Jimmy got his pump yesterday! I'll post more details on later today or during the week, but overall, it was going great up until we actually had to insert the "cannula". We practiced first - Jimmy and Jim did it to the kangaroo they had first, then I did it to Jimmy's cousin, then Jenna and my sister did it to me. It's quick, painless, and the only thing you sense is the small mechanism being pressed to your skin, then you hear a click, and I actually felt nothing! Joey (cousin) said that the needles him and Jimmy currently use for their insulin is worse than the insertion of the cannula (that's that the little tube that stays under his skin connected to a long thin tube that connects to the pump which holds the insulin. So, when it was time for Jimmy's turn, lets just say that it was a traumatic experience for all involved. He resisted so strongly, loudly and physically, that what I really wanted to do was scoop him up and hug him and take him home. But I know the pump will be better for him in the long run. I had to hold back my tears while I was holding him down (and the nurse and Jim and Joey as well.) After about 10 minutes of that, we got it in, and he continued to sob and scream for an hour all while trying to rip out the site. It was horrible... Until I took him to blockbuster to get a movie and he conned me into 3 movies AND popcorn AND a diet coke!!! I think if he had asked for a pony I would have caved, too.
Today, he's fine, and he's actually entering the numbers into the pump and delivering the "insulin" which is actually saline for the next 5 days while we learn the ins and outs and while simultaneously giving him his real shots.
More later... I'm off to get a few last minute Christmas items!!
Merry Christmas!
Peace,
June
Friday, December 24, 2010
Monday, December 20, 2010
It's been a while...
Oh my goodness - it's only 3 days until the pump! So much is going on lately, that it's been over a month since my last post.
Here are some updates via emails to family and friends...
November 8: email to family & friends - see the photos!!!
Jimmy's Kindergarten Photo!! (Can't believe he's 6!!)Enjoy! Jenna's 5th grade photo!! She'll be 11 in January!! Where does the time go???
November 15: email to the parents in charge of the Winter Wonderland event (after Jimmy had a disastrous time at the Halloween Part event...
Hi there!
Jenna and I just had a long talk with Jimmy, and he really wants to go to Winter Wonderland -- and promises to not get scared and want to leave like he did at the Halloween Party!!!
I still feel so badly about having to leave when he was having a "melt down". I guess he just got overwhelmed... So sorry about having to bring him home that night, and as a result, not be able to finish helping out at the event.
So, we're going to attempt this again... Both of my kids (Jenna and Jimmy) are going this time. Jenna says she will take care of him (she has a knack for that), so that I can actually volunteer!! I think it will work this time (keeping my fingers crossed, though!)
Sign me up to volunteer, but if you could make it something flexible I'd really appreciate it. I don't want to leave a table unattended or to leave someone without help in the event he has a meltdown again (or low or high blood sugar and needs me). Also, if you could make it so that I could volunteer a little after it begins, so that I can make sure Jimmy is acclimated, and "good to go" before I leave him with Jenna so I can help out, that would be great. (Sorry for all the conditions... I really don't mean to be a pain - but if Jimmy is "high" or "low" with his blood glucose numbers, it affects his demeanor and disposition... it could be the difference between running smoothly or a disaster...)
Thanks so much in advance!
I'm sending in the form and check with Jenna tomorrow.
Thanks for all you do for the kids!
June
Jenna and I just had a long talk with Jimmy, and he really wants to go to Winter Wonderland -- and promises to not get scared and want to leave like he did at the Halloween Party!!!
I still feel so badly about having to leave when he was having a "melt down". I guess he just got overwhelmed... So sorry about having to bring him home that night, and as a result, not be able to finish helping out at the event.
So, we're going to attempt this again... Both of my kids (Jenna and Jimmy) are going this time. Jenna says she will take care of him (she has a knack for that), so that I can actually volunteer!! I think it will work this time (keeping my fingers crossed, though!)
Sign me up to volunteer, but if you could make it something flexible I'd really appreciate it. I don't want to leave a table unattended or to leave someone without help in the event he has a meltdown again (or low or high blood sugar and needs me). Also, if you could make it so that I could volunteer a little after it begins, so that I can make sure Jimmy is acclimated, and "good to go" before I leave him with Jenna so I can help out, that would be great. (Sorry for all the conditions... I really don't mean to be a pain - but if Jimmy is "high" or "low" with his blood glucose numbers, it affects his demeanor and disposition... it could be the difference between running smoothly or a disaster...)
Thanks so much in advance!
I'm sending in the form and check with Jenna tomorrow.
Thanks for all you do for the kids!
June
(NOTE - he couldn't handle this event either - poor kid!)
November 18: email to the Pupil Assistant Counselor, Jimmy's Teacher and Nurse
Hi there,
My son Jimmy (in Mrs. R's Kindergarten class) had somewhat of a meltdown today.
It's happened a few other times as well...
The first time it happened was for Kindergarten Orientation in May. He wouldn't go into the classroom for the visit. My husband went with him, while I stayed for the presentation. It was quite a scene... I think two teachers were on hand to help if I remember correctly. He cried, refused to talk, got real stubborn etc... His blood sugar was high which can make him a bit agitated, but I'm not sure that was the reason...
The next time I remember it happening was for the visitation day in August, when he was supposed to go to Mrs. R's class while the parents stayed downstairs and talked with Mr. H. He refused to go unless I went with him, and even then he refused to participate.
It happened in October in school - I can't remember the circumstances, but maybe Danielle or Andrea can fill you in?
And then today. He woke up on the wrong side of the bed, and didn't talk to me all morning. His blood sugar was a tad high, but I don't think this was diabetes related. I tried to drop him off as usual (still hadn't talked to me yet) and he just clung to me to the point where I had to bring him to Andrea. I heard him crying all the way down the hall when I left... It's as if something's wrong, but he doesn't know what it is... I don't know if he can't communicate with me what's wrong, or if he won't.
I wasn't in the classroom today, but I'm sure it was extremely disruptive to all involved. I don't have a reason as to why it was even sparked...
I'm emailing you both since I'm not sure who takes care of Roosevelt Kindergartners...
If you have any strategies, or any information on how to help Jimmy with this, I'd really appreciate it. If you can take some time with meet with me, I'd really appreciate it. Before school, after school, lunch, prep, - you name it.
Thanks so much in advance!
June Karpowich
My son Jimmy (in Mrs. R's Kindergarten class) had somewhat of a meltdown today.
It's happened a few other times as well...
The first time it happened was for Kindergarten Orientation in May. He wouldn't go into the classroom for the visit. My husband went with him, while I stayed for the presentation. It was quite a scene... I think two teachers were on hand to help if I remember correctly. He cried, refused to talk, got real stubborn etc... His blood sugar was high which can make him a bit agitated, but I'm not sure that was the reason...
The next time I remember it happening was for the visitation day in August, when he was supposed to go to Mrs. R's class while the parents stayed downstairs and talked with Mr. H. He refused to go unless I went with him, and even then he refused to participate.
It happened in October in school - I can't remember the circumstances, but maybe Danielle or Andrea can fill you in?
And then today. He woke up on the wrong side of the bed, and didn't talk to me all morning. His blood sugar was a tad high, but I don't think this was diabetes related. I tried to drop him off as usual (still hadn't talked to me yet) and he just clung to me to the point where I had to bring him to Andrea. I heard him crying all the way down the hall when I left... It's as if something's wrong, but he doesn't know what it is... I don't know if he can't communicate with me what's wrong, or if he won't.
I wasn't in the classroom today, but I'm sure it was extremely disruptive to all involved. I don't have a reason as to why it was even sparked...
I'm emailing you both since I'm not sure who takes care of Roosevelt Kindergartners...
If you have any strategies, or any information on how to help Jimmy with this, I'd really appreciate it. If you can take some time with meet with me, I'd really appreciate it. Before school, after school, lunch, prep, - you name it.
Thanks so much in advance!
June Karpowich
Response from his teacher:
I just was working with him and we talked a little. He said he wanted his mom. He said he was not feeling good.
I told him that that it is ok to want your mom when you don't feel good but you have to use your words and that he cant get upset how he did because we don't know how to help him. He smiled and said ok. But I would love for us to have a plan on what to do and see where it is coming from.
I told him that that it is ok to want your mom when you don't feel good but you have to use your words and that he cant get upset how he did because we don't know how to help him. He smiled and said ok. But I would love for us to have a plan on what to do and see where it is coming from.
November 24: email sent to the same people above after a productive and wonderful meeting
Thank you so very much for taking the time for Jimmy yesterday. I appreciate your insights, suggestions and help!
Last night, he woke up at about midnight, called for me, and wanted a drink of water... He's got bunk beds, so he asked me to stay for a minute. He went right back to sleep, and evidently so did I... I woke up an hour or so later to the sound of him grinding his teeth... He did it a lot... It's an awful sound.
So, I did exactly what I'm not supposed to do - I "googled" it this morning, and here's the first thing I read...
1. Stress
Stress is the most common reason for bruxism. Most doctors suppose that stress is the primary cause of teeth grinding during sleep. Stress can disrupt a person's sleeping cycle. If a particular sleeping pattern is disrupted, the person ends up clenching their teeth unconsciously and intermittently during sleep. This is where a lot of researchers are currently focusing on, as this explanation is the one most common.
2. Frustration and suppressed anger
There are many instances that a person clenches his fist or teeth if he is very angry with somebody or something. Many psychologists believe that this is the reason why people clench their teeth during the day. Suppressed anger is wrath a person can't let out. This can be quite hard to manage.
I had to google it, huh??? According to webmd, it can also me mal-aligned teeth as well. I'll bring him to the dentist (we're due to go in December or January for our regular cleanings.) But with Jimmy's episodes lately, I'm wondering if it's the "stress/frustration & suppressed anger."
In the meantime, do any of you have experience in the "teeth grinding" department? Am I being overly hyper being that it was the first time I heard it?
The Social Worker at the Molly Center left me a message yesterday, then I left her a message... we're playing phone tag I guess. I'll call again today.
I'll keep you posted.
In the meantime, when is the next "Primary Project" due to start, and is it an appropriate next step for him?
Thanks again so much for all you're doing for Jimmy! And Danielle, sounds like Zippy was a hit yesterday! Like it was tailor made for Jimmy! He didn't tell me anything about it (but he's usually very tight lipped about his day anyway.) But from your email, it really sounds like you got through to him! What a great program!! (NOTE - email below about Zippy)
Thanks so much
June
Last night, he woke up at about midnight, called for me, and wanted a drink of water... He's got bunk beds, so he asked me to stay for a minute. He went right back to sleep, and evidently so did I... I woke up an hour or so later to the sound of him grinding his teeth... He did it a lot... It's an awful sound.
So, I did exactly what I'm not supposed to do - I "googled" it this morning, and here's the first thing I read...
1. Stress
Stress is the most common reason for bruxism. Most doctors suppose that stress is the primary cause of teeth grinding during sleep. Stress can disrupt a person's sleeping cycle. If a particular sleeping pattern is disrupted, the person ends up clenching their teeth unconsciously and intermittently during sleep. This is where a lot of researchers are currently focusing on, as this explanation is the one most common.
2. Frustration and suppressed anger
There are many instances that a person clenches his fist or teeth if he is very angry with somebody or something. Many psychologists believe that this is the reason why people clench their teeth during the day. Suppressed anger is wrath a person can't let out. This can be quite hard to manage.
I had to google it, huh??? According to webmd, it can also me mal-aligned teeth as well. I'll bring him to the dentist (we're due to go in December or January for our regular cleanings.) But with Jimmy's episodes lately, I'm wondering if it's the "stress/frustration & suppressed anger."
In the meantime, do any of you have experience in the "teeth grinding" department? Am I being overly hyper being that it was the first time I heard it?
The Social Worker at the Molly Center left me a message yesterday, then I left her a message... we're playing phone tag I guess. I'll call again today.
I'll keep you posted.
In the meantime, when is the next "Primary Project" due to start, and is it an appropriate next step for him?
Thanks again so much for all you're doing for Jimmy! And Danielle, sounds like Zippy was a hit yesterday! Like it was tailor made for Jimmy! He didn't tell me anything about it (but he's usually very tight lipped about his day anyway.) But from your email, it really sounds like you got through to him! What a great program!! (NOTE - email below about Zippy)
Thanks so much
June
December 8: email to Jenna's softball coach - we just can't do everything...
Hi Coach, It looks like a great opportunity, but unfortunately I think we have to pass...We're beginning Jimmy on the insulin pump on December 23rd which, from what we understand, is going to take some getting used to - but will be much better in the long run. We just can't commit at this time...
