump site </span></strong><br /><span style="font-size:130%;color:#339999;"><strong>-glitch in the tubing</strong></span> <div><span style="font-size:130%;color:#339999;"><strong></strong></span></div><br /><span style="font-size:130%;color:#339999;"><strong>It seems like the wind blows and there are changes and then I have to "get the hang of it" all over again.</strong></span><br /><br /><span style="font-size:130%;color:#339999;"><strong>Here's the latest blowing of the wind...</strong></span><br /><br /><span style="font-size:130%;color:#339999;"><strong>He's dropping, or should I say plummeting, at school, and then he's going high all evening. Why??? I don't know. Here's my latest instructions from the doctor:</strong></span><br /><br /><span style="font-size:130%;color:#336666;"></span><em><span style="font-size:130%;color:#336666;">I am not sure why Jimmy is dropping in school. He is actually on very little insulin for his size. He appears to be lower during school and then rise later that night. The rise and falls are also pretty quick. Some of the rises my be rebounds from lows though. I don’t want to lower his insulin to carb ratio anymore than it is already, so lets lower his basal during the school day. We can go from 10am – 3 pm at 0.25. This should help. The sensor will also help see what is going on. Also always try to give some insulin prior to meals to help better match up insulin and food doses. The only way to tell If he needs less basal would be to do a basal test…<br /><br />feed him breakfast and cover foods and test him in 3 hours.<br />If the number is between 100-200 start the test<br />Do not give any food or insulin during this time<br />skip lunch and snacks… no food until 3pm<br />If he goes low, treat the low blood sugar and stop the test.<br />He should be able to maintain his blood sugar between this time. If not, then basal needs to be changed<br /><br />Suggested dose changes<br /><br />12am 0.225<br />3am 0.15<br />7am 0.325<br />10am 0.25<br />3pm 0.325</span></em><br /><br /><br /><span style="font-size:130%;color:#339999;"><strong>There it is. Anyone care to translate??? How am I supposed to NOT feed him from morning on??? </strong></span><br /><br /><span style="font-size:130%;color:#339999;"><strong>The Molly Center thinks I'm doing great with the managing of his diabetes and the pump. </strong></span><br /><br /><span style="font-size:130%;color:#339999;"><strong>I feel like I know nothing.</strong></span><br /><br /><span style="font-size:130%;color:#339999;"><strong>Someone asked me recently just what I have to do for Jimmy... Here's a list of things that have to be done to manage diabetes:</strong></span><br /><br /><span style="font-size:130%;color:#339999;"><strong>-12 a.m. testing, giving a bolus if needed (correcting a high blood sugar), or waking him up to make him drink juice if he's low (the cake gel is a mess and just dribbles out of his mouth.)</strong></span><br /><br /><span style="font-size:130%;color:#339999;"><strong>-3 a.m. testing (same as above if necessary)</strong></span><br /><br /><span style="font-size:130%;color:#339999;"><strong>-changing his insulin pump site every 2 days (can take up to an hour if he's not in the mood, which is the usual case). </strong></span><br /><br /><span style="font-size:130%;color:#339999;"><strong>-uploading his pump information to the carelink site (takes about 20 minutes, and I usually do it while he's in the shower since his pump is off at that time - but that doesn't include interpreting the data... see below)</strong></span><br /><br /><span style="font-size:130%;color:#339999;"><strong>-trying to interpret his carelink information -see older post about the reports carelink generates - it's like reading top secret encoded scattergram type documents. I study them to try to find out what steps to take to fix the trends he's having - but I still have to contact the Molly Center for the final word...</strong></span><br /><br /><span style="font-size:130%;color:#339999;"><strong>-making sure his supplies are up to date - which reminds me, he needs more insulin viles</strong></span><br /><br /><span style="font-size:130%;color:#339999;"><strong>-daily communication - even several times a day - with his wonderful school nurse to figure out a course of action. Even though the pump does the math for us, it's not simple... there's a human factor involved. Less insulin if he's going to be active, more insulin if it's a rainy day and they're going to be inside and inactive all day. Trying to compensate for the lows he has. And when we think we have it, and we think the next reading will be perfect, his blood glucose number does something totally opposite of what we think it's going to do... You know the expression "it takes a village" well, it can't be just one person monitoring this - I thank God for Jimmy's school nurse and how she helps me manage his diabetes.</strong></span><br /><br /><span style="font-size:130%;color:#339999;"><strong>-counting carbs. not as easy as it sounds. Every time something goes in his mouth, I have to determine how much and how many carbs. I know it's 30 carbs for a regular sized banana - then what if he doesn't eat the last 2 bites??? If it's 22 carbs for 15 pretzels, what if he eats 22 pretzels - or better yet, what if he forgot to stop at 15 pretzels and I didn't notice him going back for more??? not to mention the difference between complex and simple carbohydrates...</strong></span><br /><br /><span style="font-size:130%;color:#339999;"><strong>-putting up with the whims of a 6 year old. one minute he tests himself with out incident, and the next minute he hates testing and throws the tester across the room. I still remember the darkness of the closet that first few weeks of his diagnosis when I had to search for him and finally found him in his safe place (they both used to play in my closet, so he was always happy there...) He doesn't cry about it anymore, but he still gets angry and hates testing and getting his new pump site sometimes...</strong></span><br /><br /><span style="font-size:130%;color:#339999;"><strong>-managing his appointments - of which there are MANY - every 4 months to the endocrinologist, pediatric opthomologist, pediatrician, dentist, pediatric dermatologist, neurosurgeon, support groups, pump classes, etc...</strong></span><br /><br /><span style="font-size:130%;color:#339999;"><strong>-Molly Center communication - just about weekly - to identify the trends and make modifications</strong></span><br /><br /><span style="font-size:130%;color:#339999;"><strong>That's all I can think of at the moment...</strong></span><br /><br /><span style="font-size:130%;color:#339999;"><strong>Then there's life in general - full time work, family, house, diabetes - doesn't leave time for much else... </strong></span><br /><br /><span style="font-size:130%;color:#339999;"><strong>So thankful that I have wonderful angels helping me to help Jimmy. Maybe - just maybe - I'll get the hang of it one day.</strong></span><br /><strong><span style="font-size:130%;color:#339999;">Peace, </span></strong><br /><strong><span style="font-size:130%;color:#339999;">June</span></strong>Jimmy's Momhttp://www.blogger.com/profile/11045751635491136842noreply@blogger.com0tag:blogger.com,1999:blog-795228517597763767.post-32270038846672844202011-03-12T11:23:00.002-05:002011-03-12T11:34:11.128-05:00<strong><span style="font-size:130%;color:#339999;">I'm thankful for a great friend who took Jimmy for hours yesterday and allowed me a break! Thank you so very much!!! </span></strong><br /><strong><span style="font-size:130%;color:#339999;"></span></strong><br /><strong><span style="font-size:130%;color:#339999;">The pump is a very good thing. </span></strong><br /><strong><span style="font-size:130%;color:#339999;"></span></strong><br /><strong><span style="font-size:130%;color:#339999;">Peace, </span></strong><br /><strong><span style="font-size:130%;color:#339999;">June</span></strong>Jimmy's Momhttp://www.blogger.com/profile/11045751635491136842noreply@blogger.com0tag:blogger.com,1999:blog-795228517597763767.post-75777890140037509192011-03-03T20:59:00.002-05:002011-03-03T22:07:47.420-05:00eye doctor visit<span style="color:#000099;">one word: Phew! His eyes are just about perfect!!! </span><br /><span style="color:#000099;"></span><br /><span style="color:#000099;">Jenna had amblyopia and was diagnosed at 4. Her brain wasn't computing images viewed by her right eye - it was very farsighted, had a astigmatism, and had something called asymotropia (where the images sent to the brain came in sort of skewed)... all 3 resulted in the brain deciding not to use the images coming from that eye anymore. It was shutting down. Since we caught it at the age of 4, it was "fixable." Had it not been caught by the age of 6, it would have been very hard to correct... So, thanks to the book, "Big Bird Goes to the Doctor", we realized that Jenna couldn't see well out of her right eye. A trip to the school nurse where I used to work in Wayne confirmed that we needed to get her to a Pediatric Opthamologist immediately. Otherwise, it wouldn't have been caught until she had a "separate eye exam" which doesn't happen usually until 1st grade - where it would have been much harder...