December 15: email to the nurse in charge at the Molly Center and the pump rep (Molly's brother)
Hi Rachel & Matt,We're so excited to start the pump! It came in the mail and Jimmy was so excited to open up the box... He's nervous, too - but I guess that is to be expected. Rebecca came to Jimmy's school (she's wonderful!) and trained his nurse, Andrea (and her back up nurses - which was really good since Andrea fractured her foot and will be out for 3-4 weeks!) We're in a wonderful district, so lucky for us that they love Jimmy and were willing to stay after school and learn all they need to know!Rachel, We'll be there on the 23rd at either 2 or 3 pm, and I can't remember the 2nd appt we made for a few days after that.Would you be so kind as to check and let us know?Thanks so much in advance, and Happy Holidays!June & Jim Karpowich
Response from Matt:
Hi June-
Awesome news...I am so happy that Jimmy was excited when he opened it. Also, Rebecca did tell me that she went to the school for an education session, fantastic. We can get Andrea up to speed when she is better.
I look forward to the successes that Jimmy will have on the pump!
Thanks again. Please do not hesitate to call me or email me with anything.
Matt
Awesome news...I am so happy that Jimmy was excited when he opened it. Also, Rebecca did tell me that she went to the school for an education session, fantastic. We can get Andrea up to speed when she is better.
I look forward to the successes that Jimmy will have on the pump!
Thanks again. Please do not hesitate to call me or email me with anything.
Matt
Response from Rachel:
Good Morning,
So happy James is into this! I dont think we made a official appt for the insulin start. It can be betweem the 27th-30th. We can wait to see how he does on Thursday! Unless you have an idea of when you want to come back. I would give him at least the 5 days on saline to get used to the pump! The only day i would not be available is the morning of the 29th (Wednesday) But OK in the afternoon if that is the day you want.
Thanks
Rachel
Good Morning,
So happy James is into this! I dont think we made a official appt for the insulin start. It can be betweem the 27th-30th. We can wait to see how he does on Thursday! Unless you have an idea of when you want to come back. I would give him at least the 5 days on saline to get used to the pump! The only day i would not be available is the morning of the 29th (Wednesday) But OK in the afternoon if that is the day you want.
Thanks
Rachel
So, here we are... The saga continues - we're so very nervous and excited about the pump on Thursday!
Peace,
June
Thursday, November 4, 2010
Pump Dreams!!!
Here's an email I wrote to our Minimed rep (Matt, a.k.a. Molly's brother) and Jimmy's nurse/manager at the Molly Center:
Hi again Matt,
It was great to see you today! Thanks so much for coming and showing us the pump - we're all on board! Even on this rainy and dismal day, you managed to bring some sunshine with you! We are so hopeful that this is going to be so beneficial for Jimmy and everyone around him! You're like our very own super hero!! Thanks again for everything!! Looking forward to our future with Medtronic!!!
Hi Rachel,
Thank you so very much for taking the time to talk with us at the Halloween party! Even in the party setting with your Halloween costume and all, you managed to listen, reassure us, and fix Jimmy's highs that he's been having! We appreciate your willingness to put your "work hat" on and help us!
Jimmy is finally over his bouts of illnesses (cold and ear infection in September, and cold/cough/sinus infection in October.) His numbers were ridiculous, and a combination of your magic and Jimmy feeling better, his numbers are back on track! You're a combination of a genius and an angel all wrapped into one!! Thank you so much for your help and working your magic!
We're giving 8 units of Levemir in the a.m. and 1 unit at night. We also lowered the carb ratio to 35 in the a.m. And although we were nervous wrecks, Halloween proved to be not too bad! Looking at his 30 day and his 7 day average, you can see he's doing much better: 30 day average was 238 as compared to his 7 day average of 185! Still not wonderful... so now we're ready for the pump!!!!!
As you can see from above, we met with Matt, and we're ready to go with the Medtronic Minimed!!! Our ideal start date is December 23rd. Since we're teachers, that will give us 10 days of getting the hang of it before going back to school. Is there any way this can work? Matt mentioned to ask about a training date. Can you fit us in so we can be ready for our target date?
Matt has our insurance information, so he's starting on that end... Let us know what we need to do from here. Thanks so very much in advance!
Looking forward to our appointment on the 9th!
June Karpowich
We're ready!!
Peace,
June
Hi again Matt,
It was great to see you today! Thanks so much for coming and showing us the pump - we're all on board! Even on this rainy and dismal day, you managed to bring some sunshine with you! We are so hopeful that this is going to be so beneficial for Jimmy and everyone around him! You're like our very own super hero!! Thanks again for everything!! Looking forward to our future with Medtronic!!!
Hi Rachel,
Thank you so very much for taking the time to talk with us at the Halloween party! Even in the party setting with your Halloween costume and all, you managed to listen, reassure us, and fix Jimmy's highs that he's been having! We appreciate your willingness to put your "work hat" on and help us!
Jimmy is finally over his bouts of illnesses (cold and ear infection in September, and cold/cough/sinus infection in October.) His numbers were ridiculous, and a combination of your magic and Jimmy feeling better, his numbers are back on track! You're a combination of a genius and an angel all wrapped into one!! Thank you so much for your help and working your magic!
We're giving 8 units of Levemir in the a.m. and 1 unit at night. We also lowered the carb ratio to 35 in the a.m. And although we were nervous wrecks, Halloween proved to be not too bad! Looking at his 30 day and his 7 day average, you can see he's doing much better: 30 day average was 238 as compared to his 7 day average of 185! Still not wonderful... so now we're ready for the pump!!!!!
As you can see from above, we met with Matt, and we're ready to go with the Medtronic Minimed!!! Our ideal start date is December 23rd. Since we're teachers, that will give us 10 days of getting the hang of it before going back to school. Is there any way this can work? Matt mentioned to ask about a training date. Can you fit us in so we can be ready for our target date?
Matt has our insurance information, so he's starting on that end... Let us know what we need to do from here. Thanks so very much in advance!
Looking forward to our appointment on the 9th!
June Karpowich
We're ready!!
Peace,
June
Sunday, October 31, 2010
Halloween
Well, It's here... Our first Halloween with Diabetes.
Here's an explanation of one of the things we'd like to avoid (it's from an online blogger I found...):
"DKA- diabetic ketoacidosis. This is a VERY serious, life threatening condition. DKA happens when there is not enough insulin in the body. Blood sugar rises and spills over into the urine which leads to dehydration. Blood sugar rises but the body, without insulin, is unable to use the glucose for energy. The body starts to burn fat (leading to weight loss) - basically eating itself to stay alive. This also causes ketones- acidic ketone bodies - that poison the body. ... (waiting too long with DKA lands one)... in ICU. (It would mean being)...hooked up to IV fluids and an insulin drip and (no eating) until ketones come down.
Even though (one has) been eating, (they can) basically starve to death. They explained this to us this way: You're having a party and everyone is at your house and you don't have any food. So you go to the store and get lots of goodies but when you get home, you are locked out. So you go back to the store and get more food but you're still locked out. The people inside are getting really hungry and going crazy - they start eating whatever is available. Insulin is the key that converts the food you eat to energy you can use.
Let me back up a little. Type 1 Diabetes occurs when the pancreas no longer produces insulin. No one is sure why this happens. They told us that people are usually predisposed to it and it usually takes something like a virus to push you over the edge and your own immune system starts to kill off the cells that produce insulin. There is no cure (yet). Taking insulin through injections is NOT a cure - "it's life support". Type 1 diabetes does not go away or "get better" as you get older. You are insulin dependent for the rest of your life."
Wish us luck today. We need him between 80 and 150 all day. Happy Halloween... Details to come...
Peace,
June
Here's an explanation of one of the things we'd like to avoid (it's from an online blogger I found...):
"DKA- diabetic ketoacidosis. This is a VERY serious, life threatening condition. DKA happens when there is not enough insulin in the body. Blood sugar rises and spills over into the urine which leads to dehydration. Blood sugar rises but the body, without insulin, is unable to use the glucose for energy. The body starts to burn fat (leading to weight loss) - basically eating itself to stay alive. This also causes ketones- acidic ketone bodies - that poison the body. ... (waiting too long with DKA lands one)... in ICU. (It would mean being)...hooked up to IV fluids and an insulin drip and (no eating) until ketones come down.
Even though (one has) been eating, (they can) basically starve to death. They explained this to us this way: You're having a party and everyone is at your house and you don't have any food. So you go to the store and get lots of goodies but when you get home, you are locked out. So you go back to the store and get more food but you're still locked out. The people inside are getting really hungry and going crazy - they start eating whatever is available. Insulin is the key that converts the food you eat to energy you can use.
Let me back up a little. Type 1 Diabetes occurs when the pancreas no longer produces insulin. No one is sure why this happens. They told us that people are usually predisposed to it and it usually takes something like a virus to push you over the edge and your own immune system starts to kill off the cells that produce insulin. There is no cure (yet). Taking insulin through injections is NOT a cure - "it's life support". Type 1 diabetes does not go away or "get better" as you get older. You are insulin dependent for the rest of your life."
Wish us luck today. We need him between 80 and 150 all day. Happy Halloween... Details to come...
Peace,
June
JDRF Halloween Party!
Jimmy is a Woopie Cushion, and Jenna is a Twister Game! They had a blast at the JDRF Halloween party at HUMC! We got to see Matt again (Molly's brother). Turns out that he was a player on Northern Highland's basketball team, when Jim was coaching at Demarest! Quite a small world, huh??? Wish us luck on halloween!
Peace,
June
Saturday, October 16, 2010
more pump news...
Jimmy is telling everyone who will listen that he's getting the pump for his birthday!!!
He's actually getting bunk beds, which he knows, but the pump is becoming the main present in his eyes! I'm so proud of my guy!!!
We're planning on inviting the rep (hopefully Matt) over to give us the 1 on 1 demo (so Jim Sr. can see too) on Jimmy's birthday - Can't believe he'll be 6 on November 8th!
Peace,
June
He's actually getting bunk beds, which he knows, but the pump is becoming the main present in his eyes! I'm so proud of my guy!!!
We're planning on inviting the rep (hopefully Matt) over to give us the 1 on 1 demo (so Jim Sr. can see too) on Jimmy's birthday - Can't believe he'll be 6 on November 8th!
Peace,
June
The Pump!!!
GREAT Diabetes Support Group on Tuesday!!!!!
We met Matt, MOLLY'S BROTHER!!! (remember we met Molly months ago in a previous blog??? See April 20th.)
He's the rep for the Medtronic Insulin Pump, and he's not only the rep, but he's got a personal connection to helping those with Diabetes - his sister, Molly!
He's amazing, and despite having a 22 month old and a 6 month old at home, he gave us such an amazing piece of himself in the demonstration of the pump! We felt as though we had already known him and he took the time to show Jimmy whatever he wanted to see - answered all of his questions, and let him try all of the pieces of equipment - Matt was just awesome, and Jimmy seemed to make a connection with him! Even though there were other families there, it was as though we were the only ones that mattered to him!! (I suspect the other families felt a personal connection as well, but it was like we had him all to ourselves!)
I just can't believe how potentially beneficial this will be for Jimmy. He still doesn't like the shots, and always wants it in his arms (but can't have it there because of scarring from too many shots...) He'll take it in the thigh, but NEVER in the belly or backside... The pump would be one shot to insert it every 2-3 days. That's it. No more Levemir in the morning, and no more novolog shots!!!!!!!!! We still need to learn more about it, but Jimmy says when he's 6 he'll be ready for it!
Here's information from the Medtronic plus a video link to see what the pump is all about...
Why is an Insulin Pump Better Than Injections?
Why It Works Better
Pump therapy is simple. It's based on what your body does naturally - deliver small amounts of insulin all the time - and then when you eat, you deliver a little extra to cover that food (whether a single cookie or Thanksgiving Dinner!)
Here's why pumps are better than injections
No. 1: The Pump Uses Fast-Acting Insulin
If you're on injections, long-acting insulin is usually what you'll give yourself first thing in the morning. Absorption of injected long-acting insulin is extremely unpredictable. In fact, it has a variability of up to 52%.1 This is a key reason your blood sugar can vary so much from one day to the next. That single factor probably accounts for why most people on injections can't control their blood sugars well.
Pumps use fast-acting insulin which is much more predictable than long-acting insulin. It's variability is less than 3%.1 Quite a difference. And it works. That's why a pancreas only puts out fast-acting insulin. That's why pumps use fast-acting insulin.
No. 2: The Pump Delivers Insulin in micro-drops, that are continuous and accurate.
With injections, the insulin just sits there... in a little pool. Your level of activity directly affects when that insulin goes into your bloodstream. If you're just sitting at a desk, it will go into your system more slowly. But if you go for a walk or a run, it will go into your system much more quickly. This makes blood sugars even harder to control with injections!
Pumps continuously send a little bit of insulin every few minutes (like a pancreas) so you don't have this inconsistency problem. And it's a different insulin - fast-acting, predictable insulin!
No. 3: You can eat when you want.
Because you can control your insulin on a pump, YOU (not your injections) get to decide when you want to eat. You can eat when you are hungry - or not - delay or skip a meal. Have that extra piece of pie if you like - on a pump you can handle it - no problem.
No. 4: Live a more normal life
No more injections, no rigid meal scheduling, no more unpredictable insulin... this all adds up to is a more normal life.
http://www.minimed.com/products/insulinpumps/index.html
Oh, and he can even get a "Yankees" skin, or covering, for the his pump!!! I think that was what truly sold him on it!!! Say a prayer that we can begin before the new year - hoping to start over Thanksgiving - but that might be wishful thinking...