</span><br /><span style="color:#000099;"></span><br /><span style="color:#000099;">After over a year of patching her LEFT eye (to strengthen her right eye), and 6 years of glasses to maintain the strength she gained in that eye, she NO LONGER NEEDS GLASSES!!!!! Evidently, how your eyes are at 10 with this condition, is how your eyes are going to be. Pretty good, huh? Although, she was so very cute with her glasses at such a young age!!!</span><br /><span style="color:#000099;"></span><br /><span style="color:#000099;">So, since she had eye issues, they suggested we take Jimmy to the Pediatric Opthamologist beginning at the age of 2. And now with Type 1 diabetes, it's imperative that he have regualr eye dr. visits... </span><br /><span style="color:#000099;"></span><br /><span style="color:#000099;">He's always been extremely light sensitive - so sensitive that it would cause him to close his eyes or look down, wince, cry, grab my sunglasses, etc... The doctor has always said that it will get better with age... but that some people are just wired that way. I asked him again today, and he repeated the same thing. </span><br /><span style="color:#000099;"></span><br /><span style="color:#000099;">Jimmy went through the entire exam (for the first time while sitting BY HIMSELF on the chair (in the past, he always needed to sit on my lap!) It went well, but the dr. needed to use the dreaded drops to get a better look... Jenna and I gasped... would this mean glasses??? what more could this kid endure???</span><br /><span style="color:#000099;"></span><br /><span style="color:#000099;">So... dilation of the eyes complete, and now time for the LIGHT IN THE EYES TO LOOK INSIDE... YIKES!!! He clenched his eyes tight, squirmed in his seat, and used his hands to thwart the doctor's light away... luckily, JImmy failed!! The doctor was able to catch a glimpse of what he needed to see, and Jimmy's eyes are PERFECT!!! </span><br /><span style="color:#000099;"></span><br /><span style="color:#000099;">We talked at length about what to expect as far as Jimmy's eyes go... He felt strongly, that, the better we take care of Jimmy now, and the better control he has over his diabetes growing up, the better his eyes will have the opportunity to be healthy through his life.</span><br /><span style="color:#000099;"></span><br /><span style="color:#000099;">We're on the clock. God, please help me kick the daylights out of highs and lows. He's 6. He has NO idea of how to care for himself. It's on us. not him.</span><br /><span style="color:#000099;"></span><br /><span style="color:#000099;">We're on it. Please pray for the strength for us to keep on it.</span><br /><span style="color:#000099;"></span><br /><span style="color:#000099;">Peace,</span><br /><span style="color:#000099;">June</span>Jimmy's Momhttp://www.blogger.com/profile/11045751635491136842noreply@blogger.com0tag:blogger.com,1999:blog-795228517597763767.post-21165491079659783682011-02-23T23:14:00.000-05:002011-02-24T10:19:44.486-05:007.0!!!<span style="color:#3366ff;"><strong>We went yesterday morning to Dr. A., (the endocrinologist) for his every 4 month appt. I was nervous and excited at the same time!!! Really looking forward to his a1c reading - keep your fingers crossed for below an 8 - or close to a 7 would be great!!! (kind of like a hemoglobin test, but looking for diabetes high blood sugar markers...)</strong></span><br /><span style="color:#3366ff;"><strong></strong></span><br /><span style="color:#3366ff;"><strong>So, we've got Jimmy's results!!!</strong></span><br /><span style="color:#3366ff;"><strong>We're at a 7.0 A1C... I feared it would be below a 7 with the lows lately, but... I'll take it! Without the lows, it would have been a 7.5 ish - Pretty good!!! Of all of his readings, he's got 14% that are in the low range. They want it to be only 5% or under. We just changed a bunch of things - one being that we're not going to correct at the 10 a.m. snack anymore (regardless of whether or not he was corrected for breakfast.) </strong></span><br /><span style="color:#3366ff;"><strong><br />We also changed overnight basal rate as well as the night time snack bolus. We'll see what this brings!! All of which are an easy fix for any md professional, but ALL NEW TO US!!!<br /><br />On a positive note, he grew over 3 inches since his appt in November!!! Woohoo!!! Also gained 3 pounds!!! Woohoo!!! We saw Dr. Ay instead of Ai... She was very pleasant, but Rachel had already told us everything we needed to know and basically had already recommended all of the changes the dr. was going to make!! They've really got a gem in Rachel - something about her is just quite super hero -ish!!! I couldn't imagine going through this without her!!!<br /><br />Got an appt for Jimmy w/ the eye doctor on March 3rd... Keeping my fingers crossed that it goes well! He's been monitored since he was 2 since Jenna had "ambliopia" if thats how it's spelled... But now, it's more important than ever to make sure his vision is ok... He seems to be more light sensitive than ever (he's always been light sensitive with his blue eyes...).<br />Started communicating with people on "juvenation" which is a blog site w/ JDRF. Even got a new follower!!! Will contact them as soon as I get a moment to breathe...</strong></span><br /><span style="color:#3366ff;"><strong></strong></span><br /><span style="color:#3366ff;"><strong>One more thing... Jim complained to the dr. that I don't sleep - and inquired how to fix that...</strong></span><br /><span style="color:#3366ff;"><strong>Dr. Ay more or less agreed that it was ok for me to stay up until midnight to test him and that one of us test him at 3a.m. There's no other way... It's awful, but necessary... There went Jim's theory that sleep was more important... maybe for the kids, but not for us. We gave up our rights when we had the kids. What's some more grey hair, right??? I'm willing, and after last night, I think he is, too.</strong></span><br /><span style="color:#3366ff;"><strong></strong></span><br /><span style="color:#3366ff;"><strong>You see, last night, I decided to retire at about 10:30 - even though I wanted to stay up and test him at midnight. I told Jim that Jimmy needed to be tested at midnight and at 3a.m. Since he told me that he felt it was important that we all get our sleep... I put it in fate's hands. I told him where the glucagon was, gave him the tester, and went to sleep (although I didn't sleep very well).</strong></span><br /><span style="color:#3366ff;"><strong></strong></span><br /><span style="color:#3366ff;"><strong>He woke up at 3 a.m. and tested Jimmy. He was in the 300's. YIKES. He had to wake me up to find out what to do, and wound up staying awake for the next hour on his own, worried, about what the next reading would be...</strong></span><br /><span style="color:#3366ff;"><strong></strong></span><br /><span style="color:#3366ff;"><strong>In the meantime, a midnight reading would have revealed a high, and we could have avoided the 3am high.</strong></span><br /><span style="color:#3366ff;"><strong></strong></span><br /><span style="color:#3366ff;"><strong>Lesson learned. I'm going up soon to test him at midnight - at Jim's request (he doesn't want a repeat...). If I test him at 12, then he will hopefully be fine at 3am.... At least, more often than not...</strong></span><br /><span style="color:#3366ff;"><strong></strong></span><br /><span style="color:#3366ff;"><strong>We'll get it right - just over nights is where it's at now...</strong></span><br /><span style="color:#3366ff;"><strong></strong></span><br /><span style="color:#3366ff;"><strong>Totally looking into the sensor. Better nights to be had... Details to come!!!</strong></span><br /><span style="color:#3366ff;"><strong>Peace,<br />June</strong></span>Jimmy's Momhttp://www.blogger.com/profile/11045751635491136842noreply@blogger.com1tag:blogger.com,1999:blog-795228517597763767.post-87551156653665851492011-02-21T15:54:00.000-05:002011-02-21T19:27:59.967-05:00Alcohol wipes...<span style="font-size:130%;"><strong><span style="font-family:trebuchet ms;color:#336666;">I might be the worst mother in world... </span></strong><br /><strong><span style="font-family:trebuchet ms;color:#336666;"></span></strong><br /><strong><span style="font-family:trebuchet ms;color:#336666;">He was told to grab his tester before we got into the car to go meet his friend for lunch and a movie today. We were almost there when I asked him if he wanted to test in the car or at the restaurant. </span></strong><br /><strong><span style="font-family:trebuchet ms;color:#336666;"></span></strong><br /><strong><span style="font-family:trebuchet ms;color:#336666;">He forgot his tester. </span></strong><br /><strong><span style="font-family:trebuchet ms;color:#336666;"></span></strong><br /><strong><span style="font-family:trebuchet ms;color:#336666;">Not the end of the world -- we weren't going to be too late, but it was just a pain. Note to self - always check that he has it - I usually do, but I guess my brain is on vacation mode this week!