Peace,
June
We met Matt, MOLLY'S BROTHER!!! (remember we met Molly months ago in a previous blog??? See April 20th.)
He's the rep for the Medtronic Insulin Pump, and he's not only the rep, but he's got a personal connection to helping those with Diabetes - his sister, Molly!
He's amazing, and despite having a 22 month old and a 6 month old at home, he gave us such an amazing piece of himself in the demonstration of the pump! We felt as though we had already known him and he took the time to show Jimmy whatever he wanted to see - answered all of his questions, and let him try all of the pieces of equipment - Matt was just awesome, and Jimmy seemed to make a connection with him! Even though there were other families there, it was as though we were the only ones that mattered to him!! (I suspect the other families felt a personal connection as well, but it was like we had him all to ourselves!)
I just can't believe how potentially beneficial this will be for Jimmy. He still doesn't like the shots, and always wants it in his arms (but can't have it there because of scarring from too many shots...) He'll take it in the thigh, but NEVER in the belly or backside... The pump would be one shot to insert it every 2-3 days. That's it. No more Levemir in the morning, and no more novolog shots!!!!!!!!! We still need to learn more about it, but Jimmy says when he's 6 he'll be ready for it!
Here's information from the Medtronic plus a video link to see what the pump is all about...
Why is an Insulin Pump Better Than Injections?
Why It Works Better
Pump therapy is simple. It's based on what your body does naturally - deliver small amounts of insulin all the time - and then when you eat, you deliver a little extra to cover that food (whether a single cookie or Thanksgiving Dinner!)
Here's why pumps are better than injections
No. 1: The Pump Uses Fast-Acting Insulin
If you're on injections, long-acting insulin is usually what you'll give yourself first thing in the morning. Absorption of injected long-acting insulin is extremely unpredictable. In fact, it has a variability of up to 52%.1 This is a key reason your blood sugar can vary so much from one day to the next. That single factor probably accounts for why most people on injections can't control their blood sugars well.
Pumps use fast-acting insulin which is much more predictable than long-acting insulin. It's variability is less than 3%.1 Quite a difference. And it works. That's why a pancreas only puts out fast-acting insulin. That's why pumps use fast-acting insulin.
No. 2: The Pump Delivers Insulin in micro-drops, that are continuous and accurate.
With injections, the insulin just sits there... in a little pool. Your level of activity directly affects when that insulin goes into your bloodstream. If you're just sitting at a desk, it will go into your system more slowly. But if you go for a walk or a run, it will go into your system much more quickly. This makes blood sugars even harder to control with injections!
Pumps continuously send a little bit of insulin every few minutes (like a pancreas) so you don't have this inconsistency problem. And it's a different insulin - fast-acting, predictable insulin!
No. 3: You can eat when you want.
Because you can control your insulin on a pump, YOU (not your injections) get to decide when you want to eat. You can eat when you are hungry - or not - delay or skip a meal. Have that extra piece of pie if you like - on a pump you can handle it - no problem.
No. 4: Live a more normal life
No more injections, no rigid meal scheduling, no more unpredictable insulin... this all adds up to is a more normal life.
http://www.minimed.com/products/insulinpumps/index.html
Oh, and he can even get a "Yankees" skin, or covering, for the his pump!!! I think that was what truly sold him on it!!! Say a prayer that we can begin before the new year - hoping to start over Thanksgiving - but that might be wishful thinking...
Peace,
June
Monday, October 11, 2010
JDRF
Yesterday was our "River Edge Day" for Jenna and her girl scout troop to "Scare Away Diabetes" and raise awareness and donations for the cause. The girls had a booth at Memorial Park in town, and designed informational posters and painted a big sign which read, "Girl Scout Juniors Troop 1416 Scares Away Diabetes" etc... The girls gave out spider rings, held a raffle for a huge decorated pumpkin (decorated by one of the scout's own grandmothers), hosted a pumpkin painting for kids, and more to raise awareness and funds. The girls are proud to have collected over $75.00 and counting (they're waiting on a few promised donations as well.)
The other mothers of the girls in the troop and I are so proud of their accomplishment today, and it was marvelous to see them involved and taking charge for such a worthy cause! When I get pictures, I'll post them!!!
So many people (including a clown) came to the girls and told them of their diabetes experiences. The clown mentioned that she was feeling "low" and told the girls that she had to go get some carbs. I think they felt that they were really making a difference! Unfortunately, Jimmy was home sick with a cold, so he couldn't participate, but the girls did him proud! His numbers are not too bad considering he's sick again, but time will tell.
On another note, I received an invitation for the JDRF Cocktail Reception & State of the Foundation Address at the home of the Oberlander's in Oradell on November 9th. My husband and I will be honored to attend, and are thankful for the invitation. It is quite a coincidence that their home in Oradell is on the very street on which I grew up! I'm looking forward to the evening.
Peace,
June
The other mothers of the girls in the troop and I are so proud of their accomplishment today, and it was marvelous to see them involved and taking charge for such a worthy cause! When I get pictures, I'll post them!!!
So many people (including a clown) came to the girls and told them of their diabetes experiences. The clown mentioned that she was feeling "low" and told the girls that she had to go get some carbs. I think they felt that they were really making a difference! Unfortunately, Jimmy was home sick with a cold, so he couldn't participate, but the girls did him proud! His numbers are not too bad considering he's sick again, but time will tell.
On another note, I received an invitation for the JDRF Cocktail Reception & State of the Foundation Address at the home of the Oberlander's in Oradell on November 9th. My husband and I will be honored to attend, and are thankful for the invitation. It is quite a coincidence that their home in Oradell is on the very street on which I grew up! I'm looking forward to the evening.
Peace,
June
Friday, October 1, 2010
'Stand'ing Up to Diabetes
.............................................. This was in the Town News on Thursday, September 23, 2010. The kids made me so proud, and the customers were so generous!!
Way to go kids!!
Friday, September 24, 2010
JDRF
Jenna is a Girl Scout Junior again this year. For the Junior "bronze" Award, she will need to make a difference in the community this. She'll have to research, plan, and carry out something that she deems important. She can work as a whole group with the other Juniors, or in a smaller group, or with a partner, or individually.
For her bronze award idea, Jenna would like to raise more money for Juvenile Diabetes (her and Jimmy with 3 friends this summer had a lemonade stand and raised over $40 for JDRF, and it was in the paper yesterday! Adorable picture of the kids holding the money they earned at the stand.) Jenna is looking to do more. Together, her and I found an actual JDRF walk that is just like any other fundraiser/walk. It has incentive prizes - even raising only $10 can earn the first level incentive. She's willing to do it alone or with the whole group. Jenna first thought of having the walk in November for Jimmy's birthday - but that's too soon. Then she thought of April 1st since that's the day he was diagnosed. that's more manageable. She and whoever joins her from the troop have been invited to "pitch" the idea at a future Girl Scout Leader's meeting.
Jenna is so helpful with Jimmy. They're 5 years apart, so she's been involved from the start - from diapers to bottles to even now testing his blood and administering insulin shots! She is even starting to calculate how much insulin he needs on her own - and although she checks with me, she's been right every time! So grown up. Jim and I are so very proud!
I believe I hit the jackpot with my children! I couldn't be more proud.
On another note, I've applied for Jimmy and I to attend "JDRF Children's Congress" in Washington, DC in 2011. I got a call from the Northern NJ chapter of JDRF to just provide more information so they can go ahead and back me up as a potential candidate. You can find out more information at www.jdrf.org
Peace,
June
For her bronze award idea, Jenna would like to raise more money for Juvenile Diabetes (her and Jimmy with 3 friends this summer had a lemonade stand and raised over $40 for JDRF, and it was in the paper yesterday! Adorable picture of the kids holding the money they earned at the stand.) Jenna is looking to do more. Together, her and I found an actual JDRF walk that is just like any other fundraiser/walk. It has incentive prizes - even raising only $10 can earn the first level incentive. She's willing to do it alone or with the whole group. Jenna first thought of having the walk in November for Jimmy's birthday - but that's too soon. Then she thought of April 1st since that's the day he was diagnosed. that's more manageable. She and whoever joins her from the troop have been invited to "pitch" the idea at a future Girl Scout Leader's meeting.
Jenna is so helpful with Jimmy. They're 5 years apart, so she's been involved from the start - from diapers to bottles to even now testing his blood and administering insulin shots! She is even starting to calculate how much insulin he needs on her own - and although she checks with me, she's been right every time! So grown up. Jim and I are so very proud!
I believe I hit the jackpot with my children! I couldn't be more proud.
On another note, I've applied for Jimmy and I to attend "JDRF Children's Congress" in Washington, DC in 2011. I got a call from the Northern NJ chapter of JDRF to just provide more information so they can go ahead and back me up as a potential candidate. You can find out more information at www.jdrf.org
Peace,
June
School update!!
The Karpowich House is all getting there - 5th grade is proving to be awesome for Jenna, and despite the fact that it took him over an hour to do homework a few nights ago, Jimmy is LOVING kindergarten!!! (It really only took 15 minutes for the actual hw part, but there was also a bathroom break, falling off the chair at least 3 times, dropping the pencil a few times, breaking the pencil point, the gripper falling off the pencil, changing the gripper on the pencil to a new color, checking his blood because he felt low - he wasn't, needing to get a cotton ball for inspiration when drawing a sheep, thirsty, hungry, dropping the paper, losing the pencil, bothering his sister, and the all important checking his loose tooth in the mirror. Stop laughing, I'm not exaggerating!!! LOL:)
On to last night... He sat down with his homework, wrote his name on the paper, figured out the pattern right away, drew in more of the pattern, and he was done in less than 10 minutes!! Woohoo!! I have hope that homework can go smoothly after all! The difference was (I think) that I hadn't just called him in from playing outside. In hindsight, I guess he's got to be ready - don't we all!!! He's a good boy.
Then, off to Back To School night at New Bridge Center! His teacher is SPECTACULAR! The school nurse is PHENOMENAL!!!!! We are so lucky to be in River Edge, where school is literally an extension of family. Jimmy is so at home there. Even the first day, there were no tears (not even from me!!) He kissed me goodbye, and ran to get on line! He told me after the first day, that the best thing about Kindergarten was: that his teacher is really pretty, and that he gets a sticker chart on which he already got 4 stickers!!!!! He's all about getting more so he can get to that all important prize box!!! He really does love it!
He also gets to pick a friend to take with him to test his blood glucose level. He's really opening up to the nurse, and even lets her look at his number with him! He always cups his hand over the meter, and even I'm not allowed to look!!!!! He's so cute, and we're so proud of him that he's adjusted so well!!!
So grateful for an wonderful school for my kids!
Unfortunately, Jimmy was up 1/2 the night complaining that his ear hurt. It's a little before 9 a.m. and he's still sound asleep (wish I was too!! :) I've got a 10:15 appointment for him this morning. He swam on Saturday, so perhaps it's another swimmer's ear infection - but he's also got a bit of runny nose thing going on, so we'll see. Poor guy. His blood glucose numbers have been high the past 2 days - I'm willing to bet it's due to whatever he's fighting off...
I think he might be finally waking up. I love watching him sleep - really I love just watching him!!!
Peace,
June
On to last night... He sat down with his homework, wrote his name on the paper, figured out the pattern right away, drew in more of the pattern, and he was done in less than 10 minutes!! Woohoo!! I have hope that homework can go smoothly after all! The difference was (I think) that I hadn't just called him in from playing outside. In hindsight, I guess he's got to be ready - don't we all!!! He's a good boy.
Then, off to Back To School night at New Bridge Center! His teacher is SPECTACULAR! The school nurse is PHENOMENAL!!!!! We are so lucky to be in River Edge, where school is literally an extension of family. Jimmy is so at home there. Even the first day, there were no tears (not even from me!!) He kissed me goodbye, and ran to get on line! He told me after the first day, that the best thing about Kindergarten was: that his teacher is really pretty, and that he gets a sticker chart on which he already got 4 stickers!!!!! He's all about getting more so he can get to that all important prize box!!! He really does love it!
He also gets to pick a friend to take with him to test his blood glucose level. He's really opening up to the nurse, and even lets her look at his number with him! He always cups his hand over the meter, and even I'm not allowed to look!!!!! He's so cute, and we're so proud of him that he's adjusted so well!!!
So grateful for an wonderful school for my kids!
Unfortunately, Jimmy was up 1/2 the night complaining that his ear hurt. It's a little before 9 a.m. and he's still sound asleep (wish I was too!! :) I've got a 10:15 appointment for him this morning. He swam on Saturday, so perhaps it's another swimmer's ear infection - but he's also got a bit of runny nose thing going on, so we'll see. Poor guy. His blood glucose numbers have been high the past 2 days - I'm willing to bet it's due to whatever he's fighting off...
I think he might be finally waking up. I love watching him sleep - really I love just watching him!!!