</span></strong><br /><strong><span style="font-family:trebuchet ms;color:#336666;"></span></strong><br /><strong><span style="font-family:trebuchet ms;color:#336666;">So, now we're back on our way... He opted to test himself before the restaurant so his friend didn't see him - sometimes he wants you to watch, and other times he doesn't want to be seen testing... maybe he just wanted privacy - no big deal...</span></strong><br /><strong><span style="font-family:trebuchet ms;color:#336666;"></span></strong><br /><strong><span style="font-family:trebuchet ms;color:#336666;">We've been having an issue lately with him testing. He simply doesn't want to. Poor kid. We're looking into the sensor that will monitor his levels and will mean less testing, but in the meantime, he still has to test at least 6 times a day. </span></strong><br /><strong><span style="font-family:trebuchet ms;color:#336666;"></span></strong><br /><strong><span style="font-family:trebuchet ms;color:#336666;">Another glitch is that - when he tests, he hates using an alcohol wipe. It's faster (and lazier) to just test and then wipe the blood on a tissue (or his shirt, or the tester case, etc...) Then, I noticed that when I <em>made</em> him use a wipe, he'd wipe one finger and use another, so he didn't have to wait for it to dry. His school nurse noticed as well... he's a stinker, but it needs to be done the right way. It's not blowing a nose, it's testing BLOOD. The alcohol wipe is necessary. </span></strong><br /><strong><span style="font-family:trebuchet ms;color:#336666;"></span></strong><br /><strong><span style="font-family:trebuchet ms;color:#336666;">It came to a head today. </span></strong><br /><strong><span style="font-family:trebuchet ms;color:#336666;"></span></strong><br /><strong><span style="font-family:trebuchet ms;color:#336666;">We were in the car on the way to lunch and as I mentioned, he wanted to test before we got there. So, I reminded him to use a wipe. He said he did, and gave me the tester. I asked him to give me the wipe so I could put it with the garbage. He said that he already shoved it in the pocket of the seat. I told him to get it and give it to me...</span></strong><br /><strong><span style="font-family:trebuchet ms;color:#336666;"></span></strong><br /><strong><span style="font-family:trebuchet ms;color:#336666;">As a teacher, I know what it looks like when a child is looking in their backpack or desk for a homework assignment that <em>doesn't exist</em>. This wipe he was looking for clearly didn't exist. He lied to me! He eventually admitted that he hadn't used a wipe after all!</span></strong><br /><strong><span style="font-family:trebuchet ms;color:#336666;"></span></strong><br /><strong><span style="font-family:trebuchet ms;color:#336666;">I wanted to turn around and bring him home - skip lunch and the movie as his punishment, but would that have punished his friend who was waiting for him???</span></strong><br /><strong><span style="font-family:trebuchet ms;color:#336666;"></span></strong><br /><strong><span style="font-family:trebuchet ms;color:#336666;">Here's why I feel like the worst mom that ever lived. I'm punishing him for lying, but is he going to be mad at me for it (which would be fine) or is he going to be pissed every time he has to test himself? I fear I made the wrong choice to punish him (he lost tv for the rest of the day). </span></strong><br /><strong><span style="font-family:trebuchet ms;color:#336666;"></span></strong><br /><strong><span style="font-family:trebuchet ms;color:#336666;">The rest of the way there, I lectured him on why it's important to use a wipe, and that his diabetes doctor would not be very happy if he found out that he wasn't doing the right thing - the healthy thing - He said he would do the right thing.</span></strong><br /><strong><span style="font-family:trebuchet ms;color:#336666;"></span></strong><br /><strong><span style="font-family:trebuchet ms;color:#336666;">He's 6. I know. but the diabetes MUST be taken care of to a "t" if he's to live his life without complications. Can he have candy and ice cream and forget to test here and there??? Yes, but if it's such a simple thing such as using a stupid alcohol wipe - I have to win that battle, right??? </span></strong><br /><strong><span style="font-family:trebuchet ms;color:#336666;"></span></strong><br /><strong><span style="font-family:trebuchet ms;color:#336666;">I just feel so bad for him that it's a battle that he even has to have.</span></strong><br /><strong><span style="font-family:trebuchet ms;color:#336666;">Peace,</span></strong><br /><strong><span style="font-family:trebuchet ms;color:#336666;">June</span></strong></span>Jimmy's Momhttp://www.blogger.com/profile/11045751635491136842noreply@blogger.com1