Peace,
June
Tuesday, September 14, 2010
:)
Jimmy is amazing - as we watched the beignning of America'a Got Talent, he told me that he wants to go on the show so he can win a million dollars to take care of diabetes. I love him so much! I'm so proud!!!!!
Saturday, September 4, 2010
Where did the summer go????
Well, we survived the summer!!
Latest news is that we're at square one with injections... I really think it's time for the pump.
For the last 3 months, he's only wanted his injections in the backs of his arms (choices are arms, thighs, backs of hips and his belly.) It hurts the least in his arms according to him (although he's never tried anywhere except legs and arms.) Well, he's developed lumpy spots in the backs of the arms (common for injections in the same spot over time.) The trouble is that these lumps cause problems with the absorption of the insulin. He's been high a lot, so, we're now using the thighs. His numbers are much better the past couple of days...
I had to give him his first shot in the thigh the other day in my closet (his "safe" place - where we had dinner and I cried in April). We made a deal that for every shot in his thigh, he could give me a slug in my arm. Well, if you know Jimmy, you know that he's freakishly strong. My arms are both sore!! Only a small price to pay if it helps him feel better. It takes his mind off it and I make funny faces showing the pain of the punch and he thinks it's a riot!!
Wish I could take all the pain for him.
He's so afraid of the pump... He says when he's 6 he'll be ready for it. We'll See. I think in October we'll call the company. Evidently, they do an "in home" demonstration first. Turns out that the first week on the pump, you get only saline and use insulin injections simultaneously. Once you've gotten the hang of it, then insulin goes in the pump, and you're shot free!! It's only one injection to insert the pump "line" every 3 days. He's intrigued by the thought of that, but he says he's not ready yet. Jimmy always has to be coaxed into things until he's used to it. It will be interesting to see how the first day of Kindergarten on Tuesday goes!!!
He's excited about starting school. We've been there a few times, and hopefully there are no tears (except for mine:) on the first day!! He knows how to write his name (in all caps except for the "i"), he knows his address, phone number, & all his letters and numbers. He even can read numbers in the hundreds - thanks to his blood glucose meter - Jimmy is the only one allowed (according to him) to read the meter and then he announces it to the rest of us. I guess it's his control over the situation. It's actually quite cute how he secretly covers the meter so only he can read it! But he's really good at his numbers!!!
Jenna and I worked with him over the summer on "homework." He really liked it - especially connect the dots and match the letters with the pictures!! Jenna and I are confident he'll do well in Kindergarten - let's just hope he's able to stay in his seat! lol :)
With summer coming to an end, I just thought I'd list the things I've learned and some highlights from these past couple of months...
Latest news is that we're at square one with injections... I really think it's time for the pump.
For the last 3 months, he's only wanted his injections in the backs of his arms (choices are arms, thighs, backs of hips and his belly.) It hurts the least in his arms according to him (although he's never tried anywhere except legs and arms.) Well, he's developed lumpy spots in the backs of the arms (common for injections in the same spot over time.) The trouble is that these lumps cause problems with the absorption of the insulin. He's been high a lot, so, we're now using the thighs. His numbers are much better the past couple of days...
I had to give him his first shot in the thigh the other day in my closet (his "safe" place - where we had dinner and I cried in April). We made a deal that for every shot in his thigh, he could give me a slug in my arm. Well, if you know Jimmy, you know that he's freakishly strong. My arms are both sore!! Only a small price to pay if it helps him feel better. It takes his mind off it and I make funny faces showing the pain of the punch and he thinks it's a riot!!
Wish I could take all the pain for him.
He's so afraid of the pump... He says when he's 6 he'll be ready for it. We'll See. I think in October we'll call the company. Evidently, they do an "in home" demonstration first. Turns out that the first week on the pump, you get only saline and use insulin injections simultaneously. Once you've gotten the hang of it, then insulin goes in the pump, and you're shot free!! It's only one injection to insert the pump "line" every 3 days. He's intrigued by the thought of that, but he says he's not ready yet. Jimmy always has to be coaxed into things until he's used to it. It will be interesting to see how the first day of Kindergarten on Tuesday goes!!!
He's excited about starting school. We've been there a few times, and hopefully there are no tears (except for mine:) on the first day!! He knows how to write his name (in all caps except for the "i"), he knows his address, phone number, & all his letters and numbers. He even can read numbers in the hundreds - thanks to his blood glucose meter - Jimmy is the only one allowed (according to him) to read the meter and then he announces it to the rest of us. I guess it's his control over the situation. It's actually quite cute how he secretly covers the meter so only he can read it! But he's really good at his numbers!!!
Jenna and I worked with him over the summer on "homework." He really liked it - especially connect the dots and match the letters with the pictures!! Jenna and I are confident he'll do well in Kindergarten - let's just hope he's able to stay in his seat! lol :)
With summer coming to an end, I just thought I'd list the things I've learned and some highlights from these past couple of months...
- heat makes him go high. air conditioning is a good thing
- swimming makes him go low without even knowing it - came out of the pool once and wanted a snack, so he tested himself and was a 43!!!!! Normally at a 60 he can feel low!
- he likes roller coasters! I'm still afraid!
- he's tall enough for ALL of the rides on the boardwalk!!! at 5 years old!! who knew!!!
- there ARE carbs in sprinkles - you'd think it was nominal, but it's at least 15!!
- digging "to China" (as Jimmy calls it) on the beach counts as major exercise!
- ice cream on the beach is a good thing!
- "meatballs" on the beach are wet sand mushed into a ball - they made millions!!
- must rotate injection sites!!
- must keep an ice pack in his "kit" in the heat!
- lymph nodes can last for months (his large ones are shrinking finally, but still there - evidently we always have them, and they're not a problem unless they don't go away!)
- his "sizable" arachnoid cyst is "nothing to worry about" (yeah, right). We just have to worry about if/when he has constant headaches, throwing up, dizziness, etc...
- a bagel can be anywhere from 35-55 carbs!!! some Type 1 kids don't even eat them anymore!!
- it takes 30 minutes for numbing gel to work before you get stitches (shin meets escalator step)
- swimmers ear is not a good thing (both kids had it!)
- must always wear a bright colored bathing suit - swim club isn't that big, but if I can't find him, he's on wiffleball court with the older kids! easier to locate with his fire red suit on!!!
- successful swim lessons - he can swim in the 5 feet!!!!!
- Jimmy's a good boy, and Jenna is a huge help!
Ok, ready for school. I know he'll do well! His teachers and nurse are truly wonderful and have been preparing for him since June! We are so lucky to be in River Edge with so many caring and helpful people!!
He's off for his school hair cut now!!!
Peace,
June
Thursday, July 29, 2010
good news!
Woohoo!!! Jimmy's skin issues are nothing - the dermatologist called it "lichen nitidus." It will come and go into his teens, then will go away eventually. No cause for it, and no creams take care of it, but it's not itchy and won't cause any problems. I walked out of the office feeling so happy that this appointment went so well and there's nothing wrong!!!!! Quite a change from other appointments!!!
We go on Thursday of next week to the neurosurgeon to hear the results of the mri scan... I'm expecting to hear that they will just monitor it yearly. That's the best case scenario I think...
Got the "ultra fine nano" needles for his insulin pen today. They're supposedly better since they're so small that we no longer will have to pinch his skin to give him the shot - I thought that would be better, too. Well, wouldn't you know - Jimmy doesn't like it. I think it's the fear of something new. Time will tell.
On another note, I'm worried that Jenna has her own place to shine. I think this will do it: she was a good enough swimmer on the town team this year to be invited to "leagues" (the 6 teams in the league combine for one big final meet.) It was last night. She placed 2nd in freestyle which means she's the 2nd fastest in the league!!!!! It was her fastest time: 19.59 seconds!! She also placed 1st along with 3 other girls in the freestyle relay !! It was so exciting, and it came down to the final stroke - our girl's hand touched just before the other!! The whole place went wild!! Woohoo Jenna!! I'm so happy for her that she gets her own attention on her own merit. With all the focus on Jimmy, Jenna still gets a chance to shine. I think it's important for her in all of this craziness around us lately! She'll get more accolades at tomorrow's swim team party when she receives her ribbons.
Peace,
June
We go on Thursday of next week to the neurosurgeon to hear the results of the mri scan... I'm expecting to hear that they will just monitor it yearly. That's the best case scenario I think...
Got the "ultra fine nano" needles for his insulin pen today. They're supposedly better since they're so small that we no longer will have to pinch his skin to give him the shot - I thought that would be better, too. Well, wouldn't you know - Jimmy doesn't like it. I think it's the fear of something new. Time will tell.
On another note, I'm worried that Jenna has her own place to shine. I think this will do it: she was a good enough swimmer on the town team this year to be invited to "leagues" (the 6 teams in the league combine for one big final meet.) It was last night. She placed 2nd in freestyle which means she's the 2nd fastest in the league!!!!! It was her fastest time: 19.59 seconds!! She also placed 1st along with 3 other girls in the freestyle relay !! It was so exciting, and it came down to the final stroke - our girl's hand touched just before the other!! The whole place went wild!! Woohoo Jenna!! I'm so happy for her that she gets her own attention on her own merit. With all the focus on Jimmy, Jenna still gets a chance to shine. I think it's important for her in all of this craziness around us lately! She'll get more accolades at tomorrow's swim team party when she receives her ribbons.
Peace,
June
Tuesday, July 27, 2010
dermatologist appt. today...
Off to Dr. Shin in Hackensack at 4 today... The endocrinologist wanted to send him to get his skin issues checked out - Evidently, there is a link between Juvenile Diabetes and exema. Jimmy had TERRIBLE exema on his hands this winter to the point where they were cracked and bleeding. Eucerine worked well, but we were slathering his hands several times a day and also at night. He's also got funny patches of skin on his torso and shoulders - little bumpy patches. They're different than the patches on the backs of Jenna's arms (which has a name, but I can't think of what it is.)
So, we'll get it checked out today... Dr. Aisenberg (the endocrinologist) also wanted to have his humongous lymph nodes on his neck checked out. You can see them from across the room, and they've been there for over a month now. The pediatrician said they're normal and will go away. After 3 weeks or so, they were sitll there, and Dr. A. said we might as well get them checked out when we went to the dermatoligist.
I'd like a magic cream or pill (or wand) to make this all go away.
Peace,
June
So, we'll get it checked out today... Dr. Aisenberg (the endocrinologist) also wanted to have his humongous lymph nodes on his neck checked out. You can see them from across the room, and they've been there for over a month now. The pediatrician said they're normal and will go away. After 3 weeks or so, they were sitll there, and Dr. A. said we might as well get them checked out when we went to the dermatoligist.
I'd like a magic cream or pill (or wand) to make this all go away.
Peace,
June
Thursday, July 22, 2010
1/2 guess work...
Well, the field trip was a success!!! He came home at a decent blood glucose level, so we know that exercise is a good thing! Bounce u was "fun" according to Jimmy - so descriptive, right?... The counselor said that he sang with the other kids on the bus ride and was so excited and happy! So glad it went well. He fell asleep at about 5:30 yesterday evening, so I know it wore him out!
On another note, the novalog pen (that delivers his mealtime shots) had a malfunction the other day - First, the cap mysteriously disappeared. Still yet to be found (but we put another cap on from our back up...) Then, the screw mechanism somehow became too low to push up the insulin - he had been too high a couple times in a row, so I think it may have been malfunctioning for a few shots. ugh... It's hard enough to get his levels in range when he is getting the correct insulin!!
I was able to fix it without a problem, but I have no idea why it happened... So now I'll be checking the pen with every shot, too. Just one more step.
Someone asked me what it was like to have to try to get his blood glucose levels in check. I thought about it for a minute, and described it as:
1/2 calculations and 1/2 guess work.
It's 3 math problems at every meal - calculate the amount of carbs he eats first (if you ever need to know how many carbs are in a slice of pizza, a banana or a dunkin donut with strawberry frosting and sprinkles, just ask me). Then the amount of carbs he eats gets divided by either 40 or 50 depending on the meal. Then add that answer to his current blood glucose level minus his target number of 150 then divided by 180 - that's the correction bolus number.
Good thing I'm good at math.
Then, the guess work comes in... if he's supposed to get between 1 and 1 1/2 units of insulin, I have to think of what he's going to be doing... if it's a rainy day and he's going to be chilling out, I give him a higher dose. But, if I know he's going to be running around or in the pool all day, then I have to go with the lower number... Guess work. Then I have to allow for the fact that a carb is not a carb... 30 carbs of a banana is not the same as 30 carbs in juice. The carbs in the juice is instant, where the banana carbs will not absorb as quickly. If he has pancakes and bacon, the fat in the bacon will slow down the absorption of the carbs, so that could result in a high later in the day. guess work...
Even when I have days where we've done everything perfectly, there are some glucose levels that come back high... I don't know why, and that's frustrating.
It's constant. Evidently, every high and every low leaves a mark. It's important for him to be within range consistently, and it's hard to do that with all of the guess work.
Jimmy is a seemingly happy healthy kid, and Jim and I will do all we can to keep it that way. Math problem by math problem, one day at a time.
Peace,
June
On another note, the novalog pen (that delivers his mealtime shots) had a malfunction the other day - First, the cap mysteriously disappeared. Still yet to be found (but we put another cap on from our back up...) Then, the screw mechanism somehow became too low to push up the insulin - he had been too high a couple times in a row, so I think it may have been malfunctioning for a few shots. ugh... It's hard enough to get his levels in range when he is getting the correct insulin!!
I was able to fix it without a problem, but I have no idea why it happened... So now I'll be checking the pen with every shot, too. Just one more step.
Someone asked me what it was like to have to try to get his blood glucose levels in check. I thought about it for a minute, and described it as:
1/2 calculations and 1/2 guess work.
It's 3 math problems at every meal - calculate the amount of carbs he eats first (if you ever need to know how many carbs are in a slice of pizza, a banana or a dunkin donut with strawberry frosting and sprinkles, just ask me). Then the amount of carbs he eats gets divided by either 40 or 50 depending on the meal. Then add that answer to his current blood glucose level minus his target number of 150 then divided by 180 - that's the correction bolus number.
Good thing I'm good at math.
Then, the guess work comes in... if he's supposed to get between 1 and 1 1/2 units of insulin, I have to think of what he's going to be doing... if it's a rainy day and he's going to be chilling out, I give him a higher dose. But, if I know he's going to be running around or in the pool all day, then I have to go with the lower number... Guess work. Then I have to allow for the fact that a carb is not a carb... 30 carbs of a banana is not the same as 30 carbs in juice. The carbs in the juice is instant, where the banana carbs will not absorb as quickly. If he has pancakes and bacon, the fat in the bacon will slow down the absorption of the carbs, so that could result in a high later in the day. guess work...
Even when I have days where we've done everything perfectly, there are some glucose levels that come back high... I don't know why, and that's frustrating.
It's constant. Evidently, every high and every low leaves a mark. It's important for him to be within range consistently, and it's hard to do that with all of the guess work.
Jimmy is a seemingly happy healthy kid, and Jim and I will do all we can to keep it that way. Math problem by math problem, one day at a time.
Peace,
June
Wednesday, July 21, 2010
First Field Trip Today!
Well, he's off! Jimmy headed right out the door to go on his camp field trip today to Bounce U in Paramus! He's so excited, and I'm a nervous wreck!!!
He's got his "kit" (that's what we call his diabetes supply bag), his snack, and one of the counselors is going to be his shadow today.
I can't believe he's going on a bus to his first field trip!!!! A big boy!!! I know he'll have a blast - just keeping my fingers crossed that his blood glucose levels don't drop drastically with all of the exercise - but he should be ok...
I'll post later about the trip!
Peace,
June
He's got his "kit" (that's what we call his diabetes supply bag), his snack, and one of the counselors is going to be his shadow today.
I can't believe he's going on a bus to his first field trip!!!! A big boy!!! I know he'll have a blast - just keeping my fingers crossed that his blood glucose levels don't drop drastically with all of the exercise - but he should be ok...
I'll post later about the trip!
Peace,
June
Friday, July 16, 2010
Happy News!!
Jimmy lost a tooth last night!! He said, "Hey Mom, my tooth just fell out!!! I just knocked it out with my tongue!!!" The tooth fairy brought him $20 - I guess for all his trouble lately!!
Thursday, July 15, 2010
Back to Juvenile Diabetes...
I'm reading a book called "The Challenge of Childhood Diabetes: Family Strategies for Raising a Healthy Child," by Laura Plunkett. I found a passage from the book that hit home:
"Some days I could sit back and say that we had no control over the course of [his] illness. I found comfort in the belief that we were doing the best we could and that we couldn't know what the future would bring... In my philosophical moments, decisions became easier because all I could do was try my best. I'd think, '[He] has his own path, I have mine, and we have to accept whatever life bring us.' At those times, I'd feel peaceful and strong. However, when I had to decide whether to interrupt him for an extra dose of insulin or let him continue playing with a friend, I felt painfully conflicted. One voice would say, 'Let him be a kid,' and the other would respond, 'Every high leaves its mark. Every low is another assault on his system. You're irresponsible if you don't step in.' As a result, I was still lying in bed most nights, my head a jumble of thoughts, trying to come up with some plan... to make the next day's numbers improve."
Although the JD has never taken a back seat, it's been overshadowed lately... Since our April 1st diagnosis of Juvenile Diabetes, here's the rundown of Jimmy's encounters...
-trip in the ambulance for a bat to the head
-CT scan to rule out skull fracture
-skull fracture negative, but they found an Intercranial Arachnoid Cyst
-visit with the pediatric neurosurgeon
-5 stitches on his shin for a mis-step on a non moving escalator
-one cavity filled on a baby tooth
-mri for a baseline of the arachnoid cyst
We're waiting for an appointment with the neurosurgeon for the results of the mri, so until then, we're back to dealing only with the juvenile diabetes part of Jimmy...
I will continue to write about the trials and tribulations of Jimmy and juvenile diabetes. I'm finding comfort in getting it all down. It's been quite a blur these last 3 months, and I might want to remember it all one day.
Peace,
June
"Some days I could sit back and say that we had no control over the course of [his] illness. I found comfort in the belief that we were doing the best we could and that we couldn't know what the future would bring... In my philosophical moments, decisions became easier because all I could do was try my best. I'd think, '[He] has his own path, I have mine, and we have to accept whatever life bring us.' At those times, I'd feel peaceful and strong. However, when I had to decide whether to interrupt him for an extra dose of insulin or let him continue playing with a friend, I felt painfully conflicted. One voice would say, 'Let him be a kid,' and the other would respond, 'Every high leaves its mark. Every low is another assault on his system. You're irresponsible if you don't step in.' As a result, I was still lying in bed most nights, my head a jumble of thoughts, trying to come up with some plan... to make the next day's numbers improve."
Although the JD has never taken a back seat, it's been overshadowed lately... Since our April 1st diagnosis of Juvenile Diabetes, here's the rundown of Jimmy's encounters...
-trip in the ambulance for a bat to the head
-CT scan to rule out skull fracture
-skull fracture negative, but they found an Intercranial Arachnoid Cyst
-visit with the pediatric neurosurgeon
-5 stitches on his shin for a mis-step on a non moving escalator
-one cavity filled on a baby tooth
-mri for a baseline of the arachnoid cyst
We're waiting for an appointment with the neurosurgeon for the results of the mri, so until then, we're back to dealing only with the juvenile diabetes part of Jimmy...
I will continue to write about the trials and tribulations of Jimmy and juvenile diabetes. I'm finding comfort in getting it all down. It's been quite a blur these last 3 months, and I might want to remember it all one day.
Peace,
June
MRI Today...
So, to follow up on Jimmy's Intercranial Arachnoid Cyst, we had to be at the MRI today at 10 for a 10:30 appointment. It took a took a nurse, the technician, the anesthesiologist, another, and me to hold him down to get the iv in. They can't believe how strong he is. He was so loud and sweaty and scared, I just wanted to take him away and make everything alright.
I think he was exceptionally having a hard time since he had to have blood taken on Monday. Jim took him for his physical, EKG & blood work to get Medical Clearance for the MRI. The physical and EKG were fine and then they had to wait at Labcorp for over an hour. When they were finally called in, Jimmy started out a bit scared, but was well behaved and sitting with Jim quietly. The stupid technician poked poor little arm 6 times before he said to Jim, "Your boy no cooperate." Jim was furious, and told the guy to try the other arm or get someone else. Poor Jimmy WAS cooperating! The guy decided to try the other arm and was successful the 2nd time. I call that incompetence, and poor Jimmy was traumatized - when he came home, he fell into my arms and cried for a 1/2 hour. Poor little kid.
So, it kind of explains why he gave all of the staff a run for their money this morning at the MRI. They finally were able to get the IV in, and he calmed down a bit (still in my arms.) We had to go into the next room to get him onto the table, when he started freaking out again... I hugged him tight, and he clung on to me with all of his might. He would not lie down for anything, so they decided to give him a bit of anesthesia to relax him a bit. His whole body just took a sigh and turned noodlish. He was just so relaxed and able to let go and lie down. It was then then that they asked me to leave the room, and as I did I asked them for some of that medicine to take home with me!! LOL!!!
When he came out of the mri into recovery, he was a riot - you know that youtube video of the boy who had just been to the dentist and had obviously had some laughing gas? Well, it was pretty close - I had gotten him some silly bands at the gift shop to give him when he woke up. They were in the shapes letters, so I plucked out the letters J-I-M-M-Y to give him when he woke up. As his eyes were opening, I dangled the J in front of him to perk him up (he just loves his silly bands.) He lit up a bit and as he tried to grab it, his fingers were grasping air about 2 inches northwest of the J!! As I gave him the I, the nurse and I asked him what letter it was, but he didn't answer. Then I handed him the first M, and when we asked him what letter it was, he said, "I." We had to bite our lip to not laugh! His coordination was off and his thinking was delayed!! It was awfully cute...
Anyway, I have the MRI pix, and Jim and I have no idea how to read them, but we can definitely see the cyst - and from so many different angles. I think we shouldn't have looked at the cd. We see the neurosurgeon in early August. I'll try not to worry until he gives me a reason to. Jimmy's a happy little boy, and that's what we'll focus on for now...
Peace,
June
I think he was exceptionally having a hard time since he had to have blood taken on Monday. Jim took him for his physical, EKG & blood work to get Medical Clearance for the MRI. The physical and EKG were fine and then they had to wait at Labcorp for over an hour. When they were finally called in, Jimmy started out a bit scared, but was well behaved and sitting with Jim quietly. The stupid technician poked poor little arm 6 times before he said to Jim, "Your boy no cooperate." Jim was furious, and told the guy to try the other arm or get someone else. Poor Jimmy WAS cooperating! The guy decided to try the other arm and was successful the 2nd time. I call that incompetence, and poor Jimmy was traumatized - when he came home, he fell into my arms and cried for a 1/2 hour. Poor little kid.
So, it kind of explains why he gave all of the staff a run for their money this morning at the MRI. They finally were able to get the IV in, and he calmed down a bit (still in my arms.) We had to go into the next room to get him onto the table, when he started freaking out again... I hugged him tight, and he clung on to me with all of his might. He would not lie down for anything, so they decided to give him a bit of anesthesia to relax him a bit. His whole body just took a sigh and turned noodlish. He was just so relaxed and able to let go and lie down. It was then then that they asked me to leave the room, and as I did I asked them for some of that medicine to take home with me!! LOL!!!
When he came out of the mri into recovery, he was a riot - you know that youtube video of the boy who had just been to the dentist and had obviously had some laughing gas? Well, it was pretty close - I had gotten him some silly bands at the gift shop to give him when he woke up. They were in the shapes letters, so I plucked out the letters J-I-M-M-Y to give him when he woke up. As his eyes were opening, I dangled the J in front of him to perk him up (he just loves his silly bands.) He lit up a bit and as he tried to grab it, his fingers were grasping air about 2 inches northwest of the J!! As I gave him the I, the nurse and I asked him what letter it was, but he didn't answer. Then I handed him the first M, and when we asked him what letter it was, he said, "I." We had to bite our lip to not laugh! His coordination was off and his thinking was delayed!! It was awfully cute...
Anyway, I have the MRI pix, and Jim and I have no idea how to read them, but we can definitely see the cyst - and from so many different angles. I think we shouldn't have looked at the cd. We see the neurosurgeon in early August. I'll try not to worry until he gives me a reason to. Jimmy's a happy little boy, and that's what we'll focus on for now...
Peace,
June
Wednesday, June 30, 2010
the saga continues...
We followed up with the pediatric neurosurgeon yesterday. He's sending Jimmy for an MRI, and on the prescription for it, it actually says "needs anesthesia because he cannot lie still." (Jim and I are so proud, lol!)
The mri is so that they can get a baseline image of the cyst. They'll compare each yearly scan to this original one. He doesn't suspect that it is causing or will cause any problems, but it's there, so it needs to be monitored. He described it as being "rather not large." So in English, that means it's not small. I'll settle for medium I guess. There is slight compression on his brain - but nothing significant at all.
Basically, we wait and see. These cysts can shrink, grow, or stay the same. If it were to grow, and cause problems, then they would consider shunting or draining it. In the meantime, it's not life threatening.
Then on to yesterday - Jim took the kids to see Toy Story 3. On the way in, the escalator wasn't working, so they had to walk up the escalator. Jimmy took one step, and it was a mis-step, and ended up with a decent cut on his shin. Security came, cleaned him up and suggested that perhaps it needed a butterfly or so, but Jimmy wanted to see the movie, so they bandaged him up and headed into in to see it...
When they got home and I got to see it, I thought perhaps that I should throw him in the car and take him to the ER for stitches. I checked with my neighbor (mother of 2 boys) to see what she thought - she agreed with me. When I got the othe ER, I really thought they were going to call Child Protective Services or something - This made 3 ER trips in the last 3 months (2 of which were yesterday and last week!) Thank goodness for witnesses -lol!
Anyway, 5 stitches is what it came down to... Never a dull moment. He's in good spirits - but exhausted since we didn't get home until after 1 a.m.
This morning, it was off to the Endocrinologist for his Juvenile Diabetes 3 month appointment. Everything looks good - The Doctor was pleased with his progress and that he tests his own blood and knows what to do when he feels "low." They feel that we're doing everything right and he's on track. So that's at least some positive news - things are looking up!!
The mri is so that they can get a baseline image of the cyst. They'll compare each yearly scan to this original one. He doesn't suspect that it is causing or will cause any problems, but it's there, so it needs to be monitored. He described it as being "rather not large." So in English, that means it's not small. I'll settle for medium I guess. There is slight compression on his brain - but nothing significant at all.
Basically, we wait and see. These cysts can shrink, grow, or stay the same. If it were to grow, and cause problems, then they would consider shunting or draining it. In the meantime, it's not life threatening.
Then on to yesterday - Jim took the kids to see Toy Story 3. On the way in, the escalator wasn't working, so they had to walk up the escalator. Jimmy took one step, and it was a mis-step, and ended up with a decent cut on his shin. Security came, cleaned him up and suggested that perhaps it needed a butterfly or so, but Jimmy wanted to see the movie, so they bandaged him up and headed into in to see it...
When they got home and I got to see it, I thought perhaps that I should throw him in the car and take him to the ER for stitches. I checked with my neighbor (mother of 2 boys) to see what she thought - she agreed with me. When I got the othe ER, I really thought they were going to call Child Protective Services or something - This made 3 ER trips in the last 3 months (2 of which were yesterday and last week!) Thank goodness for witnesses -lol!
Anyway, 5 stitches is what it came down to... Never a dull moment. He's in good spirits - but exhausted since we didn't get home until after 1 a.m.
This morning, it was off to the Endocrinologist for his Juvenile Diabetes 3 month appointment. Everything looks good - The Doctor was pleased with his progress and that he tests his own blood and knows what to do when he feels "low." They feel that we're doing everything right and he's on track. So that's at least some positive news - things are looking up!!
Tuesday, June 22, 2010
Believe it or not...
Believe it or not, Juvenile Diabetes is on hold at the moment -- no, we can't ever forget about it, but we just found out something else...
Jimmy stopped an aluminum bat in motion with his head today. Blood, ambulance, the whole 9 yards. He never passed out or got sick, but since he has JD, they whisked us away in the ambulance to our home away from home - Hackensack University Medical Center.
After the wound was cleaned up, and stiches were not out of the question, the ER doctor felt that a CAT scan was necessary because of a "divot" where the laceration was. "Dr. Alex" wanted to rule out a skull fracture - can we say, take a deep breath??????
So, after 5 hours in the ER, they were able to rule out any obvious neurological signs, the CAT scan determined no fracture, and stitches were not needed. Good news, right?
Well, maybe the blow to the head happened for a reason - They found an "arachnoid cyst" on Jimmy's brain that is about 6 cm by 2cm long. Usually, these cysts go undetected until symptoms occur (dizziness, loss of balance, headaches, and possibly seizures). Now we know.
Are you kidding me ? This beautiful little boy did not need this. Hasn't he got enough to deal with?
So, it's off to the Pediatric Neuro-surgeon as soon as we can get an appointment.
It's not life threatening. Hopefully something that simply has to be monitored and treated when and if symptoms arise.
On the JD front... Jimmy had his lowest low on Father's day - He came out of my sister's pool and was hungry. So, as usual, he tested himself while I was getting his snack ready. "Hey Mom! I'm a 40." I think the pool makes him low and he can't feel it - I have to check that out, too.
It's after midnight on Tuesday, but actually this all happened on Monday. Because of the blow to the head, they want me to wake him up every few hours. I'm going to go kiss both of my precious children good night.
Thanks to those of you who helped me out today!
Peace,
June
Jimmy stopped an aluminum bat in motion with his head today. Blood, ambulance, the whole 9 yards. He never passed out or got sick, but since he has JD, they whisked us away in the ambulance to our home away from home - Hackensack University Medical Center.
After the wound was cleaned up, and stiches were not out of the question, the ER doctor felt that a CAT scan was necessary because of a "divot" where the laceration was. "Dr. Alex" wanted to rule out a skull fracture - can we say, take a deep breath??????
So, after 5 hours in the ER, they were able to rule out any obvious neurological signs, the CAT scan determined no fracture, and stitches were not needed. Good news, right?
Well, maybe the blow to the head happened for a reason - They found an "arachnoid cyst" on Jimmy's brain that is about 6 cm by 2cm long. Usually, these cysts go undetected until symptoms occur (dizziness, loss of balance, headaches, and possibly seizures). Now we know.
Are you kidding me ? This beautiful little boy did not need this. Hasn't he got enough to deal with?
So, it's off to the Pediatric Neuro-surgeon as soon as we can get an appointment.
It's not life threatening. Hopefully something that simply has to be monitored and treated when and if symptoms arise.
On the JD front... Jimmy had his lowest low on Father's day - He came out of my sister's pool and was hungry. So, as usual, he tested himself while I was getting his snack ready. "Hey Mom! I'm a 40." I think the pool makes him low and he can't feel it - I have to check that out, too.
It's after midnight on Tuesday, but actually this all happened on Monday. Because of the blow to the head, they want me to wake him up every few hours. I'm going to go kiss both of my precious children good night.
Thanks to those of you who helped me out today!
Peace,
June
Tuesday, June 8, 2010
Tonight's support group meeting was good.
Learned a lot - and there's a blood glucose meter that has a light on it - which is a huge deal for us since we have no flash lights in the house (Jimmy successfully dismantles all of them - even if they are hidden he finds them, or we forgot where they are...) and we have to turn on the light in the upstairs hallway - which can disturb Jenna, Shortstop, and whichever one of us (me or Jim) is still sleeping - and even with that light on, we still might not be able to see the blood droplet coming from his finger, or read the meter, so we'll have to turn his night stand light on - which will make him cringe in his sleep since he's so light sensitive - so, pray that my insurance will cover this new meter & test strips...
Turns out that Blue Cross Blue Sheild didn't get the "freestyle" meter contract - which is why we have the accu-check (which was perfectly fine honestly until we found out that the "freestyle" has a light - and uses less blood, and can check on more than just the fingertips!!!)
So anyway, we have 3 new math problems to do out of our minimum of 6 in our day since Jimmy has entered this "honeymoon phase." I only had to give him 4 insulin shots out of the last 2 days - since his pancreas has woken up and kicked into sputtering mode. Wish me luck with the guess work. I'm less afraid of the highs than I am of the lows!!! The lows are pretty scary.
We met a 5 year old girl at the suport group today who was diagnosed in May - just about the same age and diagnosis date as Jimmy - who is actually A WHOLE INCH TALLER THAN JIMMY!!!!! Woohoo!! Someone else who is "short for a fourth grader" as we say about Jimmy!!!! She, too, starts Kindergarten in September. She actually started the pump yesterday - so say a prayer that we can have success with the pump when we begin, too. We go on the 30th - but not sure if it's waterproof in which case we wait until September - but I'd really like to start asap so we can be on top of it for a couple of months before he enters Kindergarten!!!
On a lighter note, we had a fundraiser at school today - it was one school vs. the other in a softball game in the hopes to raise money for a student who lost a battle with a disease a few years ago. Jimmy was invited to sit on a blanket to watch the game with a friend, so he took off his shoes... Well, everyone wanted to know where his shoes were. He evidently was running around visiting other kids, the "jungle gym", the bathrooms, the water fountain, the give-away table, the food table, the sidelines, etc... WITHOUT SHOES!!! Hope colleagues don't think I'm a bad mom!!! Good luck to his kindergarten teacher!!!
In addition to Sunday's low (a 47...), we had one low today - I had to cut the line to ask for a soda (and I had to buy now-pay later- luckily, they let me!!!) He wasn't too low, but luckily,I got it, and he perked right up in his filthy socks!!! lol!!!
Ok, enough for now - I'm going to read a bit (thanks for the JD book, Julie - it's riviting), and go to sleep (maybe)...
Peace,
June
Learned a lot - and there's a blood glucose meter that has a light on it - which is a huge deal for us since we have no flash lights in the house (Jimmy successfully dismantles all of them - even if they are hidden he finds them, or we forgot where they are...) and we have to turn on the light in the upstairs hallway - which can disturb Jenna, Shortstop, and whichever one of us (me or Jim) is still sleeping - and even with that light on, we still might not be able to see the blood droplet coming from his finger, or read the meter, so we'll have to turn his night stand light on - which will make him cringe in his sleep since he's so light sensitive - so, pray that my insurance will cover this new meter & test strips...
Turns out that Blue Cross Blue Sheild didn't get the "freestyle" meter contract - which is why we have the accu-check (which was perfectly fine honestly until we found out that the "freestyle" has a light - and uses less blood, and can check on more than just the fingertips!!!)
So anyway, we have 3 new math problems to do out of our minimum of 6 in our day since Jimmy has entered this "honeymoon phase." I only had to give him 4 insulin shots out of the last 2 days - since his pancreas has woken up and kicked into sputtering mode. Wish me luck with the guess work. I'm less afraid of the highs than I am of the lows!!! The lows are pretty scary.
We met a 5 year old girl at the suport group today who was diagnosed in May - just about the same age and diagnosis date as Jimmy - who is actually A WHOLE INCH TALLER THAN JIMMY!!!!! Woohoo!! Someone else who is "short for a fourth grader" as we say about Jimmy!!!! She, too, starts Kindergarten in September. She actually started the pump yesterday - so say a prayer that we can have success with the pump when we begin, too. We go on the 30th - but not sure if it's waterproof in which case we wait until September - but I'd really like to start asap so we can be on top of it for a couple of months before he enters Kindergarten!!!
On a lighter note, we had a fundraiser at school today - it was one school vs. the other in a softball game in the hopes to raise money for a student who lost a battle with a disease a few years ago. Jimmy was invited to sit on a blanket to watch the game with a friend, so he took off his shoes... Well, everyone wanted to know where his shoes were. He evidently was running around visiting other kids, the "jungle gym", the bathrooms, the water fountain, the give-away table, the food table, the sidelines, etc... WITHOUT SHOES!!! Hope colleagues don't think I'm a bad mom!!! Good luck to his kindergarten teacher!!!
In addition to Sunday's low (a 47...), we had one low today - I had to cut the line to ask for a soda (and I had to buy now-pay later- luckily, they let me!!!) He wasn't too low, but luckily,I got it, and he perked right up in his filthy socks!!! lol!!!
Ok, enough for now - I'm going to read a bit (thanks for the JD book, Julie - it's riviting), and go to sleep (maybe)...
Peace,
June
Wednesday, May 19, 2010
"Hey Mom, I think I'm low!"
So he tells me he wants an ice pop, so I told him to get his "tester" to test himself. (So proud of him that he takes charge and tests himself now!!!) Then he decides to play a little more first. "Not a problem," I told him, "Just test yourself when you're ready to eat one." "K mom!" he yells as his voice trails off while running to play outside.
So, there I am 20 minutes or so later outside chatting with neighbors when I guess Jimmy wanted the ice pop, tested himself and said quite casually, "Hey Mom, I think I'm low." Just like that!!!!! - just as if he was tellig me that the sky was blue or the grass was green - - I've got sirens and alarms going off in my head, and he's not got a care in the world... Maybe he was wrong - I was certain he read the meter upside down. He told me that he was a 61. I was sure that he meant a 91 - he couldn't be a 61!!! Right???
Well, he was!!! Yikes!!! Quick - get the juice!!! All he was concerned about was that he still be able to eat the ice pop (which are only 5 carbs each - not enough to bring his blood glucose number up...) Poor kid.
He has been so good about it all lately, but he seems to be getting "tired" of the shots and gives me such a hard in the mornings now... I might look into a "numbing" lotion to see if that could be a solution. I'll keep you posted.
Peace,
June
So, there I am 20 minutes or so later outside chatting with neighbors when I guess Jimmy wanted the ice pop, tested himself and said quite casually, "Hey Mom, I think I'm low." Just like that!!!!! - just as if he was tellig me that the sky was blue or the grass was green - - I've got sirens and alarms going off in my head, and he's not got a care in the world... Maybe he was wrong - I was certain he read the meter upside down. He told me that he was a 61. I was sure that he meant a 91 - he couldn't be a 61!!! Right???
Well, he was!!! Yikes!!! Quick - get the juice!!! All he was concerned about was that he still be able to eat the ice pop (which are only 5 carbs each - not enough to bring his blood glucose number up...) Poor kid.
He has been so good about it all lately, but he seems to be getting "tired" of the shots and gives me such a hard in the mornings now... I might look into a "numbing" lotion to see if that could be a solution. I'll keep you posted.
Peace,
June
Saturday, May 8, 2010
Skittles at 4 a.m.
We had skittles at 4a.m. this morning... Evidently the cvs emergency glucose gel is gross!!! We tried it and he cried that it made his mouth itchy (code for he won't eat it) He was too lethargic to drink juice, so we ran to get our emergency bag of skittles...
Let me back up to midnight -- he was at a 200, so I was confident he'd be fine for the night... I found out he was low when a car drove by my house (we live on a dead end, so rarely does a car come down in the middle of the night). It woke me up when everyone's sensor light went on, so I had to get up and check that all was good on the block...Thank goodness I got up! That's when I heard him do a strange snore type sound... I went in to check, and his eyes were a sliver open - quite eerie. I checked his blood and thought I had the meter upside down when it read 60.
So, he refused the gel, wouldn't drink the juice, but somehow got up enough energy to munch on some skittles. Nothing better than candy in the middle of the night when you're too tired to brush your teeth!!!!!
It's 9a.m. now and he's at a 144 still sound asleep!
Still wondering why that car drove down my block... It wasn't the newspaper delivery person, since no one had their papers when I looked out. Was it Jimmy's guardian angel trying to wake me up to tend to him? My kids do have a few of them up there, I'm sure!
Peace,
June
Let me back up to midnight -- he was at a 200, so I was confident he'd be fine for the night... I found out he was low when a car drove by my house (we live on a dead end, so rarely does a car come down in the middle of the night). It woke me up when everyone's sensor light went on, so I had to get up and check that all was good on the block...Thank goodness I got up! That's when I heard him do a strange snore type sound... I went in to check, and his eyes were a sliver open - quite eerie. I checked his blood and thought I had the meter upside down when it read 60.
So, he refused the gel, wouldn't drink the juice, but somehow got up enough energy to munch on some skittles. Nothing better than candy in the middle of the night when you're too tired to brush your teeth!!!!!
It's 9a.m. now and he's at a 144 still sound asleep!
Still wondering why that car drove down my block... It wasn't the newspaper delivery person, since no one had their papers when I looked out. Was it Jimmy's guardian angel trying to wake me up to tend to him? My kids do have a few of them up there, I'm sure!
Peace,
June
Friday, May 7, 2010
A Poem
Found the most beautiful poem from "Doug" on a website called Diabetes Poetry Room. I just think of Jimmy in place of the little girl... It's called:
My Angel
I tucked her in bed asking "How could this be?"
My beautiful daughter has come down with 'D'.
I kept asking myself "Why, what did she do?"
My sweet little girl had just turned age 2.
As she lay there asleep in her little soft bed,
I offered all that I could to have her 'D' instead.
So young and so small, and so full of life,
It's not fair that this happened to my little one's life.
At night I'm alone, my thoughts are on her,
Since 'D' came to stay, our life's been a blur.
I do all that I can to help her understand why,
When I poke her small body, we both start to cry.
Her numbers go low, her numbers go high,
We do everything right, and still I ask "Why?"
Some days it's so hard to just rest for awhile,
Then I realize the gift in my little girl's smile.
I think towards the future, and how she will be,
Will she be happy, will she marry, will she have a baby?
I try not to worry; I give her my best,
When my baby grows up, she will handle the rest.
I do all that I can to relieve all her strife,
She's my baby, my angel; I would give up my life.
I know I have done everything I could try,
But always I wonder "My baby, why?"
It's 20 years later; I stand by the rail,
Tears stream from my eyes as strong hands lift her veil.
My baby is grown, this small one I carried,
I cry deep inside as my baby gets married.
My daughter is grown; she's happy and smart,
She lives life to the fullest, despite the 'D' part.
As they both leave the church, she whispers to me,
I love you so much, we both beat my 'D'.
Gary2000
My Angel
I tucked her in bed asking "How could this be?"
My beautiful daughter has come down with 'D'.
I kept asking myself "Why, what did she do?"
My sweet little girl had just turned age 2.
As she lay there asleep in her little soft bed,
I offered all that I could to have her 'D' instead.
So young and so small, and so full of life,
It's not fair that this happened to my little one's life.
At night I'm alone, my thoughts are on her,
Since 'D' came to stay, our life's been a blur.
I do all that I can to help her understand why,
When I poke her small body, we both start to cry.
Her numbers go low, her numbers go high,
We do everything right, and still I ask "Why?"
Some days it's so hard to just rest for awhile,
Then I realize the gift in my little girl's smile.
I think towards the future, and how she will be,
Will she be happy, will she marry, will she have a baby?
I try not to worry; I give her my best,
When my baby grows up, she will handle the rest.
I do all that I can to relieve all her strife,
She's my baby, my angel; I would give up my life.
I know I have done everything I could try,
But always I wonder "My baby, why?"
It's 20 years later; I stand by the rail,
Tears stream from my eyes as strong hands lift her veil.
My baby is grown, this small one I carried,
I cry deep inside as my baby gets married.
My daughter is grown; she's happy and smart,
She lives life to the fullest, despite the 'D' part.
As they both leave the church, she whispers to me,
I love you so much, we both beat my 'D'.
Gary2000
Thursday, April 29, 2010
Day 29: April 29, 2010
So, I'm putting together a 90th birthday dvd for my mother-in-law, and I got caught up in pictures of my kids as little ones! Boy were they simply adorable and perfect!
They are both still perfect.
Jenna is my beautiful 10 year old, who is bright, funny, conscientious, polite, hard working and has become quite skilled in the art of rolling her eyes at me (LOL!!) She had a spectacular concert tonight at school - both in the band and chorus! Jim and I are so proud!
Jimmy learned how to ride a friend's "spark" scooter yesterday! He got his helmet on without having to be asked!! He loves school, playing outside, and making messes!!
I felt so bad yesterday when he confessed to me that he ate a banana without asking first. I wondered outloud why his blood glucose level was high, and that's when he confessed by showing me the banana peel that he forgot to throw away. Poor kid. Who can give a kid a hard time for eating a piece of fruit for heavens sake??? He felt so badly that he had done something wrong. I felt like such a bad parent for having to tell my kid that he has to ask before having a piece of fruit.
He's been SO great about telling us he's hungry and SO great about testing himself before he eats! But before April 1st, a piece of fruit was NEVER even a question!!!!!
We'll get there. Only one other night have I found him in the closet. It wasn't nearly as bad as the 1st night. I just think he needed some breathing room... Don't we all???...
He fell asleep in my arms tonight. Jim carried him up. He's a good boy. Keep on praying for a cure.
Peace, June
They are both still perfect.
Jenna is my beautiful 10 year old, who is bright, funny, conscientious, polite, hard working and has become quite skilled in the art of rolling her eyes at me (LOL!!) She had a spectacular concert tonight at school - both in the band and chorus! Jim and I are so proud!
Jimmy learned how to ride a friend's "spark" scooter yesterday! He got his helmet on without having to be asked!! He loves school, playing outside, and making messes!!
I felt so bad yesterday when he confessed to me that he ate a banana without asking first. I wondered outloud why his blood glucose level was high, and that's when he confessed by showing me the banana peel that he forgot to throw away. Poor kid. Who can give a kid a hard time for eating a piece of fruit for heavens sake??? He felt so badly that he had done something wrong. I felt like such a bad parent for having to tell my kid that he has to ask before having a piece of fruit.
He's been SO great about telling us he's hungry and SO great about testing himself before he eats! But before April 1st, a piece of fruit was NEVER even a question!!!!!
We'll get there. Only one other night have I found him in the closet. It wasn't nearly as bad as the 1st night. I just think he needed some breathing room... Don't we all???...
He fell asleep in my arms tonight. Jim carried him up. He's a good boy. Keep on praying for a cure.
Peace, June
Tuesday, April 20, 2010
Day 20: April 20, 2010
We met Molly!!!!!!!!!!!!!!!!!!!
The Molly Diabetes Center in Hackensack is where we will be taking Jimmy for a series of JD classes and who will be monitoring his highs, lows and insulin dosages, etc... "Molly" is a beautiful woman, who at 11 years old was diagnosed with Juvenile Diabetes. She wasn't invited to play dates, birthday parties etc... She couldn't have a cookie if she wanted to, and had to sneak sweets. Her and her family had NO formal support through her first years with JD, so from what I understand, her father developed the "Molly Center" to help families so that they could always have the support they NEED... Molly now has 3 children, and is quite a special individual. She was so open and caring and straightforward with the kids, and I think SO important especially for the 2 girls who were there - ages 10 and 11 (with whom Jenna got along so well!) Jimmy of course was in his own little world making shadow puppets in the way of the screen for the slide show (good luck to his kindergarten teacher in the fall...) But I sure did appreciate her! It felt like I had known her forever - I think she might be an angel on earth.
So, our first meeting was last night, and Jimmy met another boy his age who was diagnosed 3 days before him. They're both 5 and starting Kindergarten in September. They're both BIG boys who always get confused with being older, and get this - his parents are both in education (just like Jim and me!) They live close - 2 towns away, so hopefully it's a connection we can build on.
As we were getting ready for the class to begin, I was all set for a serious instruction session... Well, Molly walked in and introduced herself by saying, "Hi, I'm Molly" with a beautiful smile. Just like that, "Hi, I'm Molly." Well... remember what happened at church? There came the waterworks again! You would have thought I would be carrying around tissues after that, but of course I forgot... I thought this was going to be JUST a learning experience, I didn't expect it to be a life transforming! My sister came so she could be informed and help with Jimmy, and again, it was Julie to the rescue with tissues . I'm so lucky to have Julie who is always there for me and so many others!
I felt like Molly's message was that it's ok, you can do this, I'm here for you, reach out, he will grow up and have children and lead a productive life, and the JD will not define him. Thank God for Molly, a real angel!
Peace,
June
The Molly Diabetes Center in Hackensack is where we will be taking Jimmy for a series of JD classes and who will be monitoring his highs, lows and insulin dosages, etc... "Molly" is a beautiful woman, who at 11 years old was diagnosed with Juvenile Diabetes. She wasn't invited to play dates, birthday parties etc... She couldn't have a cookie if she wanted to, and had to sneak sweets. Her and her family had NO formal support through her first years with JD, so from what I understand, her father developed the "Molly Center" to help families so that they could always have the support they NEED... Molly now has 3 children, and is quite a special individual. She was so open and caring and straightforward with the kids, and I think SO important especially for the 2 girls who were there - ages 10 and 11 (with whom Jenna got along so well!) Jimmy of course was in his own little world making shadow puppets in the way of the screen for the slide show (good luck to his kindergarten teacher in the fall...) But I sure did appreciate her! It felt like I had known her forever - I think she might be an angel on earth.
So, our first meeting was last night, and Jimmy met another boy his age who was diagnosed 3 days before him. They're both 5 and starting Kindergarten in September. They're both BIG boys who always get confused with being older, and get this - his parents are both in education (just like Jim and me!) They live close - 2 towns away, so hopefully it's a connection we can build on.
As we were getting ready for the class to begin, I was all set for a serious instruction session... Well, Molly walked in and introduced herself by saying, "Hi, I'm Molly" with a beautiful smile. Just like that, "Hi, I'm Molly." Well... remember what happened at church? There came the waterworks again! You would have thought I would be carrying around tissues after that, but of course I forgot... I thought this was going to be JUST a learning experience, I didn't expect it to be a life transforming! My sister came so she could be informed and help with Jimmy, and again, it was Julie to the rescue with tissues . I'm so lucky to have Julie who is always there for me and so many others!
I felt like Molly's message was that it's ok, you can do this, I'm here for you, reach out, he will grow up and have children and lead a productive life, and the JD will not define him. Thank God for Molly, a real angel!
Peace,
June
Sunday, April 18, 2010
Day 18: April 18, 2010
My husband, Jim, is the pitching/catching coach for a Varsity HS baseball team. When his team heard about Jimmy having been diagnosed with Juvenile Diabetes, they touched our hearts. They all signed a ball for Jimmy (which he proudly has displayed in a clear case from a friend) and gave him a team hat! At a home game, they let him sit on the dugout with them on the bench - and gave him "knuckles" as they ran off the feild to celebrate their WIN! The team further touch our hearts when a player set up the following fundraiser:
INNINGS IN RELIEF
PARK RIDGE HS BASEBALL is proud to introduce “INNINGS IN RELIEF”. It is our way of helping bring awareness to juvenile diabetes and to raise funds to help find a cure, by playing baseball!
As a sponsor of INNINGS IN RELIEF, you are asked to pledge a minimum of 10 cents for every inning that PARK RIDGE VARSITY BASEBALL holds it opponents scoreless, or if you prefer you can give a onetime donation now. To keep track, you can follow our team on the sports page or watch us in person. At the end of the season you will be contacted with the total scoreless innings and the amount of your donation. Last year PARK RIDGE VARSITY BASEBALL recorded 152 scoreless innings en route to our Group 1 State Championship. LET’S TOP THAT NUMBER!!
All money raised will be donated to the Juvenile Diabetes Research Foundation (JDRF.org), a 501c3 charitable organization in the name of Jimmy Karpowich, son of Park Ridge HS Pitching Coach Jim Karpowich. Jimmy was recently diagnosed with juvenile diabetes and we would to like help fund research to find a cure for juvenile diabetes.
PARK RIDGE HS BASEBALL is counting on your generous support for this endeavor. Please fill out the form below and return it to any PARK RIDGE BASEBALL player. For more information please contact InningsInRelief@yahoo.com, or www.JDRF.org Donations may also be mailed to PRHS, 2 Park Avenue, Park Ridge, NJ 07656 ATTN: Athletic Dept
INNINGS IN RELIEF
PARK RIDGE HS BASEBALL is proud to introduce “INNINGS IN RELIEF”. It is our way of helping bring awareness to juvenile diabetes and to raise funds to help find a cure, by playing baseball!
As a sponsor of INNINGS IN RELIEF, you are asked to pledge a minimum of 10 cents for every inning that PARK RIDGE VARSITY BASEBALL holds it opponents scoreless, or if you prefer you can give a onetime donation now. To keep track, you can follow our team on the sports page or watch us in person. At the end of the season you will be contacted with the total scoreless innings and the amount of your donation. Last year PARK RIDGE VARSITY BASEBALL recorded 152 scoreless innings en route to our Group 1 State Championship. LET’S TOP THAT NUMBER!!
All money raised will be donated to the Juvenile Diabetes Research Foundation (JDRF.org), a 501c3 charitable organization in the name of Jimmy Karpowich, son of Park Ridge HS Pitching Coach Jim Karpowich. Jimmy was recently diagnosed with juvenile diabetes and we would to like help fund research to find a cure for juvenile diabetes.
PARK RIDGE HS BASEBALL is counting on your generous support for this endeavor. Please fill out the form below and return it to any PARK RIDGE BASEBALL player. For more information please contact InningsInRelief@yahoo.com, or www.JDRF.org Donations may also be mailed to PRHS, 2 Park Avenue, Park Ridge, NJ 07656 ATTN: Athletic Dept
Imagine the tears when Jim handed this form to me - This team, and the player who dreamed it up will always have a place in my heart! Thank you doesn't cover it - we're honored!
Peace,
June
Day 17: April 17, 2010
We're hanging in there with Jimmy. Jenna is a huge help, and Jules has been so good to her - took her to the movies, brought down hand-me-downs (Jenna's favorite kind of clothes are Jules' old ones!) What a thing for these 2 girls to have in common. Both of their brothers have JD now... Jules really knows what Jenna is going through. I've already told Jenna to scream loudly to get my attention if she's feeling forgotten... I just got off the phone with the Molly Diabetes Center at Hackensack. They're adjusting his insulin to see if we can get rid of his "high trends." I sat there last night and just listened to him breathe because his blood glucose level was in the 500's (target is 150.) He's good today, but that's what the Molly Center is helping me with... We have to keep him back in the desired range. Jim and I will get a handle on this - Missy and Joe AND Joey have been awesome. I feel like I have my very own "cheat sheet" up my sleeve with them right up the street and with Joey via facebook & cell when he's at school! Jimmy really loves and adores Joey - he's been so great for him...
Peace, June
Peace, June
Day 16: April 16, 2010
A note to relatives...
On another note, (rather be telling you this in person, or at least on the phone), Jimmy (jr.) was diagnosed with Juvenile Diabetes on April 1st. We stayed in the hospital until the 3rd - we were home for Easter, so that was good. He's handling it, we're hanging in there. With Joey having it, and my uncle having had it, they figure the family history played a factor. He was so thirsty, a bit tired, and "going" every 2 hours at night (when he had NEVER gotten up to go before.)
So, when I brought him to the dr. to get him checked out on the 1st, they shipped me right over to the pediatric E.R. in Hackensack. They took such good care of him and us. We're getting the hang of it - he has his ups and downs (literally.) Jenna has been so good - helps with his blood monitoring and helps get the injections ready. She's such a big help. He's taking about 5 shots a day - might change as we get it regulated and they can put him on a "pump" which is evidently much better. Time will tell.I'm sure we'll talk soon - say a quick prayer for a cure if you get a chance!!! Hope you are all well and enjoying this spring weather!!!
Peace,
June
On another note, (rather be telling you this in person, or at least on the phone), Jimmy (jr.) was diagnosed with Juvenile Diabetes on April 1st. We stayed in the hospital until the 3rd - we were home for Easter, so that was good. He's handling it, we're hanging in there. With Joey having it, and my uncle having had it, they figure the family history played a factor. He was so thirsty, a bit tired, and "going" every 2 hours at night (when he had NEVER gotten up to go before.)
So, when I brought him to the dr. to get him checked out on the 1st, they shipped me right over to the pediatric E.R. in Hackensack. They took such good care of him and us. We're getting the hang of it - he has his ups and downs (literally.) Jenna has been so good - helps with his blood monitoring and helps get the injections ready. She's such a big help. He's taking about 5 shots a day - might change as we get it regulated and they can put him on a "pump" which is evidently much better. Time will tell.I'm sure we'll talk soon - say a quick prayer for a cure if you get a chance!!! Hope you are all well and enjoying this spring weather!!!
Peace,
June
Day 14: April 14, 2010
Now Jimmy says he won't wear the medic alert id bracelet. I was showing it to him on the website (it's cute - a band with sports stuff on it) when he went running away from the computer yelling that he won't wear it. I backed off, but I have to order it... I asked my nephew (with JD) if he would give it to him - coming from him it might be better accepted...
Peace,
June
Peace,
June
Day 12: April 12, 2010
I had dinner with Jimmy in my dark closet tonight. Good thing it was dark, so he couldn't see my tears. We thought he was ok with all of this... We were about to have dinner, so we did the usual - checked his blood glucose level - turns out he was high (in the 400's - and his target it 150).
All of a sudden, he bolted from the dinner table and we couldn't find him. We looked in the usual places to no avail. Getting worried that something was terribly wrong... Just about to call neighbors to see if he looked for retreat there, when he gave himself up - he was in the back of my closet. He's not ok. He's scared. He doesn't want shots. He doesn't want diabetes. My heart is broken.
We thought he was ok... He was even letting his big sister, Jenna, take his blood glucose level, and letting us give him his shot in his leg (though he prefers the arms.) We really thought that he was a resiliant kid and that he was ok. It was all I could do not to openly sob in the closet with him. Jim and I took turns "making it all ok" in the dark with him. We shared dinner and stories, and vowed to have dinner every Monday night with him in the dark closet if he wants - whatever it takes.
What do I do? We have an appt. at the "Molly Center" on the 19th. The Molly center is where we go for all the Juvenile Diabetes appointments at HUMC. Of course we'll ask them, and join a support group, etc, but how do I help my baby in the meantime???
He's such a good boy - he's adjusted to asking before he eats anything - even ran home from next door to ask if he could have a "sugar free" ice pop!!! He's been so good with this!!! I thought it was just Jim and me with the issues... I was wrong.
He's sound asleep now in my bed. He looks so sweet with his blue baby blanket, "bluey" intertwined in his grip. Please pray for a cure for Juvenile Diabetes.
Peace,
June
All of a sudden, he bolted from the dinner table and we couldn't find him. We looked in the usual places to no avail. Getting worried that something was terribly wrong... Just about to call neighbors to see if he looked for retreat there, when he gave himself up - he was in the back of my closet. He's not ok. He's scared. He doesn't want shots. He doesn't want diabetes. My heart is broken.
We thought he was ok... He was even letting his big sister, Jenna, take his blood glucose level, and letting us give him his shot in his leg (though he prefers the arms.) We really thought that he was a resiliant kid and that he was ok. It was all I could do not to openly sob in the closet with him. Jim and I took turns "making it all ok" in the dark with him. We shared dinner and stories, and vowed to have dinner every Monday night with him in the dark closet if he wants - whatever it takes.
What do I do? We have an appt. at the "Molly Center" on the 19th. The Molly center is where we go for all the Juvenile Diabetes appointments at HUMC. Of course we'll ask them, and join a support group, etc, but how do I help my baby in the meantime???
He's such a good boy - he's adjusted to asking before he eats anything - even ran home from next door to ask if he could have a "sugar free" ice pop!!! He's been so good with this!!! I thought it was just Jim and me with the issues... I was wrong.
He's sound asleep now in my bed. He looks so sweet with his blue baby blanket, "bluey" intertwined in his grip. Please pray for a cure for Juvenile Diabetes.
Peace,
June
Day 6: April 6, 2010
My son just sold me a $7 cup of (crystal lite) iced tea at his indoor lemonade stand. And the napkin was $2!!! lol I guess he knows that this diagnosis comes with him getting anything he wants for a while!!!
We're home, we're learning. It's for life, but it's treatable. Hopefully, he grows up not knowing any other way. He already makes jokes when we tell him that it's time to test his blood. In his cute raspy little boy voice he jokes with a big smile, "Pick a finger, Any finger!" or "Pull my finger!" Such a boy, huh?
Peace,
June
We're home, we're learning. It's for life, but it's treatable. Hopefully, he grows up not knowing any other way. He already makes jokes when we tell him that it's time to test his blood. In his cute raspy little boy voice he jokes with a big smile, "Pick a finger, Any finger!" or "Pull my finger!" Such a boy, huh?
Peace,
June
Day 4: April 4, 2010
It was an interesting Easter. Fr. Mike told us to leave whatever we were carrying up on the alter and let God give us a new beginning. Boy did I leave a lot up there!!! I just started sobbing! My pocketbook was filled with insulin, testers, glucogon, low carb snacks, etc... but I didn't have a tissue!!! A friend's husband handed me his hankercheif!!! It was quite a scene - it came out of nowhere... The people around me in the pews must have thought I was crazy...
So anyway, I now know why I fell and broke my nose in the fall. Prior to the fall, I had a ridiculous, but real, needle phobia. Seeing the 10 numbing needles go into my nose for the stitches and to reset it cured me of the phobia. I can give him his shots, with REAL needle, without a problem! I'm better at it than my husband! Everything happens for a reason I guess...
Thanks for reading my rambling... Help me with a distraction - what's happening with all of you?
Peace,
June
So anyway, I now know why I fell and broke my nose in the fall. Prior to the fall, I had a ridiculous, but real, needle phobia. Seeing the 10 numbing needles go into my nose for the stitches and to reset it cured me of the phobia. I can give him his shots, with REAL needle, without a problem! I'm better at it than my husband! Everything happens for a reason I guess...
Thanks for reading my rambling... Help me with a distraction - what's happening with all of you?
Peace,
June
Day 3: April 3, 2010
Home from the hospital. Tomorrow is easter. Wonder what the bunny will bring??? Jimmy is handling it amazingly. Screamed about the needles on day 1, "took it like a man" as my husband puts it, on day 2, and now, he's picking his finger for prick, and choosing a site for the insulin!
It was so hard to see him so small in his hospital bed. We're home tonight, and looking forward to Easter mass and family tomorrow. Wish me luck with the sweets all day tomorrow!
It was so hard to see him so small in his hospital bed. We're home tonight, and looking forward to Easter mass and family tomorrow. Wish me luck with the sweets all day tomorrow!
Day 1: April 1, 2010
Hi,
I'm at humc w/ my son, Jimmy. He was diagnosed w/ juvenile diabetes today (hard to say still, let alone put in print).
He'll be fine - it's treatable - just pray that our transition in this crappy hand that was dealt will be as smooth as it can be. (sorry for the language!)
He hates blood and needles - It's breaking my heart to see him cry. Luckily I was cured of my needle phobia when I had the 10 needles of pain killer in my nose when I broke it this fall!- so I'll be fine with the needles (even gave him his first finger prick and assisted w/ the first insulin injection.)
Anyone have experience w/ this? Just wanted back up - we have a nephew w/ it - he was so awesome to drive up from college early today to spend time with "Slim" as he calls him. They were comparing their jd "tools" as jimmy calls it.
I'm so used to it being me w/ the injury or illness. I'd prefer it that way - Now it's my baby. He looks so little in the hospital bed. I can't kiss this and make it better - can I?
We're sleeping here tonight and tomorrow night. Lot's of education tomorrow and tons of monitoring his levels. We'll be home Sat. afternoon or evening.
I'll keep you updated.
love you,
Peace,
June
I'm at humc w/ my son, Jimmy. He was diagnosed w/ juvenile diabetes today (hard to say still, let alone put in print).
He'll be fine - it's treatable - just pray that our transition in this crappy hand that was dealt will be as smooth as it can be. (sorry for the language!)
He hates blood and needles - It's breaking my heart to see him cry. Luckily I was cured of my needle phobia when I had the 10 needles of pain killer in my nose when I broke it this fall!- so I'll be fine with the needles (even gave him his first finger prick and assisted w/ the first insulin injection.)
Anyone have experience w/ this? Just wanted back up - we have a nephew w/ it - he was so awesome to drive up from college early today to spend time with "Slim" as he calls him. They were comparing their jd "tools" as jimmy calls it.
I'm so used to it being me w/ the injury or illness. I'd prefer it that way - Now it's my baby. He looks so little in the hospital bed. I can't kiss this and make it better - can I?
We're sleeping here tonight and tomorrow night. Lot's of education tomorrow and tons of monitoring his levels. We'll be home Sat. afternoon or evening.
I'll keep you updated.
love you,
Peace,
June
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